Re: Help finding Dr needed and advise please

[Guest guest]

Irene, Alot of colleges have many classes online so that you don't have to compromise your health. The other issue iss that you may be ableto find a clinis or health care organization local to you that take people without innsurance on a sliding scale. You may be able to find them through your locaal hospital,or social services in the phone book. I know we haave them aaround here. Good luck! Bonnie B

Help finding Dr needed and advise please

Hi All,

I am at a crossroads right now. I was told I have neurosarcoidosis back in 1994 and at that time I had applied for Social Security Disability and was rejected. I did manage to find a job and was able to work from home for the first company for 8 years and then found a second company that would allow me to work from home and worked for them for 7 years. I moved from LI,NY after the first 2 years to the coast of NC and still worked for them. I was laid off on March 20th of this year and I am collecting unemployment. I have spent the last 4 1/2 months desperately trying to find a legitimate work from home position with a real company that pays real money to no avail. There are a lot of scams out there. Anyway to make a long story a bit shorter, I need a Dr in the ville NC area that KNOWS what Neurosarcoidosis is- NOT sarcoidosis. I have severe headaches, balance problems issues with my eyes, ears, liver and kidneys and cardiac issues. My lungs are FINE. The last time it was checked about five and a half years ago when I lived in NY my ACE level was 94. I have not been able to find a Dr on the coast of NC that has ever heard of Neurosarcoidosis and they wont go by results of tests done back in 1994. My insurance is Blue Cross Blue Shield of VT on COBRA which they accept here but the coverage is not very good. I already owe hundreds of dollars just for an upper respitory infection I had back in May. I dont know what to do. The employment security commission of NC has approved to pay for me to go to college for two years and I am supposed to start classes on August 17th, but honestly I cant imagine being able to stay healthy enough to do this for two years. I have virtually no immune system and I get sick just going to Walmart. In addition to that If I am unemployed for two years my disability payment would be greatly reduced. Again I have not applied after being turned down in 1994, but I know that they go by the overall income for a period of time and with me making so much less on unemployment for the last f

ive months I am already in trouble. Can anyone advise what I can/should do? I really am scared to try to go to school and I haven't been able to find one single Dr in this area that has heard of this disease. I am not in a position to go to Duke or any other hospital in the western part of the state. I cant afford the hospital bills and am just trying at this point not to lose my house. The only medication I take is fiorcet for the migraines and OTC acid reducer for my stomach. I cant afford to be on meds for this. Sorry this is so long but I really need HELP!! Irene from coastal NC

[Guest guest]

Hi, Irene

Are you able to go to ton, SC for medical issues? There is a sarc clinic

there. Although it isn't specifically neuro, they might be a helpful resource.

If you were able to make it as far as Durham, I would recommend Duke. That is

where I've been going since I was first diagnosed in Oct. '07.

Best of luck,

Sharon

>

>

>

> Subject: Re: Help finding Dr needed and advise please

> To: Neurosarcoidosis

> Date: Tuesday, July 28, 2009, 3:11 PM

>

>

>  

>

>

>

>

> Irene, Alot of colleges have many classes online so that you don't have to

compromise your health. The other issue iss that you may be ableto find a clinis

or health care organization local to you that take people without innsurance on

a sliding scale. You may be able to find them through your locaal hospital,or

social services in the phone book. I know we haave them aaround here. Good

luck!  Bonnie B

>

>

>

>

> Help finding Dr needed and advise please

>

>

>  

>

>

>

> Hi All,

> I am at a crossroads right now. I was told I have neurosarcoidosis back in

1994 and at that time I had applied for Social Security Disability and was

rejected. I did manage to find a job and was able to work from home for the

first company for 8 years and then found a second company that would allow me to

work from home and worked for them for 7 years. I moved from LI,NY after the

first 2 years to the coast of NC and still worked for them. I was laid off on

March 20th of this year and I am collecting unemployment. I have spent the last

4 1/2 months desperately trying to find a legitimate work from home position

with a real company that pays real money to no avail. There are a lot of scams

out there. Anyway to make a long story a bit shorter, I need a Dr in the

ville NC area that KNOWS what Neurosarcoidosis is- NOT sarcoidosis. I

have severe headaches, balance problems issues with my eyes, ears, liver and

kidneys and cardiac issues. My lungs are

> FINE. The last time it was checked about five and a half years ago when I

lived in NY my ACE level was 94. I have not been able to find a Dr on the coast

of NC that has ever heard of Neurosarcoidosis and they wont go by results of

tests done back in 1994. My insurance is Blue Cross Blue Shield of VT on COBRA

which they accept here but the coverage is not very good. I already owe hundreds

of dollars just for an upper respitory infection I had back in May. I dont know

what to do. The employment security commission of NC has approved to pay for me

to go to college for two years and I am supposed to start classes on August

17th, but honestly I cant imagine being able to stay healthy enough to do this

for two years. I have virtually no immune system and I get sick just going to

Walmart. In addition to that If I am unemployed for two years my disability

payment would be greatly reduced. Again I have not applied after being turned

down in 1994, but I know that

> they go by the overall income for a period of time and with me making so much

less on unemployment for the last f ive months I am already in trouble. Can

anyone advise what I can/should do? I really am scared to try to go to school

and I haven't been able to find one single Dr in this area that has heard of

this disease. I am not in a position to go to Duke or any other hospital in the

western part of the state. I cant afford the hospital bills and am just trying

at this point not to lose my house. The only medication I take is fiorcet for

the migraines and OTC acid reducer for my stomach. I cant afford to be on meds

for this. Sorry this is so long but I really need HELP!! Irene from coastal NC

>