Re: Atypical club feet????

[Guest guest]

She developed the crease after the tenotomy but not the big toe or a

typical high arch. Her feet apear to have a high arch when the crease

developed but after corection of the crease her feet are basically

pretty flat. She was treated by DR Mosca in Seattle; after diagnosis

by Dr. Ponseti via web pictures. He is very amazing! DR P. I just

thought I'd share because we couldn't see the atypical thing coming.

Even retrospectivly looking at pictures. I don't know if that is

common.

and Sadie

> > > > >

> > > > > was born on October 27 with bilateral club feet.

She

> > is

> > > in

> > > > the

> > > > > casting phase and is doing well. I was wondering how I

would

> > > know

> > > > if

> > > > > her feet are " atypical club feet " or not? I have heard

that

> > > term

> > > > and

> > > > > do not know. Her doctor has not said that they are

atypical

> > and

> > > has

> > > > > described them as " on the better side of moderate " as club

> > feet

> > > go.

> > > > > She has good flexibility (dorsiflexion) and is responding

> well

> > > to

> > > > > casting. I would post a picture but am not sure how to put

it

> > > into

> > > > the

> > > > > body of this email. (I am high-tech challenged!)

> > > > >

> > > > > Carol and , born 10-27-05, bcf, serial casting stage

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi my dear old friend and plantaris buddy. Sadie is a busy girl. We

are still looking for a diagnosis to explain the hypotonia. She goes

to weekly speach therapy an early intervention birth to three program

twice a weak and pt/ot once a week. I have been able to return to

work a little. It is hard to find time to make money when I am taking

Sadie somewhere everyday. She continues to progress forward but at

Sadie speed.

I am forever grateful to this support group and to you and Kia for

your important part in the journey to Sadies perfect feet. The timing

still amazes me. I think Sadie was only a month behind your

struggles. HOw is Kia doing?

Good to catch up

-- In nosurgery4clubfoot , " Angel Gray "

<m_kitaki@h...> wrote:

>

> How IS sweet Sadie doing ? I don't have my old e-mail

address anymore and I had lost your e-mail address!

>

> Many of you here don't know, but 4 of us went thru our children

being the first ones diagnosed with atypical feet all together. When

and her DH learned about it, I already had tickets booked to

Iowa, and between the two doctors and two families we made a sort of

circle, with Dr Ponseti working on Kai in Iowa then sending the

knowledge to Dr Mosca who worked on Sadie in Seattle.

>

> FWIW, Kai's foot also developed the lateral and transverse crease

AFTER the tenotomy. He had the heel crease when he was born (from

the super-tight achilles). But Dr Mosca never suspected anything out

of the ordinary in the pre-tentomy casting, and it only took three

casts to get his foot ready for the tenotomy. He also doesn't have a

fat leg ... in fact, it is a chicken leg!

>

> Angel

> Re: Atypical club feet????

>

>

> She developed the crease after the tenotomy but not the big toe

or a

> typical high arch. Her feet apear to have a high arch when the

crease

> developed but after corection of the crease her feet are

basically

> pretty flat. She was treated by DR Mosca in Seattle; after

diagnosis

> by Dr. Ponseti via web pictures. He is very amazing! DR P. I just

> thought I'd share because we couldn't see the atypical thing

coming.

> Even retrospectivly looking at pictures. I don't know if that is

> common.

> and Sadie

>

>

> > > > > >

> > > > > > was born on October 27 with bilateral club

feet.

> She

> > > is

> > > > in

> > > > > the

> > > > > > casting phase and is doing well. I was wondering how I

> would

> > > > know

> > > > > if

> > > > > > her feet are " atypical club feet " or not? I have heard

> that

> > > > term

> > > > > and

> > > > > > do not know. Her doctor has not said that they are

> atypical

> > > and

> > > > has

> > > > > > described them as " on the better side of moderate " as

club

> > > feet

> > > > go.

> > > > > > She has good flexibility (dorsiflexion) and is

responding

> > well

> > > > to

> > > > > > casting. I would post a picture but am not sure how to

put

> it

> > > > into

> > > > > the

> > > > > > body of this email. (I am high-tech challenged!)

> > > > > >

> > > > > > Carol and , born 10-27-05, bcf, serial casting

stage

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

-Yeah Sadie and motherhood have taught me to expect the unexpected!

What an adventure!!!!

-- In nosurgery4clubfoot , faith slattery

<simone057@y...> wrote:

>

> Wow! I guess there really is no " norm " for this kind of thing. Gabe

had dents...not creases. He never had transverse creases.Really the

only way you could see the arch was through x-ray (although he

had " thick " little sausage feet.His feet and legs were SOOOO fat!

Gabe always had the heel creases; he also had another crease in the

lower 1/3 of his calves. His Achilles was very tight, but aren't a

good number of typical clubfeet? He had the jutting out big toes from

birth too. Having said all this, what is it that classifies any of

these feet atypical (or complex? Is there anything that all of them

have in common -- a criteria that classifies them as " atypical " , or

is it just ANYfoot that doesn't have the normal clubfoot

presentation? For instance, what if Gabe only had the excess tissue

to contend with rather than the " fatty " feet, the high arches ,and

the creases. Would it still be atypical -- the fatty tissue alone

would have prevented him form wearing Markell's...

>

> Angel Gray <m_kitaki@h...> wrote: How IS sweet Sadie doing

? I don't have my old e-mail address anymore and I had lost

your e-mail address!

>

> Many of you here don't know, but 4 of us went thru our children

being the first ones diagnosed with atypical feet all together. When

and her DH learned about it, I already had tickets booked to

Iowa, and between the two doctors and two families we made a sort of

circle, with Dr Ponseti working on Kai in Iowa then sending the

knowledge to Dr Mosca who worked on Sadie in Seattle.

>

> FWIW, Kai's foot also developed the lateral and transverse crease

AFTER the tenotomy. He had the heel crease when he was born (from

the super-tight achilles). But Dr Mosca never suspected anything out

of the ordinary in the pre-tentomy casting, and it only took three

casts to get his foot ready for the tenotomy. He also doesn't have a

fat leg ... in fact, it is a chicken leg!

>

> Angel

> Re: Atypical club feet????

>

>

> She developed the crease after the tenotomy but not the big toe

or a

> typical high arch. Her feet apear to have a high arch when the

crease

> developed but after corection of the crease her feet are

basically

> pretty flat. She was treated by DR Mosca in Seattle; after

diagnosis

> by Dr. Ponseti via web pictures. He is very amazing! DR P. I just

> thought I'd share because we couldn't see the atypical thing

coming.

> Even retrospectivly looking at pictures. I don't know if that is

> common.

> and Sadie

>

>

> > > > > >

> > > > > > was born on October 27 with bilateral club

feet.

> She

> > > is

> > > > in

> > > > > the

> > > > > > casting phase and is doing well. I was wondering how I

> would

> > > > know

> > > > > if

> > > > > > her feet are " atypical club feet " or not? I have heard

> that

> > > > term

> > > > > and

> > > > > > do not know. Her doctor has not said that they are

> atypical

> > > and

> > > > has

> > > > > > described them as " on the better side of moderate " as

club

> > > feet

> > > > go.

> > > > > > She has good flexibility (dorsiflexion) and is

responding

> > well

> > > > to

> > > > > > casting. I would post a picture but am not sure how to

put

> it

> > > > into

> > > > > the

> > > > > > body of this email. (I am high-tech challenged!)

> > > > > >

> > > > > > Carol and , born 10-27-05, bcf, serial casting

stage

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Sadie feet were basically folding in half. This created a deep crease

between the heel and her arch. She required additional casts to

correct this folding. There are many people that could explain this

better I am sure. I can't believe it but the last year has been so

intense with SAdies other isues I have forgotten so many details. I

am so grateful to this group. I don't know what would have to Sadie

feet without the group and DR. Ponseti.

> > > > > >

> > > > > > was born on October 27 with bilateral club

feet.

> She

> > > is

> > > > in

> > > > > the

> > > > > > casting phase and is doing well. I was wondering how I

> would

> > > > know

> > > > > if

> > > > > > her feet are " atypical club feet " or not? I have heard

> that

> > > > term

> > > > > and

> > > > > > do not know. Her doctor has not said that they are

> atypical

> > > and

> > > > has

> > > > > > described them as " on the better side of moderate " as

club

> > > feet

> > > > go.

> > > > > > She has good flexibility (dorsiflexion) and is

responding

> > well

> > > > to

> > > > > > casting. I would post a picture but am not sure how to

put

> it

> > > > into

> > > > > the

> > > > > > body of this email. (I am high-tech challenged!)

> > > > > >

> > > > > > Carol and , born 10-27-05, bcf, serial casting

stage

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

I am so glad to hear that Sadie is progressing (Sadie speed must be

just perfect for her!) Kai is also doing well ... at his pace ;D

He will be exiting the Birth to 3 program and entering the school

district at the end of the month. Like you, we have never been able

to learn the cause of all his issues, but it seems to matter less and

less as we go. Me gets ST every week, and every 6 months Dr Mosca re-

casts him. As new things come up, we take care of them and go on.

I am so happy that Sadie's feet have turned out well. Have faith

that the rest will follow suit.

Angel

> > > > > > >

> > > > > > > was born on October 27 with bilateral club

> feet.

> > She

> > > > is

> > > > > in

> > > > > > the

> > > > > > > casting phase and is doing well. I was wondering how

I

> > would

> > > > > know

> > > > > > if

> > > > > > > her feet are " atypical club feet " or not? I have

heard

> > that

> > > > > term

> > > > > > and

> > > > > > > do not know. Her doctor has not said that they are

> > atypical

> > > > and

> > > > > has

> > > > > > > described them as " on the better side of moderate " as

> club

> > > > feet

> > > > > go.

> > > > > > > She has good flexibility (dorsiflexion) and is

> responding

> > > well

> > > > > to

> > > > > > > casting. I would post a picture but am not sure how

to

> put

> > it

> > > > > into

> > > > > > the

> > > > > > > body of this email. (I am high-tech challenged!)

> > > > > > >

> > > > > > > Carol and , born 10-27-05, bcf, serial casting

> stage

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

I don't mean to prod, but did either of you see my last post on this subject...

I'm pretty curious if anyone has the time to answer...

angelmommy23 wrote: I am so glad to hear that Sadie is

progressing (Sadie speed must be

just perfect for her!) Kai is also doing well ... at his pace ;D

He will be exiting the Birth to 3 program and entering the school

district at the end of the month. Like you, we have never been able

to learn the cause of all his issues, but it seems to matter less and

less as we go. Me gets ST every week, and every 6 months Dr Mosca re-

casts him. As new things come up, we take care of them and go on.

I am so happy that Sadie's feet have turned out well. Have faith

that the rest will follow suit.

Angel

> > > > > > >

> > > > > > > was born on October 27 with bilateral club

> feet.

> > She

> > > > is

> > > > > in

> > > > > > the

> > > > > > > casting phase and is doing well. I was wondering how

I

> > would

> > > > > know

> > > > > > if

> > > > > > > her feet are " atypical club feet " or not? I have

heard

> > that

> > > > > term

> > > > > > and

> > > > > > > do not know. Her doctor has not said that they are

> > atypical

> > > > and

> > > > > has

> > > > > > > described them as " on the better side of moderate " as

> club

> > > > feet

> > > > > go.

> > > > > > > She has good flexibility (dorsiflexion) and is

> responding

> > > well

> > > > > to

> > > > > > > casting. I would post a picture but am not sure how

to

> put

> > it

> > > > > into

> > > > > > the

> > > > > > > body of this email. (I am high-tech challenged!)

> > > > > > >

> > > > > > > Carol and , born 10-27-05, bcf, serial casting

> stage

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Faith, forgive me for overlooking answering this. I don't have

enough time right at this moment to lay it out, but a bit later

tonight I will see what I can pull together to answer for you what

constitutes comples/atypical.

Angel

> > > > > > > >

> > > > > > > > was born on October 27 with bilateral club

> > feet.

> > > She

> > > > > is

> > > > > > in

> > > > > > > the

> > > > > > > > casting phase and is doing well. I was wondering

how

> I

> > > would

> > > > > > know

> > > > > > > if

> > > > > > > > her feet are " atypical club feet " or not? I have

> heard

> > > that

> > > > > > term

> > > > > > > and

> > > > > > > > do not know. Her doctor has not said that they are

> > > atypical

> > > > > and

> > > > > > has

> > > > > > > > described them as " on the better side of moderate "

as

> > club

> > > > > feet

> > > > > > go.

> > > > > > > > She has good flexibility (dorsiflexion) and is

> > responding

> > > > well

> > > > > > to

> > > > > > > > casting. I would post a picture but am not sure how

> to

> > put

> > > it

> > > > > > into

> > > > > > > the

> > > > > > > > body of this email. (I am high-tech challenged!)

> > > > > > > >

> > > > > > > > Carol and , born 10-27-05, bcf, serial

casting

> > stage

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

Hi Faith sorry for the delay. I worked 7am-8pm yesterday with very

needy patients and was unable to read anything. I am happy Angel

answered your questions. She is a wealth of info!!!! I still think

she should be a nurse/MD or something that pays her well for her

educated mind. Kia is a lucky boy.

> > > > > > > > > >

> > > > > > > > > > was born on October 27 with bilateral

club

> > > > feet.

> > > > > She

> > > > > > > is

> > > > > > > > in

> > > > > > > > > the

> > > > > > > > > > casting phase and is doing well. I was

wondering

> > how

> > > I

> > > > > would

> > > > > > > > know

> > > > > > > > > if

> > > > > > > > > > her feet are " atypical club feet " or not? I

have

> > > heard

> > > > > that

> > > > > > > > term

> > > > > > > > > and

> > > > > > > > > > do not know. Her doctor has not said that they

> are

> > > > > atypical

> > > > > > > and

> > > > > > > > has

> > > > > > > > > > described them as " on the better side of

> moderate "

> > as

> > > > club

> > > > > > > feet

> > > > > > > > go.

> > > > > > > > > > She has good flexibility (dorsiflexion) and is

> > > > responding

> > > > > > well

> > > > > > > > to

> > > > > > > > > > casting. I would post a picture but am not sure

> how

> > > to

> > > > put

> > > > > it

> > > > > > > > into

> > > > > > > > > the

> > > > > > > > > > body of this email. (I am high-tech

challenged!)

> > > > > > > > > >

> > > > > > > > > > Carol and , born 10-27-05, bcf, serial

> > casting

> > > > stage

> > > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

[Guest guest]

No problem, it wasn't pressing, I was just curious... Yes, I do appreciate the

time it took her to compile an answer for me/ anyone else who was curious. Maybe

after the holidays I'll have time to look some of this stuff up on my own for a

change...

kitergirl wrote: Hi Faith sorry for the delay. I worked

7am-8pm yesterday with very

needy patients and was unable to read anything. I am happy Angel

answered your questions. She is a wealth of info!!!! I still think

she should be a nurse/MD or something that pays her well for her

educated mind. Kia is a lucky boy.

> > > > > > > > > >

> > > > > > > > > > was born on October 27 with bilateral

club

> > > > feet.

> > > > > She

> > > > > > > is

> > > > > > > > in

> > > > > > > > > the

> > > > > > > > > > casting phase and is doing well. I was

wondering

> > how

> > > I

> > > > > would

> > > > > > > > know

> > > > > > > > > if

> > > > > > > > > > her feet are " atypical club feet " or not? I

have

> > > heard

> > > > > that

> > > > > > > > term

> > > > > > > > > and

> > > > > > > > > > do not know. Her doctor has not said that they

> are

> > > > > atypical

> > > > > > > and

> > > > > > > > has

> > > > > > > > > > described them as " on the better side of

> moderate "

> > as

> > > > club

> > > > > > > feet

> > > > > > > > go.

> > > > > > > > > > She has good flexibility (dorsiflexion) and is

> > > > responding

> > > > > > well

> > > > > > > > to

> > > > > > > > > > casting. I would post a picture but am not sure

> how

> > > to

> > > > put

> > > > > it

> > > > > > > > into

> > > > > > > > > the

> > > > > > > > > > body of this email. (I am high-tech

challenged!)

> > > > > > > > > >

> > > > > > > > > > Carol and , born 10-27-05, bcf, serial

> > casting

> > > > stage

> > > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >