Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Another issue with the Pred is damage to the teeth. After I'd been on Pred for awhile, my teeth just started crumbling, as well as many cavities. My dentist told me that the Pred effect would last many years, even after I stopped taking it. So try to keep her dental care up to date. Ramblin' RoseModerator To: Neurosarcoidosis From: dmatt1960@...Date: Sun, 9 Aug 2009 11:22:21 -0700Subject: Re: Hello Everyone Hi to all. We have returned from New Hampshire. Actually had a good time. Nice weather and we were able to relax. Couldn't do a lot of the walking stuff but we made out Ok. is on Prednisone. 6 mgs a day. we don't get shaking from that. She has tremors in her right hand as a result of the neurosarc damaging the brains ability to manufacture dopamine which keeps the muscles in check, We might have to lokk at a med replacement like setmet?? I have to begin looking up info. Our side effects of the prednisone have been bone related where the higher doses started to rob the clacium from her bones making them brittle. Actonel & Oscal have helped thatHope all are as OK as they can be.Matt Hi everyone! Sorry I haven't been very active lately. I've been feeling a little crappy and have had tons of appointments for tests, docs etc... I know you all understand what that's like! My sarc is now cardiac too as well as neuro, lymph, pulm and joint. The docs decided (after many CT scans and mri's) that the cellcept/pred combo isn't working. They now have me starting methotrexate/ plaquenil/ pred combo. I started today and notice some very weird tingling in my face/head as well as strange muscle twitching. Anyone have any input on this? I hope you all are doing well- you remain in my prayers!Dawn Get your vacation photos on your phone! Click here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Thanks for the info. We just had her dentist appt and luckily all is well, No cavities and no sign of teeth crumble. So many things to keep on top of. Matt Hi everyone! Sorry I haven't been very active lately. I've been feeling a little crappy and have had tons of appointments for tests, docs etc... I know you all understand what that's like! My sarc is now cardiac too as well as neuro, lymph, pulm and joint. The docs decided (after many CT scans and mri's) that the cellcept/pred combo isn't working. They now have me starting methotrexate/ plaquenil/ pred combo. I started today and notice some very weird tingling in my face/head as well as strange muscle twitching. Anyone have any input on this? I hope you all are doing well- you remain in my prayers!Dawn Get your vacation photos on your phone! Click here. Quote Link to comment Share on other sites More sharing options...
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