Re: Re: Help with shoes

[Guest guest]

,

Thank you for your warm welcome. This is still so new to me. I am not sure

what all of the abreviations are - what is FAB? I too am so glad that I can

finally take the shoes off alittle. Robbie's foot looks great and I can

finally dress him like a little boy. This winter is going to be tough with the

snowsuits and stuff.

Thanks again,

Stefanie and Robbie (41/2 mos)

wrote: Hi there and welcome,

Glad to hear that your little guy has done well with his casts and

23/7 wear! Our little girl also has unilateral right clubfoot.

The link that gave you is to Dr. Ponseti's web site and he

describes how brace wear should be reduced. First to about 18 hrs,

then to 16, then to 14 and finally when walking is well established,

down to 12.

Honestly, I was sooo happy to have Grace out of her brace 23/7 and

was very confident in her correction and we went to about 16 hrs

after our 23/7 (3 mos of this as per protocol) and she was fine. We

then went down to 14 hrs, when she was cruising. She has now been

walking for about 3 mo's or so but I still keep her in her FAB for 13

hrs. And will keep this up for the duration of her brace wear - until

she is 4.

Again welcome and congrats on your son!

HTH

& Grace 16 mos

unilateral rcf FAB 13 hrs

> >

> > Hi, welcome to the board!

> > I'm not sure if you gave us quite enough information here to give

you

> > a complete answer. Has your son only been wearing the shoes 23/7

for

> > 2 months? Typically, it's 3 months full time after the tenotomy.

> > How old is your son? Is he walking yet?

> > Here is a link to a post with the standards for wearing the brace

(for

> > most cases) per Dr. Ponseti:

> >

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/30939

> > You can also get to this under the links section on this group's

> > website.

> > Going from full-time wear right down to naptime can be

disastrous, as

> > you may have read. It is better to step down the amount of hours

> > gradually. Additionally, most children shouldn't be at " night

time

> > only " which technically is 10 hours/day I think- until they are

> > walking full-time.

> > There is additional bracing information in the files section

under the

> > bracing folder. Also, there is information on bracing, relapses

etc.

> > at this site: http://members.tripod.com/ponseti_links-ivil

> > I hope this helps! If you don't mind sharing, who is your son's

> > doctor/hospital?

> > We look forward to reading updates- and please ask any questions

you

> > might have!

> > Regards,

> > & (3-16-00, left clubfoot)

> > http://ponseticlubfoot.freeservers.com/

> >

>