About me and the family

[Guest guest]

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

Hello ,

Welcome to the group! Sounds like you have had a lot on you plate for

quite a while! Your post brought a tear (quite a few actually) to my

eye! You poor thing! In a new city with so many health issues to deal

with - really feeling for you!! So glad that you found your way

here!!!! We will do our best to give you some much needed support and

guide you to the right doctor for your Noah =)!

I know that there are a few parents here from the Kansas city area

that will be able to recommend a 'true' Ponseti doctor for him. Poor

little guy, hate to hear that he is having such pain! Something needs

to be done for him NOW and that fact that his current doctor has let

this go on like this is just plain Unacceptable!!!! And what is up

with this doctor not wanting to see Noah's medical records when he

has had 4 years of treatment and a surgery?????

I cannot begin to imagine the emotions that you are going through

with your dh's illness and then having Noah's foot relapsing on top

of it but I will say that as far as the foot issue is concerned, I

hope you are getting MAD...getting pissed off motivated me to

investigate another more serious health issue that my little girl has

and has made me a much better advocate for her. I say this because we

as women tend to internalize so much, we blame ourselves when we

should be putting the blame where the blame lies! And then getting on

with business!

When I read that all you wanted was for your son to be able to run

with the other boys... well it made me all blubbery, but it was also

a MAD/ANGERY blubbery - not a pretty site I am sure lol lol.

Really glad that you are here and I am sure that someone from your

area will reply and give you the name and number of a great doc in

your area that will be able to help Noah ASAP!

Give Noah a big hug from us!!

& Grace 16 mos

Unilateral right clubfoot FAB 13 hrs

Vancouver BC Canada

>

> Hi my name is Bronson. I have a 4 year old son who was born

> with left club foot.

> Let me start from the begging so that you can understand more about

> him. I went through premature labor with him many times and was

> flown to another city twice. From there on the 2 doctors had 2

> different due dates. By the time he was born (had to be induced due

> to preaclampsia) (sp) there were signs he had been in there to

long.

> ( over cooked ) is what they called it. The first day of his life

> the doctors started taking care of the more important problems that

> he had. On day 2 they slapped a cast on his foot and told me what

> doctor to see about his foot. I have never heard of clubfoot before

> my son was born. While dealing with all his other problems we would

> go to this new doctor and have him take change the cast, then he

> would send us on our way. On my son's 13th day of life we found out

> that my husband had Hodgkins lymphoma. So that was more doctors to

> get and more on my plate. After about 3 months of my son seeing

this

> doctor my mommy notions kicked in and told me that for 600 dollars

a

> visit my son's foot was not getting anybetter. I looked into

another

> doctor and found one 3 hours out of town. We soon had Noah's

records

> sent to him and he called us to get in right away. We found out

that

> his old doctor did not do anything ( like I thought ) but take our

> money. So we were back to square one. We had to start all over

> again. His new doctor said he worked under Dr.P before he moved

> here and that we were in good hands. Noah was also sent to a nerou

> doctor to check out his muscles. He had to see this doctor for a

> month. He also had to therapists he saw. Mike would come to the

> house once a week and Noah would see Sherry in the next town over 2

> times a month. Therapy was hard on him. It got to the point if he

> saw them the tears would start. He didn't roll over, or sit up on

> his own till he was about 7 months old. I think that was due to the

> casts and the dbb. He didn't walk till he was almost 3. He had

> surgery on his foot when he was almost 2. ( I think ) He didn't

wear

> the dbb as long as other kids I have read about and his afo's were

> takin from him 2 months after he got them.My husbands cancer was

> gettin worse and the doctors said there was no more they could do

> for him and my son's doctor moved out of state. So we packed up the

> house and moved to Kansas City ks. ( where the in-laws are ) I

found

> another doctor for Noah and already am not likeing him. He told me

> not to bother with getting his records from his other doctors, and

> he has only seen my son twice since we moved here. I am not sure if

> he dose the ponseti method yet. I am not even sure if his old

doctor

> did. I am confussed about all that. My son's foot is starting to

> turn in agin so bad that he is walking on his toenails. He is

always

> in pain and screams for hours if his foot get's bumped. I am

looking

> for a new doctor right now. He dose go see a therapist on the 19th.

> I will let ya'll know how that gose. So that is my story, and that

> is why I am here. I do not know anyone here in this big city and

> don't have the time to go out and make friends. My life for now is

> work and taking care of my husband and 2 sons. Like I said before

I

> am really confussed about the methods the doctor used on my son (

> from what I have read here ) and don't think it was the ponseti

> method, or maybe he did use it but did not follow through. I looked

> online for other cf people and found this group. I am so glad I

did.

> I hope I can learn more for my son and make some friends as well.

> All I want is for my son to run with the other boys, without any

> problems!!

>

> Kansas City mom

> Bri son Noah lcf.

>

> P.s sorry it took so long. Been pretty busy here.

>

[Guest guest]

To: & Grace 16 mos,

Talk about the tears flowing. I had them start as soon as I read your letter.

I really disn't think that there was going to be a response to my letter. Since

we have moved I have little or no contact with my friends back home and I feel

all alone here. I really have no one to talk to or even she a few tears. My dh

tries to do his best to support me and he has always put me and the boys first,

but his cancer has gotten worse and it's gettin hard for the simpleist things.

He is more tired now and with his breathing going down hill he dosen't talk as

much. I know he tries hard and that it hurts him when he can't talk long with me

or go to doctors with me. ( for noah) so to find even just one person on here

that is going through just alittle bit what I am going through is so wonderful.

I thank you and your darling Grace. I know that she is going to have a kind

heart like her mom.

Bri and 4 year old Noah

wrote:

Hello ,

Welcome to the group! Sounds like you have had a lot on you plate for

quite a while! Your post brought a tear (quite a few actually) to my

eye! You poor thing! In a new city with so many health issues to deal

with - really feeling for you!! So glad that you found your way

here!!!! We will do our best to give you some much needed support and

guide you to the right doctor for your Noah =)!

I know that there are a few parents here from the Kansas city area

that will be able to recommend a 'true' Ponseti doctor for him. Poor

little guy, hate to hear that he is having such pain! Something needs

to be done for him NOW and that fact that his current doctor has let

this go on like this is just plain Unacceptable!!!! And what is up

with this doctor not wanting to see Noah's medical records when he

has had 4 years of treatment and a surgery?????

I cannot begin to imagine the emotions that you are going through

with your dh's illness and then having Noah's foot relapsing on top

of it but I will say that as far as the foot issue is concerned, I

hope you are getting MAD...getting pissed off motivated me to

investigate another more serious health issue that my little girl has

and has made me a much better advocate for her. I say this because we

as women tend to internalize so much, we blame ourselves when we

should be putting the blame where the blame lies! And then getting on

with business!

When I read that all you wanted was for your son to be able to run

with the other boys... well it made me all blubbery, but it was also

a MAD/ANGERY blubbery - not a pretty site I am sure lol lol.

Really glad that you are here and I am sure that someone from your

area will reply and give you the name and number of a great doc in

your area that will be able to help Noah ASAP!

Give Noah a big hug from us!!

& Grace 16 mos

Unilateral right clubfoot FAB 13 hrs

Vancouver BC Canada

>

> Hi my name is Bronson. I have a 4 year old son who was born

> with left club foot.

> Let me start from the begging so that you can understand more about

> him. I went through premature labor with him many times and was

> flown to another city twice. From there on the 2 doctors had 2

> different due dates. By the time he was born (had to be induced due

> to preaclampsia) (sp) there were signs he had been in there to

long.

> ( over cooked ) is what they called it. The first day of his life

> the doctors started taking care of the more important problems that

> he had. On day 2 they slapped a cast on his foot and told me what

> doctor to see about his foot. I have never heard of clubfoot before

> my son was born. While dealing with all his other problems we would

> go to this new doctor and have him take change the cast, then he

> would send us on our way. On my son's 13th day of life we found out

> that my husband had Hodgkins lymphoma. So that was more doctors to

> get and more on my plate. After about 3 months of my son seeing

this

> doctor my mommy notions kicked in and told me that for 600 dollars

a

> visit my son's foot was not getting anybetter. I looked into

another

> doctor and found one 3 hours out of town. We soon had Noah's

records

> sent to him and he called us to get in right away. We found out

that

> his old doctor did not do anything ( like I thought ) but take our

> money. So we were back to square one. We had to start all over

> again. His new doctor said he worked under Dr.P before he moved

> here and that we were in good hands. Noah was also sent to a nerou

> doctor to check out his muscles. He had to see this doctor for a

> month. He also had to therapists he saw. Mike would come to the

> house once a week and Noah would see Sherry in the next town over 2

> times a month. Therapy was hard on him. It got to the point if he

> saw them the tears would start. He didn't roll over, or sit up on

> his own till he was about 7 months old. I think that was due to the

> casts and the dbb. He didn't walk till he was almost 3. He had

> surgery on his foot when he was almost 2. ( I think ) He didn't

wear

> the dbb as long as other kids I have read about and his afo's were

> takin from him 2 months after he got them.My husbands cancer was

> gettin worse and the doctors said there was no more they could do

> for him and my son's doctor moved out of state. So we packed up the

> house and moved to Kansas City ks. ( where the in-laws are ) I

found

> another doctor for Noah and already am not likeing him. He told me

> not to bother with getting his records from his other doctors, and

> he has only seen my son twice since we moved here. I am not sure if

> he dose the ponseti method yet. I am not even sure if his old

doctor

> did. I am confussed about all that. My son's foot is starting to

> turn in agin so bad that he is walking on his toenails. He is

always

> in pain and screams for hours if his foot get's bumped. I am

looking

> for a new doctor right now. He dose go see a therapist on the 19th.

> I will let ya'll know how that gose. So that is my story, and that

> is why I am here. I do not know anyone here in this big city and

> don't have the time to go out and make friends. My life for now is

> work and taking care of my husband and 2 sons. Like I said before

I

> am really confussed about the methods the doctor used on my son (

> from what I have read here ) and don't think it was the ponseti

> method, or maybe he did use it but did not follow through. I looked

> online for other cf people and found this group. I am so glad I

did.

> I hope I can learn more for my son and make some friends as well.

> All I want is for my son to run with the other boys, without any

> problems!!

>

> Kansas City mom

> Bri son Noah lcf.

>

> P.s sorry it took so long. Been pretty busy here.

>

[Guest guest]

Bri,

Welcome to the group. I'm sorry to hear your road has been so tough thus far.

It really seems Noah is in some pain, poor thing! From what you were describing

in his treatment, it didn't sound like the Ponseti method at all. Maybe his

first doctor tried a modified version of it. But since it didn't work at all,

it proves he really didn't know what he was doing.

Have you considered Dr. Dobbs in St. Louis? He is one of the best and St.

Louis isn't that far from you. I know it isn't next door, but for one of the

best it is worth the drive in my opinion. I think it is 6-8 hours. I could be

way off. Dr. Dobbs works closely with Dr. Ponseti and he also has great

experience with older children. Because your son is older, you really need a

doctor who has experience in older children. Also, you can email Dr. Ponseti

himself and send him some pictures of your sons foot to see what he has to say.

It couldn'thurt at this point.

Good luck with your search. I am not aware of a Ponseti doctor in Kansas

City, that is why I recommended Dr. Dobbs.

HTH. Please keep us posted. Hang in there. You will find the right doctor

for Noah and it will get better.

Bri wrote:

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

Thank you for the info, is there anyway I can get his phone number?

Shook wrote: Bri,

Welcome to the group. I'm sorry to hear your road has been so tough thus far.

It really seems Noah is in some pain, poor thing! From what you were describing

in his treatment, it didn't sound like the Ponseti method at all. Maybe his

first doctor tried a modified version of it. But since it didn't work at all,

it proves he really didn't know what he was doing.

Have you considered Dr. Dobbs in St. Louis? He is one of the best and St.

Louis isn't that far from you. I know it isn't next door, but for one of the

best it is worth the drive in my opinion. I think it is 6-8 hours. I could be

way off. Dr. Dobbs works closely with Dr. Ponseti and he also has great

experience with older children. Because your son is older, you really need a

doctor who has experience in older children. Also, you can email Dr. Ponseti

himself and send him some pictures of your sons foot to see what he has to say.

It couldn'thurt at this point.

Good luck with your search. I am not aware of a Ponseti doctor in Kansas

City, that is why I recommended Dr. Dobbs.

HTH. Please keep us posted. Hang in there. You will find the right doctor

for Noah and it will get better.

Bri wrote:

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

Bri.

Have you been to the official Ponseti site? I will leave you the url below.

Dr. Dobbs practices at Shriners and Childrens hospitals in St. Louis. The

number on the site is . I'm not sure which location that number is.

Here is the Ponseti site:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html

Good luck.

Bronson wrote:

Thank you for the info, is there anyway I can get his phone number?

Shook wrote: Bri,

Welcome to the group. I'm sorry to hear your road has been so tough thus far.

It really seems Noah is in some pain, poor thing! From what you were describing

in his treatment, it didn't sound like the Ponseti method at all. Maybe his

first doctor tried a modified version of it. But since it didn't work at all,

it proves he really didn't know what he was doing.

Have you considered Dr. Dobbs in St. Louis? He is one of the best and St.

Louis isn't that far from you. I know it isn't next door, but for one of the

best it is worth the drive in my opinion. I think it is 6-8 hours. I could be

way off. Dr. Dobbs works closely with Dr. Ponseti and he also has great

experience with older children. Because your son is older, you really need a

doctor who has experience in older children. Also, you can email Dr. Ponseti

himself and send him some pictures of your sons foot to see what he has to say.

It couldn'thurt at this point.

Good luck with your search. I am not aware of a Ponseti doctor in Kansas

City, that is why I recommended Dr. Dobbs.

HTH. Please keep us posted. Hang in there. You will find the right doctor

for Noah and it will get better.

Bri wrote:

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

thank you again. I did not have that site, I was pulling my hair out tryin to

find a good doctor from online. lol thank you!!

Shook wrote: Bri.

Have you been to the official Ponseti site? I will leave you the url below.

Dr. Dobbs practices at Shriners and Childrens hospitals in St. Louis. The

number on the site is . I'm not sure which location that number is.

Here is the Ponseti site:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html

Good luck.

Bronson wrote:

Thank you for the info, is there anyway I can get his phone number?

Shook wrote: Bri,

Welcome to the group. I'm sorry to hear your road has been so tough thus far.

It really seems Noah is in some pain, poor thing! From what you were describing

in his treatment, it didn't sound like the Ponseti method at all. Maybe his

first doctor tried a modified version of it. But since it didn't work at all,

it proves he really didn't know what he was doing.

Have you considered Dr. Dobbs in St. Louis? He is one of the best and St.

Louis isn't that far from you. I know it isn't next door, but for one of the

best it is worth the drive in my opinion. I think it is 6-8 hours. I could be

way off. Dr. Dobbs works closely with Dr. Ponseti and he also has great

experience with older children. Because your son is older, you really need a

doctor who has experience in older children. Also, you can email Dr. Ponseti

himself and send him some pictures of your sons foot to see what he has to say.

It couldn'thurt at this point.

Good luck with your search. I am not aware of a Ponseti doctor in Kansas

City, that is why I recommended Dr. Dobbs.

HTH. Please keep us posted. Hang in there. You will find the right doctor

for Noah and it will get better.

Bri wrote:

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

Geeze Girl, you seriously need a group-hug. I'm so sorry to hear all that is

inflicting your family right now.

If no one said it already, I'd be in touch with either Ponseti or Dobbs. Dobbs

works at a Shriner's and would be free for you to see. The child obviously

needs experienced help to remidy his situation and the doc you have there sounds

like a real oaf.

God bless you now,

shawnee

About me and the family

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

Good news here. I just got off the phone with Dr.dobbs office and they are

sending me papers to get started. They said he should beable to see him and I

DON'T HAVE TO PAY A CENT!!! THIS means so much to us. With all the doctor bills

we have to pay and all the medications this is going to be a real break through

for us. Some angel is watching over us. I want to thank all that has helped me

out here. There are careing people out there. Thanks so much

bri

number23 wrote:

Geeze Girl, you seriously need a group-hug. I'm so sorry to hear all that is

inflicting your family right now.

If no one said it already, I'd be in touch with either Ponseti or Dobbs. Dobbs

works at a Shriner's and would be free for you to see. The child obviously

needs experienced help to remidy his situation and the doc you have there sounds

like a real oaf.

God bless you now,

shawnee

About me and the family

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

That is SOOO great!!! Oh what a relief this must be for you!!! Now if

transportation is a problem I think Shriners can help with that too and they

have a house you can stay at if necessary! I'm anxious to hear more from you

about this, I'm thinking of going there in March when my next baby is born.

s.

About me and the family

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.

[Guest guest]

Hi Bri, wow, you must be one strong woman, although I imagine it

doesn't always feel that way. You get big points in my book for

following you mommy instincts about your son's feet in the midst of

everything else. I'm so glad to hear about the good news from Dr.

Dobbs!

I was wondering if you'd like to meet some people in KC? We have

friends who just moved there this fall. They have a boy just a

little older than yours as well as a younger daughter, and if you're

located anywhere near them, I think they'd probably love to meet

you. They are very nice people, classical musicians. I also have

some other contacts in KC too!

I know it can be lonely when you move (doing that right now) on top

of everything else you are facing. Please know our family will be

praying for you and your family. Thanks for reaching out--you

aren't alone!

Caroline

[Guest guest]

I want to thank everyone here for their hope and support. Yes I would love to

meet people that live in my city. Not sure if I know grown up talk anymore. lol.

I do warn you that I am just a hillbilly gal from the country .( do know some

classical ) Where are they from? I can't wait to meet them, but right now just

gettin through the holdays. Maybe after they have passed I can settle down

alittle then. Well I better go have been up for over 24 hours left and still

have more mail to read.

Bri

jubilantones wrote:

Hi Bri, wow, you must be one strong woman, although I imagine it

doesn't always feel that way. You get big points in my book for

following you mommy instincts about your son's feet in the midst of

everything else. I'm so glad to hear about the good news from Dr.

Dobbs!

I was wondering if you'd like to meet some people in KC? We have

friends who just moved there this fall. They have a boy just a

little older than yours as well as a younger daughter, and if you're

located anywhere near them, I think they'd probably love to meet

you. They are very nice people, classical musicians. I also have

some other contacts in KC too!

I know it can be lonely when you move (doing that right now) on top

of everything else you are facing. Please know our family will be

praying for you and your family. Thanks for reaching out--you

aren't alone!

Caroline

[Guest guest]

Hi Bri,

Sounds like you have an awful lot going on there, but it sounds like

you're on you way in the right direction going to Shriners. Please know our

prayers are with you and your family. This group is so full of love and

support, and it will help you a lot. Big hugs and keep us posted on how Noah's

foot is doing

- Michele

5/18/02 and Maddie 9/6/05 bcf dbb 23/7

Bri wrote:

Hi my name is Bronson. I have a 4 year old son who was born

with left club foot.

Let me start from the begging so that you can understand more about

him. I went through premature labor with him many times and was

flown to another city twice. From there on the 2 doctors had 2

different due dates. By the time he was born (had to be induced due

to preaclampsia) (sp) there were signs he had been in there to long.

( over cooked ) is what they called it. The first day of his life

the doctors started taking care of the more important problems that

he had. On day 2 they slapped a cast on his foot and told me what

doctor to see about his foot. I have never heard of clubfoot before

my son was born. While dealing with all his other problems we would

go to this new doctor and have him take change the cast, then he

would send us on our way. On my son's 13th day of life we found out

that my husband had Hodgkins lymphoma. So that was more doctors to

get and more on my plate. After about 3 months of my son seeing this

doctor my mommy notions kicked in and told me that for 600 dollars a

visit my son's foot was not getting anybetter. I looked into another

doctor and found one 3 hours out of town. We soon had Noah's records

sent to him and he called us to get in right away. We found out that

his old doctor did not do anything ( like I thought ) but take our

money. So we were back to square one. We had to start all over

again. His new doctor said he worked under Dr.P before he moved

here and that we were in good hands. Noah was also sent to a nerou

doctor to check out his muscles. He had to see this doctor for a

month. He also had to therapists he saw. Mike would come to the

house once a week and Noah would see Sherry in the next town over 2

times a month. Therapy was hard on him. It got to the point if he

saw them the tears would start. He didn't roll over, or sit up on

his own till he was about 7 months old. I think that was due to the

casts and the dbb. He didn't walk till he was almost 3. He had

surgery on his foot when he was almost 2. ( I think ) He didn't wear

the dbb as long as other kids I have read about and his afo's were

takin from him 2 months after he got them.My husbands cancer was

gettin worse and the doctors said there was no more they could do

for him and my son's doctor moved out of state. So we packed up the

house and moved to Kansas City ks. ( where the in-laws are ) I found

another doctor for Noah and already am not likeing him. He told me

not to bother with getting his records from his other doctors, and

he has only seen my son twice since we moved here. I am not sure if

he dose the ponseti method yet. I am not even sure if his old doctor

did. I am confussed about all that. My son's foot is starting to

turn in agin so bad that he is walking on his toenails. He is always

in pain and screams for hours if his foot get's bumped. I am looking

for a new doctor right now. He dose go see a therapist on the 19th.

I will let ya'll know how that gose. So that is my story, and that

is why I am here. I do not know anyone here in this big city and

don't have the time to go out and make friends. My life for now is

work and taking care of my husband and 2 sons. Like I said before I

am really confussed about the methods the doctor used on my son (

from what I have read here ) and don't think it was the ponseti

method, or maybe he did use it but did not follow through. I looked

online for other cf people and found this group. I am so glad I did.

I hope I can learn more for my son and make some friends as well.

All I want is for my son to run with the other boys, without any

problems!!

Kansas City mom

Bri son Noah lcf.

P.s sorry it took so long. Been pretty busy here.