Hope this question isn't too personal

[Guest guest]

I was just wondering if anyone is managing to still work?

I am so exhausted I find it hard to do simple things. If I push

myself, my leg starts to drag. I hate it and feel worthless not

working. Would anyone mind sharing?

[Guest guest]

Hi ,

I am working two days a week but it is a special

situation-- I help my daughter and son-in-law with their

trailer sales. I type the titles and file folders for them.

HOWEVER, I am allowed to come and go as I please --

if I do not feel like working, I don't go.........and if I get

too tired during the day, I just go home. I could NOT do

that anywhere else, so...........no, I could not hold a job

for anyone else. It gives me a little money to help with

meds and I am able to help them. I could never hold

down a full-time job. I also keep my youngest grandchild

two days a week when I feel like it. She goes to childcare

but we had such a time getting her, that I wanted to keep

her and hubby and I have really enjoyed it. She is a miracle

baby..... There again, I am able to keep her AS I FEEL

LIKE IT AND AM ABLE. I really hate to have to give up

my working years but I am slowly but surely adapting to it.

I am lucky to be alive with my history, and I know it. So I

do not push it. Hope this helps a little bit....:-)

Hugs,

Darlene

NS Co-Owner/Moderator

Hope this question isn't too personal

>I was just wondering if anyone is managing to still work?

> I am so exhausted I find it hard to do simple things. If I push

> myself, my leg starts to drag. I hate it and feel worthless not

> working. Would anyone mind sharing?

>

>

>

>

>

> ------------------------------------

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

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>

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[Guest guest]

I am no longer working full time however I am starting school from home. I

am going to take the course for Medical Transcriptionist / medical coding.

Then my DVR lady said we will get me a job from home on my own computer.

One that I can work when I am feeling well and rest when I need it. I am

however keeping myself busy with crafts and my grandkids.

I am moving into my own place in Oct. and am looking forward to that.

I hope this helps and gives you ideas.

Sorry DVR is Department of Vocation Rehabilitation.

Good Luck

Jackie

Hope this question isn't too personal

>I was just wondering if anyone is managing to still work?

> I am so exhausted I find it hard to do simple things. If I push

> myself, my leg starts to drag. I hate it and feel worthless not

> working. Would anyone mind sharing?

>

>

>

>

>

> ------------------------------------

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

>

> CHATROOM LINK: http://www.sarcbuddies.com -- Open all the time.....

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

I am still working only because I earn alot of annual and sick leave, I have 20 yrs with the State of Florida; I have FMLA, and they let me make up time. I have a job where I sit probably 90+% of the time, I have an elevator, handicapped parking, and a boss that understands illness (his wife went through a horrorific bout with cancer-she's better now). Somedays, I have a time with just trying to stay with it, I nod off in the middle of my typing, I have to keep exquisite notes because of short term memory problems, etc. The days I feel like dropping dead..... those days I go to my car on break sleep 15 minutes, go back at lunch sleep again, and so on and so forth. I thank God I'm still holding on, but I know the time will come in the not to distant future when I will have to give in and stop. They would have so

figured out a way to ditch me in a private sector job by now. Between multiple doctor's appts, and sickness; I wouldn't have stood a chance.

Connie (aka CBeau......I miss my daddy's nickname for me)

Subject: Re: Hope this question isn't too personalTo: Neurosarcoidosis Date: Friday, August 28, 2009, 10:24 AM

I am no longer working full time however I am starting school from home. I am going to take the course for Medical Transcriptionist / medical coding. Then my DVR lady said we will get me a job from home on my own computer. One that I can work when I am feeling well and rest when I need it. I am however keeping myself busy with crafts and my grandkids.I am moving into my own place in Oct. and am looking forward to that.I hope this helps and gives you ideas.Sorry DVR is Department of Vocation Rehabilitation.Good LuckJackie Hope this question isn't too personal>I was just wondering if anyone is managing to still work?> I am so exhausted I find it hard to do simple things. If I push> myself, my leg starts to drag. I hate it and feel worthless not> working. Would anyone mind sharing?>> >>>> ------------ --------- --------- ------>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>>> CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....>> Message Archives:-> http://groups.

yahoo.com/ group/Neurosarco idosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups. yahoo.com/ group/Neurosarco idosis/database>>

[Guest guest]

Hi to all. Happy Birthday to those I missed while we were away. We went out to the Poconos just to try to relax this past week. is not able to work any longer. For many years she was a florist and also ran the book keeping department for the shop. I know that her not being able to work has taken its toll in the depression department. She feels that she is not a contributing member to our household and that at times she is a burden to me. I have told her often that I do not view this as a burden. I view it as a crappy poker hand that we were dealt and we will play it out until it is done. I do know that her not being able to do what she always has loved and wanted to do has taken its toll on her. This illness has also robbed her of her hobby which was home projects. She use

to work with the circular saw and drills etc. Can't any more. Recently she told me to get rid of her tools......I can't do that at the moment. She wa also an avid sewer and can no longer do that as well. Many things that I take for granted she struggles with..yet onward we go. Hope this post finds everyone feeling as well as they can. mattSubject: Re: Hope this question isn't too personalTo: Neurosarcoidosis Date: Friday, August 28, 2009, 7:22 AM

Hi ,

I am working two days a week but it is a special

situation-- I help my daughter and son-in-law with their

trailer sales. I type the titles and file folders for them.

HOWEVER, I am allowed to come and go as I please --

if I do not feel like working, I don't go.........and if I get

too tired during the day, I just go home. I could NOT do

that anywhere else, so.......... .no, I could not hold a job

for anyone else. It gives me a little money to help with

meds and I am able to help them. I could never hold

down a full-time job. I also keep my youngest grandchild

two days a week when I feel like it. She goes to childcare

but we had such a time getting her, that I wanted to keep

her and hubby and I have really enjoyed it. She is a miracle

baby..... There again, I am able to keep her AS I FEEL

LIKE IT AND AM ABLE. I really hate to have to give up

my working years but I am slowly but surely adapting to it.

I am lucky to be alive with my history, and I know it. So I

do not push it. Hope this helps a little bit....:-)

Hugs,

Darlene

NS Co-Owner/Moderator

Hope this question isn't too personal

>I was just wondering if anyone is managing to still work?

> I am so exhausted I find it hard to do simple things. If I push

> myself, my leg starts to drag. I hate it and feel worthless not

> working. Would anyone mind sharing?

>

>

>

>

>

> ------------ --------- --------- ------

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

>

> CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....

>

> Message Archives:-

> http://groups. yahoo.com/ group/Neurosarco idosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups. yahoo.com/ group/Neurosarco idosis/database

>

>

[Guest guest]

Once again I am behind in emails trying to catch up.  I think I already said something about this, but then again did I??  I can't remember anything anymore.  I can no longer work as an RN, big loss, but I do a home based business,

In fact it's the largest growing company right now, and that's Kay. I'm not marketing it.  But for me it's my sanity for sure, I love it, I have agood customer based, so mostly spend my time filling orders, and either

myself or my son will deliver, depending on how I feel, my son is a big help, and my daughter helps me in the office, I don't know what I would do with my life without this.  Last year before I started Remicade, I could

barely keep up with my customers, again a lot of family help. but this year I am able to do more.  But I know the loss of not working having to leave a job I so loved and worked at for years.  Life, you just never know what tomorrow will bring, and I know

with us that is so very true. The best to all, I  hope you are having more good days then bad, I hope you smilemore then frown, I hope you enjoy whatever it is you can enjoy in life.  I know for many it's there Grand kids, I am not so lucky yet, and it looks like it will

be a few years away still.  Oh well. Blessings, Marla

 

I was just wondering if anyone is managing to still work?

I am so exhausted I find it hard to do simple things. If I push

myself, my leg starts to drag. I hate it and feel worthless not

working. Would anyone mind sharing?

[Guest guest]

Hey Marla

If I was to order from you would you deliver?????

I just thought I would ask. *wink*

Jackie

Re: Hope this question isn't too personal

Once again I am behind in emails trying to catch up. I think I already said something about this, but then again did I?? I can't remember anything anymore. I can no longer work as an RN, big loss, but I do a home based business,In fact it's the largest growing company right now, and that's Kay. I'm not marketing it. But for me it's my sanity for sure, I love it, I have agood customer based, so mostly spend my time filling orders, and either myself or my son will deliver, depending on how I feel, my son is a big help, and my daughter helps me in the office, I don't know what I would do with my life without this. Last year before I started Remicade, I could barely keep up with my customers, again a lot of family help. but this year I am able to do more. But I know the loss of not working having to leave a job I so loved and worked at for years. Life, you just never know what tomorrow will bring, and I know with us that is so very true. The best to all, I hope you are having more good days then bad, I hope you smilemore then frown, I hope you enjoy whatever it is you can enjoy in life. I know for many it's there Grand kids, I am not so lucky yet, and it looks like it will be a few years away still. Oh well. Blessings, Marla

I was just wondering if anyone is managing to still work?I am so exhausted I find it hard to do simple things. If I pushmyself, my leg starts to drag. I hate it and feel worthless notworking. Would anyone mind sharing?

[Guest guest]

Jackie, I would love to!  even treat you to a facial:)  Marla

 

Hey Marla

If I was to order from you would you deliver?????

I just thought I would ask.  *wink*

Jackie

Re: Hope this question isn't too personal

Once again I am behind in emails trying to catch up.  I think I already said something about this, but then again did I??  I can't remember anything anymore.  I can no longer work as an RN, big loss, but I do a home based business,In fact it's the largest growing company right now, and that's Kay. I'm not marketing it.  But for me it's my sanity for sure, I love it, I have agood customer based, so mostly spend my time filling orders, and either myself or my son will deliver, depending on how I feel, my son is a big help, and my daughter helps me in the office, I don't know what I would do with my life without this.  Last year before I started Remicade, I could barely keep up with my customers, again a lot of family help. but this year I am able to do more.  But I know the loss of not working having to leave a job I so loved and worked at for years.  Life, you just never know what tomorrow will bring, and I know with us that is so very true. The best to all, I  hope you are having more good days then bad, I hope you smilemore then frown, I hope you enjoy whatever it is you can enjoy in life.  I know for many it's there Grand kids, I am not so lucky yet, and it looks like it will be a few years away still.  Oh well. Blessings, Marla

 

I was just wondering if anyone is managing to still work?I am so exhausted I find it hard to do simple things. If I pushmyself, my leg starts to drag. I hate it and feel worthless notworking. Would anyone mind sharing?