Re: Why doesn't anyone know about the adjustable DBB?

[Guest guest]

Stacee,

You just had a long post and I'm only going to respond to part of

it. I just wanted to agree that it is scary to have the

responsibility for maintaining the correction on your shoulders!!

has been in the FAB for almost 8 months and I still worry and

analyze her feet daily. It is a huge responsibility. I also used to

wish they would just put her back in the casts. But then I would

remember how much she was growing in between casts and she really

needed to be out of them to help her circulation (her legs were

always purple by the time the casts were removed). Besides, those

baths are a great reason to have the casts off! Anyway, if you

follow the protocol you shouldn't have to worry. If

relapses, he can be casted again, and if you follow the bracing

protocol you cannot assume guilt for any relapse. Relapses happen

sometimes, and you can prevent it to some extent (actually a large

extent by bracing), but certainly not entirely. I'm sure there have

been cases where even with appropriate bracing, a foot relapses.

On a side note, has the red bar and I adjusted it for the

first time last week. She definitely will need a new one with the

next pair of shoes, but it sure did last a long time! Seems pretty

economical on that regard. Are you responsible for doing the

ordering of 's FAB, or are you just trying to offer

suggestions to the Ortho fitter? Just wondering. I thought I read

that you already have a FAB? Oh, and just in case someone else

doesn't chime in, the rotation is something like 35-45 degrees for

the non club foot and 70 degrees for the club foot.

Donna

> > >Everyplace I've looked (I figured I'd go ahead and fill our Rx

for

> > >the bar) doesn't know

> > >anything about an adjustable Dennis Brown Bar... Am I nuts and

it

> > >doesn't actually exist?

> >

> > lol, it exists.

> >

> > >Who makes/distributes the bar?

> >

> > Fillauer - Markell Shoe distributes it as well as some others

that I

> > don't know names of. It's red.

> >

> > >What sizes does it adjust from and to?

> >

> > Very small (lol, infant size - like 6 " ??) to about 14 " .

> >

> > > Do all the Markell

> > >shoes work with the bar (eg when is 3-5 years old, if

he's

> > >(presumably) still in the

> > >bar, will the required shoes to maintain correction still fit

the

> > >DBB?) One place said he'd

> > >found 2 adjustable bars-- one 7-9 " and one 9-15 " ,

> >

> > These aren't exactly adjustable - if they're the ones with the

three

> > holes in each end. They're adjustable, just not infinitely

> > so. Meaning you can go up one or two inch increments by moving

the

> > shoes to the outer holes but the bar itself is fixed. They make

> > three like this, small, medium and large. There is also a gold

> > adjustable bar that the shoe plates themselves are infinitely

> > adjustable with. You slide the shoes out towards the end of the

bar

> > to adjust it. The bar itself also is a fixed length so when the

> > shoes are at the narrower settings the bar sticks out beyond the

> > shoes on the sides.

> >

> > >but the bigger straight last shoes made

> > >by Markell only go up to roughly a size 4-5,

> >

> > They make the Markell shoes in sizes up to 8 now, and are likely

> > going to be adding more sizes as older children are needing

> > shoes. But yeah, size 8 is pretty big and should last through

the

> > 4th year easily.

> >

> > >which is much larger than the typical 3-5 yr old,

> > >so we'd have a bar that would fit the shoulder width, but no

shoes

> > >to fit because they'd need

> > >the plate that attaches to the shoe to attach to the bar.

Since

> > >I've never actually SEEN a DBB

> > >in person, I have absolutely no clue what he's talking about,

nor

> > >what to ask!!

> >

> > have them contact Markell Shoe and order directly. Also,

subscribe

> > to the CFPics list and look in the photo library. There you

will

> > find pictures of the various different FAB bars and shoes.

> >

> > >ANY information would be GREATLY appreciated and helpful. I'm

> > >supposed to go to a shoe

> > >store specializing in Markells w/ the DBB on Friday to get this

> > >rolling before the year end

> > >(insurance benefit for the bar!!) so I'd like to go in fully

informed!

> >

> > If you still need help contact Markell Shoe directly

> > www.markellshoe.com and have them give you part numbers to take

with

> > you on Friday. It really should be easier for these orthotists

to

> > find these. Sounds like they're looking in a very old catalog

or

> > something because the website clearly states this information.

On

> > the Markell website, there's a .PDF about the 1644 shoes (called

> > Ponseti in the title) with a sizing chart that is printable

(make

> > sure it's set at 100% when you print it in Adobe). It also

shows and

> > lists the various bars available. The Fillauer bar is what

you're

> > looking for though as it's the easiest to adjust. HOWEVER... I

> > suggest that you start with the gold bar (either the adjustable

or

> > one of the fixed bars in 6 or 8 " depending on child's shoulders)

> > because it's very easy to take the shoes off this bar and it

really

> > helps when you're learning to put the shoes on to have them

> > completely removed from the bar. The Fillauer bar is nearly

> > impossible to do this with (unless you've got 5 hands) if you

remove

> > the shoes themselves however you can take it apart at the clamps

to

> > achieve the same thing. It's a little more difficult and could

wear

> > out the clamps prematurely but that's a small price to pay for

ease

> > of applying the shoes properly. I can't suggest more that

parents

> > new to the FAB remove the shoes to put them on. It really could

save

> > lots of problems. Eventually you won't need to do this of

> > course. We stopped taking the shoes off at about 5mo's old and

> > haven't since.

> >

> > Kori

> >

> >

> >

> > >Thanks

> > >Stacee

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Stacee,

Forgot to say, I'm glad to have another emotional nutty mom posting

here! I thought I was the only one! Working saddle soap into shoes

early? Never heard of that, makes sense, but I'm sure it ranks

pretty high on the nutty scale!!! But then, aren't nuts the best

part of some trees???!!!

Donna

mom to (13), (6), Jakob (4), and (almost 14

months, bilateral clubfeet, FAB 12/7)

> > >Everyplace I've looked (I figured I'd go ahead and fill our Rx

for

> > >the bar) doesn't know

> > >anything about an adjustable Dennis Brown Bar... Am I nuts and

it

> > >doesn't actually exist?

> >

> > lol, it exists.

> >

> > >Who makes/distributes the bar?

> >

> > Fillauer - Markell Shoe distributes it as well as some others

that I

> > don't know names of. It's red.

> >

> > >What sizes does it adjust from and to?

> >

> > Very small (lol, infant size - like 6 " ??) to about 14 " .

> >

> > > Do all the Markell

> > >shoes work with the bar (eg when is 3-5 years old, if

he's

> > >(presumably) still in the

> > >bar, will the required shoes to maintain correction still fit

the

> > >DBB?) One place said he'd

> > >found 2 adjustable bars-- one 7-9 " and one 9-15 " ,

> >

> > These aren't exactly adjustable - if they're the ones with the

three

> > holes in each end. They're adjustable, just not infinitely

> > so. Meaning you can go up one or two inch increments by moving

the

> > shoes to the outer holes but the bar itself is fixed. They make

> > three like this, small, medium and large. There is also a gold

> > adjustable bar that the shoe plates themselves are infinitely

> > adjustable with. You slide the shoes out towards the end of the

bar

> > to adjust it. The bar itself also is a fixed length so when the

> > shoes are at the narrower settings the bar sticks out beyond the

> > shoes on the sides.

> >

> > >but the bigger straight last shoes made

> > >by Markell only go up to roughly a size 4-5,

> >

> > They make the Markell shoes in sizes up to 8 now, and are likely

> > going to be adding more sizes as older children are needing

> > shoes. But yeah, size 8 is pretty big and should last through

the

> > 4th year easily.

> >

> > >which is much larger than the typical 3-5 yr old,

> > >so we'd have a bar that would fit the shoulder width, but no

shoes

> > >to fit because they'd need

> > >the plate that attaches to the shoe to attach to the bar.

Since

> > >I've never actually SEEN a DBB

> > >in person, I have absolutely no clue what he's talking about,

nor

> > >what to ask!!

> >

> > have them contact Markell Shoe and order directly. Also,

subscribe

> > to the CFPics list and look in the photo library. There you

will

> > find pictures of the various different FAB bars and shoes.

> >

> > >ANY information would be GREATLY appreciated and helpful. I'm

> > >supposed to go to a shoe

> > >store specializing in Markells w/ the DBB on Friday to get this

> > >rolling before the year end

> > >(insurance benefit for the bar!!) so I'd like to go in fully

informed!

> >

> > If you still need help contact Markell Shoe directly

> > www.markellshoe.com and have them give you part numbers to take

with

> > you on Friday. It really should be easier for these orthotists

to

> > find these. Sounds like they're looking in a very old catalog

or

> > something because the website clearly states this information.

On

> > the Markell website, there's a .PDF about the 1644 shoes (called

> > Ponseti in the title) with a sizing chart that is printable

(make

> > sure it's set at 100% when you print it in Adobe). It also

shows and

> > lists the various bars available. The Fillauer bar is what

you're

> > looking for though as it's the easiest to adjust. HOWEVER... I

> > suggest that you start with the gold bar (either the adjustable

or

> > one of the fixed bars in 6 or 8 " depending on child's shoulders)

> > because it's very easy to take the shoes off this bar and it

really

> > helps when you're learning to put the shoes on to have them

> > completely removed from the bar. The Fillauer bar is nearly

> > impossible to do this with (unless you've got 5 hands) if you

remove

> > the shoes themselves however you can take it apart at the clamps

to

> > achieve the same thing. It's a little more difficult and could

wear

> > out the clamps prematurely but that's a small price to pay for

ease

> > of applying the shoes properly. I can't suggest more that

parents

> > new to the FAB remove the shoes to put them on. It really could

save

> > lots of problems. Eventually you won't need to do this of

> > course. We stopped taking the shoes off at about 5mo's old and

> > haven't since.

> >

> > Kori

> >

> >

> >

> > >Thanks

> > >Stacee

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks, and I agree about the best part of the tree comment!! :-)

> > > >Everyplace I've looked (I figured I'd go ahead and fill our Rx

> for

> > > >the bar) doesn't know

> > > >anything about an adjustable Dennis Brown Bar... Am I nuts and

> it

> > > >doesn't actually exist?

> > >

> > > lol, it exists.

> > >

> > > >Who makes/distributes the bar?

> > >

> > > Fillauer - Markell Shoe distributes it as well as some others

> that I

> > > don't know names of. It's red.

> > >

> > > >What sizes does it adjust from and to?

> > >

> > > Very small (lol, infant size - like 6 " ??) to about 14 " .

> > >

> > > > Do all the Markell

> > > >shoes work with the bar (eg when is 3-5 years old, if

> he's

> > > >(presumably) still in the

> > > >bar, will the required shoes to maintain correction still fit

> the

> > > >DBB?) One place said he'd

> > > >found 2 adjustable bars-- one 7-9 " and one 9-15 " ,

> > >

> > > These aren't exactly adjustable - if they're the ones with the

> three

> > > holes in each end. They're adjustable, just not infinitely

> > > so. Meaning you can go up one or two inch increments by moving

> the

> > > shoes to the outer holes but the bar itself is fixed. They make

> > > three like this, small, medium and large. There is also a gold

> > > adjustable bar that the shoe plates themselves are infinitely

> > > adjustable with. You slide the shoes out towards the end of the

> bar

> > > to adjust it. The bar itself also is a fixed length so when the

> > > shoes are at the narrower settings the bar sticks out beyond the

> > > shoes on the sides.

> > >

> > > >but the bigger straight last shoes made

> > > >by Markell only go up to roughly a size 4-5,

> > >

> > > They make the Markell shoes in sizes up to 8 now, and are likely

> > > going to be adding more sizes as older children are needing

> > > shoes. But yeah, size 8 is pretty big and should last through

> the

> > > 4th year easily.

> > >

> > > >which is much larger than the typical 3-5 yr old,

> > > >so we'd have a bar that would fit the shoulder width, but no

> shoes

> > > >to fit because they'd need

> > > >the plate that attaches to the shoe to attach to the bar.

> Since

> > > >I've never actually SEEN a DBB

> > > >in person, I have absolutely no clue what he's talking about,

> nor

> > > >what to ask!!

> > >

> > > have them contact Markell Shoe and order directly. Also,

> subscribe

> > > to the CFPics list and look in the photo library. There you

> will

> > > find pictures of the various different FAB bars and shoes.

> > >

> > > >ANY information would be GREATLY appreciated and helpful. I'm

> > > >supposed to go to a shoe

> > > >store specializing in Markells w/ the DBB on Friday to get this

> > > >rolling before the year end

> > > >(insurance benefit for the bar!!) so I'd like to go in fully

> informed!

> > >

> > > If you still need help contact Markell Shoe directly

> > > www.markellshoe.com and have them give you part numbers to take

> with

> > > you on Friday. It really should be easier for these orthotists

> to

> > > find these. Sounds like they're looking in a very old catalog

> or

> > > something because the website clearly states this information.

> On

> > > the Markell website, there's a .PDF about the 1644 shoes (called

> > > Ponseti in the title) with a sizing chart that is printable

> (make

> > > sure it's set at 100% when you print it in Adobe). It also

> shows and

> > > lists the various bars available. The Fillauer bar is what

> you're

> > > looking for though as it's the easiest to adjust. HOWEVER... I

> > > suggest that you start with the gold bar (either the adjustable

> or

> > > one of the fixed bars in 6 or 8 " depending on child's shoulders)

> > > because it's very easy to take the shoes off this bar and it

> really

> > > helps when you're learning to put the shoes on to have them

> > > completely removed from the bar. The Fillauer bar is nearly

> > > impossible to do this with (unless you've got 5 hands) if you

> remove

> > > the shoes themselves however you can take it apart at the clamps

> to

> > > achieve the same thing. It's a little more difficult and could

> wear

> > > out the clamps prematurely but that's a small price to pay for

> ease

> > > of applying the shoes properly. I can't suggest more that

> parents

> > > new to the FAB remove the shoes to put them on. It really could

> save

> > > lots of problems. Eventually you won't need to do this of

> > > course. We stopped taking the shoes off at about 5mo's old and

> > > haven't since.

> > >

> > > Kori

> > >

> > >

> > >

> > > >Thanks

> > > >Stacee

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Donna,

Thanks for the reply. We just received a brace from Dr P yesterday, but it's

unlike any I've

seen so far. It's a pair of suede-ish leather shoes with what appears to be

fiberglass

reinforcement around them attached to a metal bar.

I posted another message about all my questions, for which I was attacked, so I

may never

get my answers.... The setup we have now appears that both feet are rotated to

within 10

degrees of each other, which would lead me and my not-doctor-brain to think that

the

setup was originally intended for a bilateral clubfoot patient.

I have an Rx from our previous doctor that I was going to fill for the Markells

and the bar,

and around here no place stocks them, so we're sent to a Stride Rite store to be

fitted and

order them. They order the stuff and set up the bar/shoes according to what the

doc

orders, but they aren't orthotists.

Anyway, thanks for your reply!!

Stacee

> > > >Everyplace I've looked (I figured I'd go ahead and fill our Rx

> for

> > > >the bar) doesn't know

> > > >anything about an adjustable Dennis Brown Bar... Am I nuts and

> it

> > > >doesn't actually exist?

> > >

> > > lol, it exists.

> > >

> > > >Who makes/distributes the bar?

> > >

> > > Fillauer - Markell Shoe distributes it as well as some others

> that I

> > > don't know names of. It's red.

> > >

> > > >What sizes does it adjust from and to?

> > >

> > > Very small (lol, infant size - like 6 " ??) to about 14 " .

> > >

> > > > Do all the Markell

> > > >shoes work with the bar (eg when is 3-5 years old, if

> he's

> > > >(presumably) still in the

> > > >bar, will the required shoes to maintain correction still fit

> the

> > > >DBB?) One place said he'd

> > > >found 2 adjustable bars-- one 7-9 " and one 9-15 " ,

> > >

> > > These aren't exactly adjustable - if they're the ones with the

> three

> > > holes in each end. They're adjustable, just not infinitely

> > > so. Meaning you can go up one or two inch increments by moving

> the

> > > shoes to the outer holes but the bar itself is fixed. They make

> > > three like this, small, medium and large. There is also a gold

> > > adjustable bar that the shoe plates themselves are infinitely

> > > adjustable with. You slide the shoes out towards the end of the

> bar

> > > to adjust it. The bar itself also is a fixed length so when the

> > > shoes are at the narrower settings the bar sticks out beyond the

> > > shoes on the sides.

> > >

> > > >but the bigger straight last shoes made

> > > >by Markell only go up to roughly a size 4-5,

> > >

> > > They make the Markell shoes in sizes up to 8 now, and are likely

> > > going to be adding more sizes as older children are needing

> > > shoes. But yeah, size 8 is pretty big and should last through

> the

> > > 4th year easily.

> > >

> > > >which is much larger than the typical 3-5 yr old,

> > > >so we'd have a bar that would fit the shoulder width, but no

> shoes

> > > >to fit because they'd need

> > > >the plate that attaches to the shoe to attach to the bar.

> Since

> > > >I've never actually SEEN a DBB

> > > >in person, I have absolutely no clue what he's talking about,

> nor

> > > >what to ask!!

> > >

> > > have them contact Markell Shoe and order directly. Also,

> subscribe

> > > to the CFPics list and look in the photo library. There you

> will

> > > find pictures of the various different FAB bars and shoes.

> > >

> > > >ANY information would be GREATLY appreciated and helpful. I'm

> > > >supposed to go to a shoe

> > > >store specializing in Markells w/ the DBB on Friday to get this

> > > >rolling before the year end

> > > >(insurance benefit for the bar!!) so I'd like to go in fully

> informed!

> > >

> > > If you still need help contact Markell Shoe directly

> > > www.markellshoe.com and have them give you part numbers to take

> with

> > > you on Friday. It really should be easier for these orthotists

> to

> > > find these. Sounds like they're looking in a very old catalog

> or

> > > something because the website clearly states this information.

> On

> > > the Markell website, there's a .PDF about the 1644 shoes (called

> > > Ponseti in the title) with a sizing chart that is printable

> (make

> > > sure it's set at 100% when you print it in Adobe). It also

> shows and

> > > lists the various bars available. The Fillauer bar is what

> you're

> > > looking for though as it's the easiest to adjust. HOWEVER... I

> > > suggest that you start with the gold bar (either the adjustable

> or

> > > one of the fixed bars in 6 or 8 " depending on child's shoulders)

> > > because it's very easy to take the shoes off this bar and it

> really

> > > helps when you're learning to put the shoes on to have them

> > > completely removed from the bar. The Fillauer bar is nearly

> > > impossible to do this with (unless you've got 5 hands) if you

> remove

> > > the shoes themselves however you can take it apart at the clamps

> to

> > > achieve the same thing. It's a little more difficult and could

> wear

> > > out the clamps prematurely but that's a small price to pay for

> ease

> > > of applying the shoes properly. I can't suggest more that

> parents

> > > new to the FAB remove the shoes to put them on. It really could

> save

> > > lots of problems. Eventually you won't need to do this of

> > > course. We stopped taking the shoes off at about 5mo's old and

> > > haven't since.

> > >

> > > Kori

> > >

> > >

> > >

> > > >Thanks

> > > >Stacee

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >