Re: Re: Appointments with Neuro/Opthal

[Guest guest]

I take 2,500 mg of Cellcept daily. Ask you Dr., but mine won't let me take the flu shots, and I have to wear gloves and (am supposed to wear) a mask in public. I wear the gloves because of the horrible pain in my fingers, but a mask....well I get stared at enough in public! I carry wipes with me, tho'. Good luck with the cellcept. It is one of the better drugs I have had to take as far as side-effects go. I hope it does well for you, too.

Keep the faith:-)

___melanie (shanniemel@...)

Subject: Re: Appointments with Neuro/OpthalTo: Neurosarcoidosis Date: Friday, October 9, 2009, 4:30 PM

Hi, I've been on Cellcept for a couple of years after developing a reaction to Imuran. The best I can say is that I am stable. I was able to wean my prednisone down a little but my docs seem to think I will never get rid of the prednisone.>> I had post diagnosis appointments with opthal and neuro and both seem to think this will be a life long thing for me. The suggestion is to start cellcept.> > I would love to hear anyone's experiences on cellcept and also has anyone reversed longterm damage. My left side is weak and numb on/off for about 6 years now.>