Re: Re: Short Term/Long Term Menory and Sarcoid

[Guest guest]

I am glad to hear I am not the only one who is having trouble with speaking. Sometimes I get so mad because I can't get the word out.

Jackie

Re: Short Term/Long Term Menory and SarcoidTo: Neurosarcoidosis Date: Saturday, October 10, 2009, 2:35 AM

It seems like some doctor visits are good and bad. Seems like some days they listen and other days they don't. My long term memory seem to be fairly intact, where as my short term memory is Swiss cheese. I am going to try to go back to work at the end of the month, but sort of not sure how my boss and co workers will look at me. I know I am not the same as before. How does one deal with that.

[Guest guest]

--- It's comforting to hear that I'm not alone with this speaking issue and it being related to NS, I was beginning to think I was developing something worse. I guess it's my methotrexate?

Rick

[Guest guest]

how did everyone's sarc start. mine, they found in my lungs with no symptoms. i am 32 and is this just the start?

Subject: Re: Short Term/Long Term Menory and SarcoidTo: Neurosarcoidosis Date: Sunday, October 11, 2009, 4:53 PM

Hi Guys,I too suffer from poor short term memory. Since I am an RN, I can't imagine what kind of harm I would do if I went back to work like this. I had to withdraw from school too- I was studying for my master's in nursing but wasn't able to handle the coursework due to memory problems (I graduated college before with a 3.95 gpa). The whole situation depresses me. I hope that they can get my meds under control- we have tried several combos that all have nasty side effects and yet do not seem to slow the progression. I have the sarc now in several sites- lungs, lymph nodes, neuro, joints, and heart. If anyone has any suggestions to help with the short term memory loss I would be willing to try almost anything! I will keep you all in my prayers!Dawn from NY> > > From: brianryan_99 <brianryan_99@ ...>> Subject: Re: Short Term/Long Term Menory and Sarcoid> To: Neurosarcoidosis@ yahoogroups. com> Date: Saturday, October 10, 2009, 2:35 AM> > > > > > > It seems like some doctor visits are good and bad. Seems like some days they listen and other days they don't. My long term memory seem to be fairly intact, where as my short term

memory is Swiss cheese. I am going to try to go back to work at the end of the month, but sort of not sure how my boss and co workers will look at me. I know I am not the same as before. How does one deal with that. > > >

[Guest guest]

Reading all the msgs about memory loss, job loss, etc., I can certainly commiserate. I am (was) a linguist. I was GF rated in 3 languages, and had a working knowledge (without the GF testing) in 2 others. What is really freaky: I can sometimes express myself in another language, but can't remember the words in English! Yep, that did in interpreting, and things I know I should know, I often can't. It's like waking up from a vivid dream, but being not quite able to remember what it was about....?

I should add that due to inflamation in my spinal cord, I suffered 2 small strokes. Maybe that is the primary cause? I continue to be totally bamboozled by this $#@$#! disease. I have found a lot of comfort in music. Maybe this would help as well.

Keep the faith.

your friend,

melanie

shanniemel@...

From: Terri <mosaicgirl1@ yahoo.com>Subject: Re: Short Term/Long Term Menory and SarcoidTo: Neurosarcoidosis@ yahoogroups. comDate: Saturday, October 17, 2009, 8:27 PM

Jackie,My newest thing is I forget to finish my sentence. My husband will lookat me and ask me if I realized that I didn't finish my sentence and bythat time I forget what I am talking about and give up. Does anyoneelse stutter like I do when they get tired?Terri G.> > >> > >> > > From: brianryan_99 <brianryan_99@ >> > > Subject: Re: Short Term/Long Term Menory andSarcoid> > > To: Neurosarcoidosis@

yahoogroups. com> > > Date: Saturday, October 10, 2009, 2:35 AM> > >> > >> > >> > >> > >> > >> > > It seems like some doctor visits are good and bad. Seems like somedays> > > they listen and other days they don't. My long term memory seem tobe> > > fairly intact, where as my short term memory is Swiss cheese. I amgoing> > > to try to go back to work at the end of the month, but sort of notsure> > > how my boss and co workers will look at me. I know I am not thesame as> > > before. How does one deal with that.> > >> > > > > >> >>>>>> ------------ --------- --------- ------>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis

Community>>> CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....>> Message Archives:-> http://groups. yahoo.com/ group/Neurosarco idosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups. yahoo.com/ group/Neurosarco idosis/database>>

[Guest guest]

Thanks We are willing to try whatever we can to help.Matt

From: Terri <mosaicgirl1@ yahoo.com>Subject: Re: Short Term/Long Term Menory and SarcoidTo: Neurosarcoidosis@ yahoogroups. comDate: Saturday, October 17, 2009, 8:27 PM

Jackie,My newest thing is I forget to finish my sentence. My husband will lookat me and ask me if I realized that I didn't finish my sentence and bythat time I forget what I am talking about and give up. Does anyoneelse stutter like I do when they get tired?Terri G.> > >> > >> > > From: brianryan_99 <brianryan_99@ >> > > Subject: Re: Short Term/Long Term Menory andSarcoid> > > To: Neurosarcoidosis@

yahoogroups. com> > > Date: Saturday, October 10, 2009, 2:35 AM> > >> > >> > >> > >> > >> > >> > > It seems like some doctor visits are good and bad. Seems like somedays> > > they listen and other days they don't. My long term memory seem tobe> > > fairly intact, where as my short term memory is Swiss cheese. I amgoing> > > to try to go back to work at the end of the month, but sort of notsure> > > how my boss and co workers will look at me. I know I am not thesame as> > > before. How does one deal with that.> > >> > > > > >> >>>>>> ------------ --------- --------- ------>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis

Community>>> CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....>> Message Archives:-> http://groups. yahoo.com/ group/Neurosarco idosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups. yahoo.com/ group/Neurosarco idosis/database>>