Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 It has been a long road for me. When I was young I was diagnosed with many different but Wong mental D/o I spent a lot of time in the hospitals for them. I know when I was a kid the doctors were guessing. As I got older the symptoms grew but were unexplained. Doctors were then leaning to the suto side of things then I stared with the seizures. It took an intense year of seizures and the very large brain lesions to finally come up with Neurosarcoidosis. The time that has passed I feel has hampered my life I feel different even different from the rest of those who suffer from this I was told I was apart of the 5% that get sarcoid apart of the 1% that get the neurosarcoidosis and .1% that only get neurosarcoid. I feel alone because of this no one can relate I'm in remission now but I know it will strike again worse than before it is how the history of time has always been. I just need to share this it has been wrapped up in me haunting me angering me, thanks for listening. Quote Link to comment Share on other sites More sharing options...
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