Questions about the GFCF Diet

[Guest guest]

Hello All,

I'm new to the list service and please forgive if there is a FAQ out there

that I don't know about. We just started our 4 year old son on a GFCF diet

and have a few questions. It is suspected that my son is somewhere in the

Autistic spectrum.

1) The first week of the diet saw remarkable changes in behavior and

communications skills. After the 7th day, some of the Autistic traits

returned. Is this normal and if so, how long does this last?

2) Are there complete success stories with the diet? If you have one, what

age was your child when you started the diet?

3) Has anyone sought the help of a Gastrointerologist (sp?)? If so, was a

PST deficiency test administered (Liver Detox test) and how did it help?

Also, have you used a secreaton enzyme as a method of treatment for your

child?

4) Do any of the moms have Rh- blood incompatibilities with their child? If

so, was the Emmunoglobulin shot administered during pregnancy or after

delivery?

5) Is anyone familiar with Dr. Sudhir Gupta's research on Emmunoglobulin

therapy for children with these kinds of digestive problems?

6) Are parents with kids on this diet finding it difficult to find doctors

that will take these dietary considerations seriously while treating their

children?

Thanks you in advance,

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[Guest guest]

Hi - see my answers below -

> 1) The first week of the diet saw remarkable changes in behavior and

> communications skills. After the 7th day, some of the Autistic

traits

> returned. Is this normal and if so, how long does this last?

You will see withdrawal and regression, it takes a while for the

gluten to get out of their systems and it can be a bumpy ride. This

is probably a good sign - he is detoxing

>

> 2) Are there complete success stories with the diet? If you have

one, what

> age was your child when you started the diet?

I have read several success stories, including full recovery (loss of

Autism label and related services) We are not there yet, but we have

come a really long way. I think the diet is a part of the puzzle and

we are making sure he gets the proper therapies too.

>

> 3) Has anyone sought the help of a Gastrointerologist (sp?)? If

so, was a

> PST deficiency test administered (Liver Detox test) and how did it

help?

> Also, have you used a secreaton enzyme as a method of treatment for

your

> child?

We haven't done either of these, but there are folks on the list who

have.

>

> 4) Do any of the moms have Rh- blood incompatibilities with their

child? If

> so, was the Emmunoglobulin shot administered during pregnancy or

after

> delivery?

I am Rh- and I got a Rhogam shot at 28 weeks and right after my son

was born. This shot had Thimerisol in it - (mercury) - it could be

part of the problem, but there are no scientific studies published

yet to prove this... yet...

>

> 5) Is anyone familiar with Dr. Sudhir Gupta's research on

Emmunoglobulin

> therapy for children with these kinds of digestive problems?

Dr. Gupta administers IVIG - intravenous immunglobulen (sp?) - I know

a parent who has tried this for their child and found extremely

helpful. We haven't gone this route due to logistics and also giving

our kid intravenous anything would be a challenge that we are just

too chicken to face - we haven't ruled it out, but we are doing quite

well for now.

>

> 6) Are parents with kids on this diet finding it difficult to find

doctors

> that will take these dietary considerations seriously while

treating their

> children?

Our pediatrician tested our son for allergies and found them, so

she " believes " in this diet. We did make the choice to postpone our

younger child's vaccinations, and our ped is not pleased with us, but

is tollerating us. Find out from folks in your area the doctors who

are sympathetic. Also, we decided to work with Dr. Jerry Kartzinel in

Florida, even though we live in California, because he and Dr.

Bradstreet seemed to be on the cutting edge of all of this type of

medical intervention. Both of them have autistic sons who they have

helped with medical intervention.

>

> Thanks you in advance,

You are welcome...

Hope that helps a bit.

Moira

mom to Vico (4 ASD) and Culzean (16 months)

[Guest guest]

Yes, the injection was given to me twice during the pregnancy, and one

after delivery.

Lolita

>4) Do any of the moms have Rh- blood incompatibilities with their child? If

>so, was the Emmunoglobulin shot administered during pregnancy or after

>delivery?