Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hey I am new here, I was trying to find a site like this with people who are going through what I am going through too. The first week was the worst with the cast for baby. I cried that whole week with her. She hated them on her and I had to rock her to sleep all the time. I barely ate or slept I Just wanted her to know mommy is here for you but with each new cast she has gotten ALOT better. This is her fith week now and she is starting to smile alot more which makes me so very happy cause now I know she is okay with them but man how I wish I could still go through it for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 It is so heartbreaking..you will find a lot of support here. Congratulations no your new baby girl. _____ From: nosurgery4clubfoot [mailto:nosurgery4clubfoot ] On Behalf Of mizladyflames Sent: Sunday, January 22, 2006 3:23 PM To: nosurgery4clubfoot Subject: New clubfoot mom Hey I am new here, I was trying to find a site like this with people who are going through what I am going through too. The first week was the worst with the cast for baby. I cried that whole week with her. She hated them on her and I had to rock her to sleep all the time. I barely ate or slept I Just wanted her to know mommy is here for you but with each new cast she has gotten ALOT better. This is her fith week now and she is starting to smile alot more which makes me so very happy cause now I know she is okay with them but man how I wish I could still go through it for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Welcome to our board! We're glad you're here. Congratulations on your new baby girl! I'm sorry that she had a rough time adjusting to the casts. Do you think she was just annoyed, or were they hurting her at all? Do you think the casts were applied properly (enough padding around the thigh area etc.)? How many more casts did your doctor tell you that she'd need? Is she making good progress? Do you mind telling us what region you're in or what doctor is treating your baby? I hope you'll find some solace in the fact that your baby won't remember any of her early days of treatment, it's definitely a lot harder on us mommas. All of us would gladly undergo those procedures for our babies- and it stays in your memory forever. Soon enough though, her feet will be completely corrected and no one will be able to guess that there was ever anything wrong with them! My daughter is almost 6 and she's doing great! I hope you'll enjoy our board- we're here to answer your questions, listen to your concerns and complaints, and rejoice with you too! Best wishes, & (3-16-00, lcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Yeah, you know motherhood is going to be hard enough with sleep deprivation, and other childhood illnesses, but then something like this comes along and you can't do anything but stand by and feel helpless. Sounds like you are a fantastic mommy who is doing what it takes, though! Tell us more about you/baby! mizladyflames wrote: Hey I am new here, I was trying to find a site like this with people who are going through what I am going through too. The first week was the worst with the cast for baby. I cried that whole week with her. She hated them on her and I had to rock her to sleep all the time. I barely ate or slept I Just wanted her to know mommy is here for you but with each new cast she has gotten ALOT better. This is her fith week now and she is starting to smile alot more which makes me so very happy cause now I know she is okay with them but man how I wish I could still go through it for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hello, I'm so glad you found your way here. Of course you are not alone although it can feel that way in the beginning. But! Now you are in the company of several hundred other club foot parents! Oh boy! Would you mind telling us what doctor you are seeing? How many more casts does the doc believe she will need? What about performing a tenotomy? Has he, will he? Has he discussed those details with you? Does he/she prescribe the DBB/FAB brace (boots with bar) after casting? I ask these questions because hearing your baby cries quite a bit concerns me a little bit that perhaps her casting is not going quite as well as it could be. And with improper casting she could be in for a long haul of inferior treatment followed later by attempts to undo that damage. sorry, not to freak you out but we just try to help other new mommies catch this stuff early before it becomes a bad issue for the baby. I always urge new parents here to take the time to look in to the site's files, links and photo sections for further information - you'll find things you didn't know, questions you never thought to ask, answers to things that might be tickling your brain but seemed silly ... and lots of great photos showing before-after for comfort and resources to you. There is also a document of questions new parents should be asking their doctor regarding club foot treatment that will help guide you towards understanding if you child is really getting the best care, or not. another thing I urge new parents is that you don't put all your trust in to one doctor no matter how " nice " the doctor is, or how " highly recommended " he was unless you are quite certain he is highly trained in the Ponseti Method of casting & correction. Whatever we can do for you as veterans of the cf world, please ask! It's what we're here for. shawnee New clubfoot mom Hey I am new here, I was trying to find a site like this with people who are going through what I am going through too. The first week was the worst with the cast for baby. I cried that whole week with her. She hated them on her and I had to rock her to sleep all the time. I barely ate or slept I Just wanted her to know mommy is here for you but with each new cast she has gotten ALOT better. This is her fith week now and she is starting to smile alot more which makes me so very happy cause now I know she is okay with them but man how I wish I could still go through it for her. Quote Link to comment Share on other sites More sharing options...
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