CANDICE Just Joining

[Guest guest]

>>>>>>I am slowly doin the research-if >>>>>>anyone can make the long story

>>>>>>short, that would be great

>>>>>>Thanks,

,

Just so you know where I am coming from, I have a 7year old son who began

treatement with a doc who said he could fix club feet. He started at 4 days old.

We spent somewhere around 20 months with this guy... " Trusting " him because as

you said, he was the doctor, what did I know?

Whether was born with Atypical cf or the atypical (complex) condition was

created through bad casting, I'll never know but he did end up with a horrible

case. If you look at teh photo files of Hayden's feet, well, that is how

's looked before we found Dr. Ponseti.

didn't have quite the vulgar treatment history your a did, but it was

equally as ineffective to him, and I was equally as trusting as you.

There is really no way to make a long story short, so forgive me please.

Dr. Ponseti later did all he could but ended up having the ATTT surgery in

Iowa.

What I learned since then, through that experience and then again with my 2nd

son who also had bilateral cf - was that a lot of these doctors just cram the

foot, physically cram it in to shape then cast it.

Obviouly that is painful, but it's also non-productive, even counter-productive

as in and na's case. A baby's bones are so soft and agreeable that

they will take the shape they are casted in to, right or wrong.

What seperates the Ponseti Method " Serial Casting " procedure from typical serial

casting is the sequence of events.

Dr. Ponseti discovered about five decades ago that if the baby's bones are moved

in a certain sequence, A-B-C, then the foot would literally return to a normal,

non-clubbed condition. Also, since the bones are replaced in to what should be

their natural position, they are allowed to continue growing normally and

naturally in to adult hood.

Nothing artificial is done to them so there is nothing un-natural to come back

to haunt the child in later years.

It seems unreasonable to beleive it is really that simple when we look at how

hard some doctors work to re-create the baby's foot. It seems unreasonable it

could so simple, just that purely simple...and yet it is about 95% of the time.

Your daughter and my son and lots of other kids have gone through hell and

back to have their feet taken apart and put back together when all they really

needed was to have their bones put back in the right place through a gentle

process of manipulation that takes a few weeks rather than months (or years).

Quite literally, the Ponseti Method did from my 2nd son Everett in five weeks

what this other doctor couldn't do for in nearly two years.

We won't get in to the whole philosophy of it, unless you want to... I mean

those questions of " Why don't more doctors just figure out how simple it is? "

But as far as the philosophy of how well this method works, well, it works

because Ponseti's Method cooperates with the human anatomy rather than trying to

re-create the human anatomy. Um, what is that old saying...you can't push a

river, it flows on it's own.

Likewise, you can't push a clubbed foot in to a normal positon, but if you let

it flow and direct it with gentle guidence, it will flow on it's own back to

it's natural state.

I hope some of that helps explain the difference between Ponseti's serial

casting and the other guy's - and why his success rate is so high in

comparrison.

In the mean time, forgive yourself. You weren't wrong to trust a medical

professional; that so-called professional was wrong to not admit sooner that he

was beat on this one. And after that then start your own crusade to help save

other kids from this terrible treatment fate.

Bless you all,

shawnee

Just Joining

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> My daughter is 6 and a half months old. She

> has bilateral clubfoot. She has already had an Achilles Tendon

> lengthening on both feet. Her left foot is looking amazing but her

> right foot still needs a little work. However, it was a really long

> haul to get here. na's had treatment (casting Ponseti

> method) since she was 6 days old. nas doctor is researching

> the use of botox with these babies. So na had 3 injections

> while most babies only have one. In my opinion it did not work at

> all for na. na has also been placed under general

> anaesthetic 6 times-half of those times being mistakes the doctors

> made. After nas surgery(Achilles Tendon and they put pins to

> hold her in her casts)-Dec 1, 2005-they put her casts on too tight,

> so they had to put her back to sleep again to change her casts.

> After 3 weeks of the cast, they started to smell, so we had to go

> again-they put her to sleep and once again put her casts on too

> tight. So when we got home, I took her to another hospital, and

> they split her casts in the front to give a few millimetres leway.

> Anyways, they also did that once before her surgery as well. To add

> to this, they cut her feet both times they had to use the saw so she

> has 2 huge scars going all the way up her feet because of more

> mistakes.

> By the way, thanks everyone for letting me know about this site

> But now, na has custom made Ankle Foot Orthoses (AFO) and we

> are gonna start trying the Dennis Browne boots and bars at night.

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