Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 I just want to add that we had no trouble with footed pjs with the casts, even when was in the casts at 6 months and had a thicker cast. 6-19-05 lcf FAB 23/7 > > Hi! Congratulations on your pregnancy! Everything will be fine with your > baby's feet, and it is wonderful that you have found this site early! > Questions are good! That's what we are here for!Keep 'em coming! > > There are different methods of treatment, but the most successful is the > Ponseti Method, and this does not sound quite like the Ponseti Method. The > Ponseti Method consists of several (usually 6-8) long-legged casts. These > casts are from toe to upper thigh. After the casting, about 85% of babies > need what is called a tenetomy, but this isn't really like surgery. It is > usually done in the office under local anethesia. There is a small prick > with an instrument (like a thicker needle) that is inserted into the baby's > heel. IF the tentomy is necessary, the healing casts stay on for another 3 > weeks. After the healing casts come off, then the bracing begins. The > bracing time is usually 23 hours/ day for the first 1-3 months, and then you > are gradually reduced in hours, until eventually, your baby is wearing the > brace only 12-14 hours/day (mostly naps and bedtime) until 3-4 years old. > While this may sound daunting right now, it really isn't that big of a deal, > provided you have the right doctor and the right treatment. Many of us here > on this group found docs at first that weren't following Ponseti protocol > for different reasons. Eventually, most have switched to Ponseti certified > doctors, (or even traveled to Iowa to go to Ponseti himself.) after we > realized that things weren't going well for our kids (some were > uncomfortable, some weren't getting significantly better, etc.) with our > first (sometimes second and third) doctors. Again, interview other doctors > before you decide on one in particular. Where are you located? We can helo > you find certified Ponseti Certified Doctors in your area. If nothing else, > just go talk to one of them, and listen to what they have to say. You may > find that you would rather see that doc instead. It would be wonderful to > have a doctor that you are comfortable with before the baby comes! > > As far as clothes go, footed PJs are probably out of the question during the > casts. During the winter, bigger pants (like a size or two up) are good. A > Children's Place and Old Navy have a lot of those right now. If it is a > girl, you are covered with dresses! Bathing is one of those things that you > have to find the rythym, if you know what I mean. Your baby will take sponge > baths during the casting process. It sounds worse than it is, but think > about it...You wouldn't fill up your tub or even a baby tub and stick your > baby in it to splash around when they are newborn...It doesn't last forever, > just a couple of months. > > Skin care around the casts isn't usually an issue either. I think most of us > had that occasional tiny " diaper spilage " but once it happens, you realize > why it happened (you realize that the casts were tucked into the diaper > accidently or something), and you just remember to check how you put it on > the next time. Chafing chouldn't be a problem under a good doctor's care. > > Okay, now that I have bombarded you with all of this info, take a breath. > It's going to be great! Enjoy what's left of the pregnancy, and enjoy that > wonderful baby when he/she arrives. BTW, when are you due? > Let us know how things are going! > ( 2/1/05 bcf) > > > > > >Reply-To: nosurgery4clubfoot > >To: nosurgery4clubfoot > >Subject: Expecting Mom > >Date: Sat, 04 Feb 2006 22:07:16 -0000 > > > >I've had 2 ultrasounds that indicate my son's left foot is clubbed. > >My husband and I met with an orthapedist this week that explained > >treatment. > >6-8 weeks of casting > >surgery to cut his achilles tendon > >6-8 more weeks of casting > >then 3 months in a brace > >Is this a typical treatment?? > > > >Plus with the castings will he be able to wear normal baby pants? What > >about bathing? and skin care around the cast?? I have so many > >questions! > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 I also want to say that we had no problem whatsoever with footed sleep and plays or pj's. Our casts weren't all that thick until the 3-week cast after the tenotomy. Even then, we still fit into them fine. > > > > Hi! Congratulations on your pregnancy! Everything will be fine with > your > > baby's feet, and it is wonderful that you have found this site > early! > > Questions are good! That's what we are here for!Keep 'em coming! > > > > There are different methods of treatment, but the most successful > is the > > Ponseti Method, and this does not sound quite like the Ponseti > Method. The > > Ponseti Method consists of several (usually 6-8) long-legged casts. > These > > casts are from toe to upper thigh. After the casting, about 85% of > babies > > need what is called a tenetomy, but this isn't really like surgery. > It is > > usually done in the office under local anethesia. There is a small > prick > > with an instrument (like a thicker needle) that is inserted into > the baby's > > heel. IF the tentomy is necessary, the healing casts stay on for > another 3 > > weeks. After the healing casts come off, then the bracing begins. > The > > bracing time is usually 23 hours/ day for the first 1-3 months, and > then you > > are gradually reduced in hours, until eventually, your baby is > wearing the > > brace only 12-14 hours/day (mostly naps and bedtime) until 3-4 > years old. > > While this may sound daunting right now, it really isn't that big > of a deal, > > provided you have the right doctor and the right treatment. Many of > us here > > on this group found docs at first that weren't following Ponseti > protocol > > for different reasons. Eventually, most have switched to Ponseti > certified > > doctors, (or even traveled to Iowa to go to Ponseti himself.) after > we > > realized that things weren't going well for our kids (some were > > uncomfortable, some weren't getting significantly better, etc.) > with our > > first (sometimes second and third) doctors. Again, interview other > doctors > > before you decide on one in particular. Where are you located? We > can helo > > you find certified Ponseti Certified Doctors in your area. If > nothing else, > > just go talk to one of them, and listen to what they have to say. > You may > > find that you would rather see that doc instead. It would be > wonderful to > > have a doctor that you are comfortable with before the baby comes! > > > > As far as clothes go, footed PJs are probably out of the question > during the > > casts. During the winter, bigger pants (like a size or two up) are > good. A > > Children's Place and Old Navy have a lot of those right now. If it > is a > > girl, you are covered with dresses! Bathing is one of those things > that you > > have to find the rythym, if you know what I mean. Your baby will > take sponge > > baths during the casting process. It sounds worse than it is, but > think > > about it...You wouldn't fill up your tub or even a baby tub and > stick your > > baby in it to splash around when they are newborn...It doesn't last > forever, > > just a couple of months. > > > > Skin care around the casts isn't usually an issue either. I think > most of us > > had that occasional tiny " diaper spilage " but once it happens, you > realize > > why it happened (you realize that the casts were tucked into the > diaper > > accidently or something), and you just remember to check how you > put it on > > the next time. Chafing chouldn't be a problem under a good doctor's > care. > > > > Okay, now that I have bombarded you with all of this info, take a > breath. > > It's going to be great! Enjoy what's left of the pregnancy, and > enjoy that > > wonderful baby when he/she arrives. BTW, when are you due? > > Let us know how things are going! > > ( 2/1/05 bcf) > > > > > > >From: " mmg174 " <mmg174@> > > >Reply-To: nosurgery4clubfoot > > >To: nosurgery4clubfoot > > >Subject: Expecting Mom > > >Date: Sat, 04 Feb 2006 22:07:16 -0000 > > > > > >I've had 2 ultrasounds that indicate my son's left foot is clubbed. > > >My husband and I met with an orthapedist this week that explained > > >treatment. > > >6-8 weeks of casting > > >surgery to cut his achilles tendon > > >6-8 more weeks of casting > > >then 3 months in a brace > > >Is this a typical treatment?? > > > > > >Plus with the castings will he be able to wear normal baby pants? > What > > >about bathing? and skin care around the cast?? I have so many > > >questions! > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 , Stock up on outfits with the snaps, and outfits with the feet have to be big enough at the bottom to accommodate the casts. Anything 3-6 months should not have the feet, as you will be in the FAB by then. We just cut the feet off on the outfits we had received prior to knowing about the club foot. We find we like old navy clothes because they are soft, have snaps in the crotch, and are relatively inexpensive. And the advice we received from this board about old navy socks for the FAB was true. We find they work the best. and Logan Expecting Mom Thank you so much for your responses. I'm due March 16 (only 5 weeks away!) Is there anything I should stalk up on now? is there a certain brand of diapers that work better? certain cremes? or a bath tub that works best with the casts? This is my first baby so I feel clueless as it is...and with the club foot I'm really anxious to start out right. I can't tell you all how much I appreciate the support and advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 , You shouldn't need anything different as far as diapers, cremes etc. You will probably be better off doing sponge baths during the casting phase. We're all moms here too, not just clubfoot moms so feel free to ask your general baby questions as well. We usually mark posts not related to CF with " OT " in the subject line. The one thing that I found really helpful during the casting phase was this tape that they gave me at the doctors office. It was a soft stretchy kind of cushy tape that you could wrap around the top of the cast and leg to keep diaper leaks from getting in or on the cast. It was waterproof and really saved me from many a mess. I can't remember the name of it but it is made by 3M and should be available at medical supply stores. HTH, > > Thank you so much for your responses. I'm due March 16 (only 5 weeks > away!) > Is there anything I should stalk up on now? is there a certain brand > of diapers that work better? certain cremes? or a bath tub that > works best with the casts? > This is my first baby so I feel clueless as it is...and with the club > foot I'm really anxious to start out right. > > I can't tell you all how much I appreciate the support and advice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi , Congratulations on your upcoming arrival! We have a 9-week old girl, Keira, that just graduation from casts into the shoes and bars last week. So far it is going well and the casting stage went by very quickly. As far as bathing your little one, we only did sponge baths in between casts though some people put a bag over the cast and give them a bath that way. For all of our kids we have used the Daphne Baby Bath seat and it has worked very well. This is a molded plastic " lounger " seat for bathing a baby that can't sit up yet. You have both hands free for washing and playing. It's fabulous if you're not confident about holding your newborn in the bath. You can use the seat in a baby bath or in an adult bath. Using it in the adult bath means you don't have to buy and store a baby bath plus it was very convenient to just use the normal bathtub. You can use it until the baby is very stable sitting up on their own. My husband always removed Keira's casts and he really liked this seat as he has two free hands to take the cast off with. I didn't really find that the casts make it necessary to use any particular diaper. Any variety that you want to try would be fine; the main thing is to find one that doesn't leak down the leg. Keira had a dirty diaper that leaked into one of her casts and it was pretty nasty trying to clean it out. I think the best thing we've found for both the casting and shoe stage are the sleepers that open up completely when you unsnap them. We have a couple from Old Navy and one from the Gap and they are by far the easiest to get off and on. They are great night or when you are going to be home and don't need to get them dressed in regular clothes. Anyway, hope you are feeling well! Halley Expecting Mom Thank you so much for your responses. I'm due March 16 (only 5 weeks away!) Is there anything I should stalk up on now? is there a certain brand of diapers that work better? certain cremes? or a bath tub that works best with the casts? This is my first baby so I feel clueless as it is...and with the club foot I'm really anxious to start out right. I can't tell you all how much I appreciate the support and advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi , Congratulations on your upcoming arrival! We have a 9-week old girl, Keira, that just graduation from casts into the shoes and bars last week. So far it is going well and the casting stage went by very quickly. As far as bathing your little one, we only did sponge baths in between casts though some people put a bag over the cast and give them a bath that way. For all of our kids we have used the Daphne Baby Bath seat and it has worked very well. This is a molded plastic " lounger " seat for bathing a baby that can't sit up yet. You have both hands free for washing and playing. It's fabulous if you're not confident about holding your newborn in the bath. You can use the seat in a baby bath or in an adult bath. Using it in the adult bath means you don't have to buy and store a baby bath plus it was very convenient to just use the normal bathtub. You can use it until the baby is very stable sitting up on their own. My husband always removed Keira's casts and he really liked this seat as he has two free hands to take the cast off with. I didn't really find that the casts make it necessary to use any particular diaper. Any variety that you want to try would be fine; the main thing is to find one that doesn't leak down the leg. Keira had a dirty diaper that leaked into one of her casts and it was pretty nasty trying to clean it out. I think the best thing we've found for both the casting and shoe stage are the sleepers that open up completely when you unsnap them. We have a couple from Old Navy and one from the Gap and they are by far the easiest to get off and on. They are great night or when you are going to be home and don't need to get them dressed in regular clothes. Anyway, hope you are feeling well! Halley Expecting Mom Thank you so much for your responses. I'm due March 16 (only 5 weeks away!) Is there anything I should stalk up on now? is there a certain brand of diapers that work better? certain cremes? or a bath tub that works best with the casts? This is my first baby so I feel clueless as it is...and with the club foot I'm really anxious to start out right. I can't tell you all how much I appreciate the support and advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 , Congrats on your first born. It is a very exciting time, so enjoy it! My best advice is to take a lot of pictures of the little feet before the casts go on. That is one thing I regret the most. I only have one or two pics of her clubfeet before the treatment process. Also, take the camera with you to your appointments and take pics of the feet between castings. You will definitely want those later especially when you are comparing his/her progress each week. Most importantly, enjoy your little one. The newborn stage goes so quickly, you won't believe it. Cherish each moment. You won't even remember your little one has clubfeet until you look at the casts. HTH. and , 3-2-04, bcf, s 14 hours mmg174 wrote: Thank you so much for your responses. I'm due March 16 (only 5 weeks away!) Is there anything I should stalk up on now? is there a certain brand of diapers that work better? certain cremes? or a bath tub that works best with the casts? This is my first baby so I feel clueless as it is...and with the club foot I'm really anxious to start out right. I can't tell you all how much I appreciate the support and advice. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.