Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 ee Here. I'm going to pipe in on this again. THE SHREVEPORT SHRINE CANNOT HELP CLUB FOOT CHILDREN WITH THE PONSETI METHOD. THE SHREVEPORT SHRINE CANNOT HELP CLUB FOOT CHILDREN WITH THE PONSETI METHOD. THE SHREVEPORT SHRINE CANNOT HELP CLUB FOOT CHILDREN WITH THE PONSETI METHOD. I have a 17 year old club foot nephew who was treated at the Shreveport Shrine who still wears braces and is grossly deformed after 17 years of their Clubfoot Treatment! He is in a wheel chair 90% of the time as he can hardly walk. Why would you even consider going where we all tell you there is no qualified medical help??? I was on the phone with the St. Louis Shrine people just yesterday. They are offering me the Wings of Hope flights - which are free. Call the St. Louis folks - Dr. Dobb's secretary can be a start, she can transfer you to a woman named SANDY at ex. 206. Sandy can hook you up with transportation and lodging in ST. LOUIS. Sandy told me a Shriner's Van from Oklahoma would want to take me to Shrevport. SHE SAID Shreveport is NOT where we need to go - but warned me they would try to push me there as it is closer. THAT IS NOT AN OPTION. I know Shreveport is not an option, I keep trying to tell you that - they CAN NOT AND DO NOT OFFER PONSETI TREATMENT (re, my crippled nephew) Why waste your time and money and energy on the wrong thing?????? You are trying to get away from wrong treatment, so why go seek wrong treatment from an other location even further from home than your current wrong treatment!?!?! Time is running out to get this kid fixed up - why use up more time going to the wrong place just cuz some guy driving a van told you to? Call Sandy, she can hook you up with the free air travel to ST. LOUIS where you CAN get highly qualfied and high quality care. You'll schedule a flight out there, Sandy can hook the whole thing up for you if you just get her on the phone, she is a lovely woman and dedicated to providing this service so PLEASE CALL HER! s. Re: second opinion OK, I'm not in that area, and I'm not the one who has to make the trip, but I took a quick look at Google Maps. Newcastle is about 7-1/2 hrs. from Shreveport, 8-1/2 from St. Louis, 11-1/2 from Iowa City. The care that you'll get has got to be worth the trip. Read some of the horror stories of people who didn't get things taken care of right. We were almost at surgery ourselves - many of the people on this board were with the wrong doctor before they got to a Ponseti doctor. It's not too late to get to the right doctor now, just get there. If Shreveport can't do it, you're wasting your time and will (I hope) end up in St. Louis in the end anyway rather than surgery. Might as well go now. - Seth (meir, lcf, 1/29/04) > > > > > > > > > > Hi everyone > > > > > > > > > > We are to go to ortho today. I haven't been putting the brace > > > > > on, they told me to put back on last Wed. but when I did he scream and > > > > > scream, so at church we finally took off making another red spot were > > > > > he had a sore the week before that was starting to heal over. I was > > > > > afraid it was going to make worse. Then he got sick with RSV on Wed. > > > > > night took him to Dr. on Thur., Friday and Monday for them to check > > > > > him, so I thought with him being sick was not a good idea to put > > > > > braces on because of him screaming when on. He just starting to feel > > > > > better. > > > > > > > > > > I still need to find out about the Shriners Van. I'm just waiting for > > > > > them to call me back with appointment time. They told me he only sees > > > > > patients on Monday. Hope it's soon. > > > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Larissa, It might not cost much up front, but it will cost more in the end when they don't do the correction right there either. Do not go to Louisiana! Let's find you a way to get to Dr. Dobbs. There are lots of special airlines who fly people for free when there is medical necessity. Here is the list: Resources: Airline Flights These organizations provide airline flights for patients that need to travel for medical reasons. Also note: One parent reports that if you contact the airlines for medical issues they will let you have the cheapest rate for the airfare, meaning even though you are leaving tomorrow, they will give you the same discount as though you did a 30 day advance ticket. Air Care Alliance http://www.aircareall.org/ " The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service. " Angel Flight http://www.angelflight.com/ Angel Flight is a non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks. Angel Flight is a member of Air Care Alliance, a group of 37 organizations providing similar services throughout the United States. These groups are coordinated through a toll-free service (NPATH) that helps individuals in need find assistance in their area. Cancer Air Flights http://www.gwccs.org/flights.html Lists a number of organizations that assist cancer survivors and their caregivers with transportation to and from treatments. Children's Flight of Hope http://www.childrensflightofhope.org/ Children's Flight of Hope provides free, private air transportation to and from medical facilities for children in need. " With our organization-owned aircraft and crew of experienced volunteer pilots, we transport children and their families to and from hospitals throughout the eastern United States. We seek to ensure that children in our service area (North Carolina) are not denied access to medical treatment at distant facilities due to either financial need or a medical condition that precludes travel via ground or commercial aircraft. " Corporate Angel Network 1-. http://www.corpangelnetwork.org/ Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements. One of many advantages is low risk of exposure to contagious illness because just a few people are on plane. Delta AirSky Wish at United Way Free flights, no financial requirements. Call 1- ext. 285, . Lifeline Pilots http://www.lifelinepilots.org/ LifeLine Pilots is a private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs. Mercy Medical Airlift http://www.mercymedical.org/ (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants. Miracle Flights for Kids http://www.miracleflights.com/ Transporting children to medical treatment since 1985. National Patient Air Travel HELPLINE http://www.patienttravel.org/ Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Call 1-. Once NPATH, now also known as www.patienttravel.org. Northwest Airlines, Kid Cares program http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml The Northwest Airlines KidCares medical travel program provides air travel to children age 18 and younger who are unable to receive treatment in their home area. Those with financial need have priority. 1-. TWA Operation Liftoff http://www.operationliftoff.com/ " Providing special trips to children who are facing life threatening illness. " Free flights, no financial requirements. Call . American Airlines, Advantage Miles for Kids in Need http://www.awishwithwings.org/AAKids.htm Helps those in financial need. 1-. Continental Careforce Bob Jack at 1-. Has a contract with Memorial Sloan Kettering Cancer Center for reduced or free airline tickets. Midwest Express Miracle Miles Fuerst at 1- One free flight, thereafter flights are discounted. No financial requirements. > > > > > > > > Hi everyone > > > > > > > > We are to go to ortho today. I haven't been putting the brace > > > > on, they told me to put back on last Wed. but when I did he scream and > > > > scream, so at church we finally took off making another red spot were > > > > he had a sore the week before that was starting to heal over. I was > > > > afraid it was going to make worse. Then he got sick with RSV on Wed. > > > > night took him to Dr. on Thur., Friday and Monday for them to check > > > > him, so I thought with him being sick was not a good idea to put > > > > braces on because of him screaming when on. He just starting to feel > > > > better. > > > > > > > > I still need to find out about the Shriners Van. I'm just waiting for > > > > them to call me back with appointment time. They told me he only sees > > > > patients on Monday. Hope it's soon. > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Yesterday Sandy in St. Louis told me about Wings of Hope. With in a half an hour, she was calling me back saying she already spoke to them and they would fly me if/when I needed. No cost. s. Re: second opinion Larissa, It might not cost much up front, but it will cost more in the end when they don't do the correction right there either. Do not go to Louisiana! Let's find you a way to get to Dr. Dobbs. There are lots of special airlines who fly people for free when there is medical necessity. Here is the list: Resources: Airline Flights These organizations provide airline flights for patients that need to travel for medical reasons. Also note: One parent reports that if you contact the airlines for medical issues they will let you have the cheapest rate for the airfare, meaning even though you are leaving tomorrow, they will give you the same discount as though you did a 30 day advance ticket. Air Care Alliance http://www.aircareall.org/ " The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service. " Angel Flight http://www.angelflight.com/ Angel Flight is a non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks. Angel Flight is a member of Air Care Alliance, a group of 37 organizations providing similar services throughout the United States. These groups are coordinated through a toll-free service (NPATH) that helps individuals in need find assistance in their area. Cancer Air Flights http://www.gwccs.org/flights.html Lists a number of organizations that assist cancer survivors and their caregivers with transportation to and from treatments. Children's Flight of Hope http://www.childrensflightofhope.org/ Children's Flight of Hope provides free, private air transportation to and from medical facilities for children in need. " With our organization-owned aircraft and crew of experienced volunteer pilots, we transport children and their families to and from hospitals throughout the eastern United States. We seek to ensure that children in our service area (North Carolina) are not denied access to medical treatment at distant facilities due to either financial need or a medical condition that precludes travel via ground or commercial aircraft. " Corporate Angel Network 1-. http://www.corpangelnetwork.org/ Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements. One of many advantages is low risk of exposure to contagious illness because just a few people are on plane. Delta AirSky Wish at United Way Free flights, no financial requirements. Call 1- ext. 285, . Lifeline Pilots http://www.lifelinepilots.org/ LifeLine Pilots is a private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs. Mercy Medical Airlift http://www.mercymedical.org/ (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants. Miracle Flights for Kids http://www.miracleflights.com/ Transporting children to medical treatment since 1985. National Patient Air Travel HELPLINE http://www.patienttravel.org/ Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Call 1-. Once NPATH, now also known as www.patienttravel.org. Northwest Airlines, Kid Cares program http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml The Northwest Airlines KidCares medical travel program provides air travel to children age 18 and younger who are unable to receive treatment in their home area. Those with financial need have priority. 1-. TWA Operation Liftoff http://www.operationliftoff.com/ " Providing special trips to children who are facing life threatening illness. " Free flights, no financial requirements. Call . American Airlines, Advantage Miles for Kids in Need http://www.awishwithwings.org/AAKids.htm Helps those in financial need. 1-. Continental Careforce Bob Jack at 1-. Has a contract with Memorial Sloan Kettering Cancer Center for reduced or free airline tickets. Midwest Express Miracle Miles Fuerst at 1- One free flight, thereafter flights are discounted. No financial requirements. > > > > > > > > Hi everyone > > > > > > > > We are to go to ortho today. I haven't been putting the brace > > > > on, they told me to put back on last Wed. but when I did he scream and > > > > scream, so at church we finally took off making another red spot were > > > > he had a sore the week before that was starting to heal over. I was > > > > afraid it was going to make worse. Then he got sick with RSV on Wed. > > > > night took him to Dr. on Thur., Friday and Monday for them to check > > > > him, so I thought with him being sick was not a good idea to put > > > > braces on because of him screaming when on. He just starting to feel > > > > better. > > > > > > > > I still need to find out about the Shriners Van. I'm just waiting for > > > > them to call me back with appointment time. They told me he only sees > > > > patients on Monday. Hope it's soon. > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Even if I did this how do I find someone to pick me up when I get there and the stay down there? Please let me know if I can go down for pretty much nothing I might go. Larissa and number23 wrote: Yesterday Sandy in St. Louis told me about Wings of Hope. With in a half an hour, she was calling me back saying she already spoke to them and they would fly me if/when I needed. No cost. s. Re: second opinion Larissa, It might not cost much up front, but it will cost more in the end when they don't do the correction right there either. Do not go to Louisiana! Let's find you a way to get to Dr. Dobbs. There are lots of special airlines who fly people for free when there is medical necessity. Here is the list: Resources: Airline Flights These organizations provide airline flights for patients that need to travel for medical reasons. Also note: One parent reports that if you contact the airlines for medical issues they will let you have the cheapest rate for the airfare, meaning even though you are leaving tomorrow, they will give you the same discount as though you did a 30 day advance ticket. Air Care Alliance http://www.aircareall.org/ " The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service. " Angel Flight http://www.angelflight.com/ Angel Flight is a non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks. Angel Flight is a member of Air Care Alliance, a group of 37 organizations providing similar services throughout the United States. These groups are coordinated through a toll-free service (NPATH) that helps individuals in need find assistance in their area. Cancer Air Flights http://www.gwccs.org/flights.html Lists a number of organizations that assist cancer survivors and their caregivers with transportation to and from treatments. Children's Flight of Hope http://www.childrensflightofhope.org/ Children's Flight of Hope provides free, private air transportation to and from medical facilities for children in need. " With our organization-owned aircraft and crew of experienced volunteer pilots, we transport children and their families to and from hospitals throughout the eastern United States. We seek to ensure that children in our service area (North Carolina) are not denied access to medical treatment at distant facilities due to either financial need or a medical condition that precludes travel via ground or commercial aircraft. " Corporate Angel Network 1-. http://www.corpangelnetwork.org/ Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements. One of many advantages is low risk of exposure to contagious illness because just a few people are on plane. Delta AirSky Wish at United Way Free flights, no financial requirements. Call 1- ext. 285, . Lifeline Pilots http://www.lifelinepilots.org/ LifeLine Pilots is a private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs. Mercy Medical Airlift http://www.mercymedical.org/ (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants. Miracle Flights for Kids http://www.miracleflights.com/ Transporting children to medical treatment since 1985. National Patient Air Travel HELPLINE http://www.patienttravel.org/ Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Call 1-. Once NPATH, now also known as www.patienttravel.org. Northwest Airlines, Kid Cares program http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml The Northwest Airlines KidCares medical travel program provides air travel to children age 18 and younger who are unable to receive treatment in their home area. Those with financial need have priority. 1-. TWA Operation Liftoff http://www.operationliftoff.com/ " Providing special trips to children who are facing life threatening illness. " Free flights, no financial requirements. Call . American Airlines, Advantage Miles for Kids in Need http://www.awishwithwings.org/AAKids.htm Helps those in financial need. 1-. Continental Careforce Bob Jack at 1-. Has a contract with Memorial Sloan Kettering Cancer Center for reduced or free airline tickets. Midwest Express Miracle Miles Fuerst at 1- One free flight, thereafter flights are discounted. No financial requirements. > > > > > > > > Hi everyone > > > > > > > > We are to go to ortho today. I haven't been putting the brace > > > > on, they told me to put back on last Wed. but when I did he scream and > > > > scream, so at church we finally took off making another red spot were > > > > he had a sore the week before that was starting to heal over. I was > > > > afraid it was going to make worse. Then he got sick with RSV on Wed. > > > > night took him to Dr. on Thur., Friday and Monday for them to check > > > > him, so I thought with him being sick was not a good idea to put > > > > braces on because of him screaming when on. He just starting to feel > > > > better. > > > > > > > > I still need to find out about the Shriners Van. I'm just waiting for > > > > them to call me back with appointment time. They told me he only sees > > > > patients on Monday. Hope it's soon. > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 My schudule appointment is Feb 20 please help me as much as you can. When I talk to St. Louis Thur. she gave me the number to Shriners for the van but they don't take people to St. Louis. I whether stay on ground but if I have to fly I will. I don't know who will pick me up take me where I need to go. Larissa and number23 wrote: ee Here. I'm going to pipe in on this again. THE SHREVEPORT SHRINE CANNOT HELP CLUB FOOT CHILDREN WITH THE PONSETI METHOD. THE SHREVEPORT SHRINE CANNOT HELP CLUB FOOT CHILDREN WITH THE PONSETI METHOD. THE SHREVEPORT SHRINE CANNOT HELP CLUB FOOT CHILDREN WITH THE PONSETI METHOD. I have a 17 year old club foot nephew who was treated at the Shreveport Shrine who still wears braces and is grossly deformed after 17 years of their Clubfoot Treatment! He is in a wheel chair 90% of the time as he can hardly walk. Why would you even consider going where we all tell you there is no qualified medical help??? I was on the phone with the St. Louis Shrine people just yesterday. They are offering me the Wings of Hope flights - which are free. Call the St. Louis folks - Dr. Dobb's secretary can be a start, she can transfer you to a woman named SANDY at ex. 206. Sandy can hook you up with transportation and lodging in ST. LOUIS. Sandy told me a Shriner's Van from Oklahoma would want to take me to Shrevport. SHE SAID Shreveport is NOT where we need to go - but warned me they would try to push me there as it is closer. THAT IS NOT AN OPTION. I know Shreveport is not an option, I keep trying to tell you that - they CAN NOT AND DO NOT OFFER PONSETI TREATMENT (re, my crippled nephew) Why waste your time and money and energy on the wrong thing?????? You are trying to get away from wrong treatment, so why go seek wrong treatment from an other location even further from home than your current wrong treatment!?!?! Time is running out to get this kid fixed up - why use up more time going to the wrong place just cuz some guy driving a van told you to? Call Sandy, she can hook you up with the free air travel to ST. LOUIS where you CAN get highly qualfied and high quality care. You'll schedule a flight out there, Sandy can hook the whole thing up for you if you just get her on the phone, she is a lovely woman and dedicated to providing this service so PLEASE CALL HER! s. Re: second opinion OK, I'm not in that area, and I'm not the one who has to make the trip, but I took a quick look at Google Maps. Newcastle is about 7-1/2 hrs. from Shreveport, 8-1/2 from St. Louis, 11-1/2 from Iowa City. The care that you'll get has got to be worth the trip. Read some of the horror stories of people who didn't get things taken care of right. We were almost at surgery ourselves - many of the people on this board were with the wrong doctor before they got to a Ponseti doctor. It's not too late to get to the right doctor now, just get there. If Shreveport can't do it, you're wasting your time and will (I hope) end up in St. Louis in the end anyway rather than surgery. Might as well go now. - Seth (meir, lcf, 1/29/04) > > > > > > > > > > Hi everyone > > > > > > > > > > We are to go to ortho today. I haven't been putting the brace > > > > > on, they told me to put back on last Wed. but when I did he scream and > > > > > scream, so at church we finally took off making another red spot were > > > > > he had a sore the week before that was starting to heal over. I was > > > > > afraid it was going to make worse. Then he got sick with RSV on Wed. > > > > > night took him to Dr. on Thur., Friday and Monday for them to check > > > > > him, so I thought with him being sick was not a good idea to put > > > > > braces on because of him screaming when on. He just starting to feel > > > > > better. > > > > > > > > > > I still need to find out about the Shriners Van. I'm just waiting for > > > > > them to call me back with appointment time. They told me he only sees > > > > > patients on Monday. Hope it's soon. > > > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Larissa, If I recall, is a foster child, right (forgive me if I have mixed you up with someone else). If so, his caseworker may be able to help you with some resources. Carol Re: second opinion Larissa, It might not cost much up front, but it will cost more in the end when they don't do the correction right there either. Do not go to Louisiana! Let's find you a way to get to Dr. Dobbs. There are lots of special airlines who fly people for free when there is medical necessity. Here is the list: Resources: Airline Flights These organizations provide airline flights for patients that need to travel for medical reasons. Also note: One parent reports that if you contact the airlines for medical issues they will let you have the cheapest rate for the airfare, meaning even though you are leaving tomorrow, they will give you the same discount as though you did a 30 day advance ticket. Air Care Alliance http://www.aircareall.org/<http://www.aircareall.org/> " The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service. " Angel Flight http://www.angelflight.com/<http://www.angelflight.com/> Angel Flight is a non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks. Angel Flight is a member of Air Care Alliance, a group of 37 organizations providing similar services throughout the United States. These groups are coordinated through a toll-free service (NPATH) that helps individuals in need find assistance in their area. Cancer Air Flights http://www.gwccs.org/flights.html<http://www.gwccs.org/flights.html> Lists a number of organizations that assist cancer survivors and their caregivers with transportation to and from treatments. Children's Flight of Hope http://www.childrensflightofhope.org/<http://www.childrensflightofhope.org/> Children's Flight of Hope provides free, private air transportation to and from medical facilities for children in need. " With our organization-owned aircraft and crew of experienced volunteer pilots, we transport children and their families to and from hospitals throughout the eastern United States. We seek to ensure that children in our service area (North Carolina) are not denied access to medical treatment at distant facilities due to either financial need or a medical condition that precludes travel via ground or commercial aircraft. " Corporate Angel Network 1-. http://www.corpangelnetwork.org/<http://www.corpangelnetwork.org/> Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements. One of many advantages is low risk of exposure to contagious illness because just a few people are on plane. Delta AirSky Wish at United Way Free flights, no financial requirements. Call 1- ext. 285, . Lifeline Pilots http://www.lifelinepilots.org/<http://www.lifelinepilots.org/> LifeLine Pilots is a private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs. Mercy Medical Airlift http://www.mercymedical.org/<http://www.mercymedical.org/> (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants. Miracle Flights for Kids http://www.miracleflights.com/<http://www.miracleflights.com/> Transporting children to medical treatment since 1985. National Patient Air Travel HELPLINE http://www.patienttravel.org/<http://www.patienttravel.org/> Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Call 1-. Once NPATH, now also known as www.patienttravel.org. Northwest Airlines, Kid Cares program http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml<http://www.nwa.com/cor\ pinfo/aircares/about/kidcares.shtml> The Northwest Airlines KidCares medical travel program provides air travel to children age 18 and younger who are unable to receive treatment in their home area. Those with financial need have priority. 1-. TWA Operation Liftoff http://www.operationliftoff.com/<http://www.operationliftoff.com/> " Providing special trips to children who are facing life threatening illness. " Free flights, no financial requirements. Call . American Airlines, Advantage Miles for Kids in Need http://www.awishwithwings.org/AAKids.htm<http://www.awishwithwings.org/AAKids.ht\ m> Helps those in financial need. 1-. Continental Careforce Bob Jack at 1-. Has a contract with Memorial Sloan Kettering Cancer Center for reduced or free airline tickets. Midwest Express Miracle Miles Fuerst at 1- One free flight, thereafter flights are discounted. No financial requirements. > > > > > > > > Hi everyone > > > > > > > > We are to go to ortho today. I haven't been putting the brace > > > > on, they told me to put back on last Wed. but when I did he scream and > > > > scream, so at church we finally took off making another red spot were > > > > he had a sore the week before that was starting to heal over. I was > > > > afraid it was going to make worse. Then he got sick with RSV on Wed. > > > > night took him to Dr. on Thur., Friday and Monday for them to check > > > > him, so I thought with him being sick was not a good idea to put > > > > braces on because of him screaming when on. He just starting to feel > > > > better. > > > > > > > > I still need to find out about the Shriners Van. I'm just waiting for > > > > them to call me back with appointment time. They told me he only sees > > > > patients on Monday. Hope it's soon. > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Larissa, Call Shriners back and talk to Sandy, the main number is 314-432- 3600. ee posted this earlier today -- " SANDY at ex. 206. Sandy can hook you up with transportation and lodging in ST. LOUIS. " allison > > > > > > > > > > Hi everyone > > > > > > > > > > We are to go to ortho today. I haven't been putting > the brace > > > > > on, they told me to put back on last Wed. but when I did he > scream and > > > > > scream, so at church we finally took off making another red > spot were > > > > > he had a sore the week before that was starting to heal over. > I was > > > > > afraid it was going to make worse. Then he got sick with RSV > on Wed. > > > > > night took him to Dr. on Thur., Friday and Monday for them to > check > > > > > him, so I thought with him being sick was not a good idea to put > > > > > braces on because of him screaming when on. He just starting > to feel > > > > > better. > > > > > > > > > > I still need to find out about the Shriners Van. I'm just > waiting for > > > > > them to call me back with appointment time. They told me he > only sees > > > > > patients on Monday. Hope it's soon. > > > > > > > > > > Larissa and 7-15-05 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Larissa, I know I am coming in late here, we just went through our first ear infection. The state should be helping you with all of this. They should be financing his treatment and they should be getting him the best treatment possible. I know if it were here in CT the state would be the one having to do all the arranging of the appointment, transportation, and going with you guys if necessary. We fly kids all over for different reasons. I'm sure Dr. Dobbs would give you a letter stating the importance of Samual receiving the appropriate treatment and the long term damages of continuing on the road you are on now. In our state when a child has a medical issue, our consulting staff of docs and nurses meet and talk to the treating doc to determine the BEST course of treatment. I know each state works differently, however a parent could sue if their child did not have the appropriate treatment. If you want me to help you with talking to the case worker let me know. You could tell them I am a DCF Social worker and the mother of a child with clubfoot who was not treated right until I found this group. Crowley and Logan Quote Link to comment Share on other sites More sharing options...
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