Re: Re: off topic - my son's behavior, again....long!

[Guest guest]

>>>>>What type of class? Perhaps the other kids in the class [like if it

is a BD or SED class] might be either tormenting him or teaching him

their own behaviors. Also, if the class is either too advanced or too

slow for him, he can be just bored and frustrated.<<<<<

It's a Spec. Ed class that goes from 8:45 to 3:15. The other children appear to

be well behaved. There is one other autistic kid in the class and he is totally

non verbal, but very compliant.

>>>>.I would venture that something occurred in these last two days that

set him off. Was there a cooking project at school where they ate

food he should not have eaten? Perhaps one of the teachers or

children is not treating him nicely? Something like that.<<<<<<<

I suspect that the method of punishment might be playing a role in all of this.

For one, they take away his recess, which for him, is capital punishment. The

second thing that I believe is setting him off, is the teacher. She often holds

his hand to keep him from wandering about. I saw her do it the first day, and

it looked like a death grip. I certainly wouldn't appreciate someone doing that

to me. I don't believe food is the problem, because she is helping me in every

way with the diet. She tells me when I need to supply look alike foods, and she

allows me to keep a bag of snacks for him. However, he did consume a large

amount of soy on tuesday and wednesday, and the behavior started declining on

Thursday. I'm going to take away the soy and see if that helps.

>>>>One day is okay, but you are right when you say further down, that you

should not be required to remove him from school when this occurs.

You need a FBA and a behavior plan included in the IEP. LRE for FAPE

includes education for the full school day, or lesser day if included

in the IEP.<<<<

I did inform them that this was not to happen again. We will meet on Thursday

or Friday to update the IEP.

>>>>>There are several medications you can consider for this, but first I

think you might want to consider dietary options. Is your son low

phenol? These behaviors can all be traced to phenol issues in

children with phenol intolerances. Here is more information on that.<<<<<

It's funny, but he won't touch foods with phenols, so that can't be a problem.

He won't even drink juice.

>>>>Also, if this is only for two days, and the other days your son was

okay, then I would strongly suspect something set him off, and you

should try to talk to him and the teachers about what that might have

been.<<<<<

I plan on doing this tomorrow. I want the teacher to give me examples, because

I know him like a book, and I know what sets him off.

>>>>>>Schools in general will recommend medications because it is easier for

the school people to medicate your child rather than working on

behavioral interventions for difficult behaviors. For some children,

medications are the best option, but not for all of the children who a

school would want to medicate. Please use your best judgement for

your own child, because you know him best. Also, pretty much everyone

I know from other message boards, indicates to use the lowest possible

dose of medications, because that seems to work best, and many of the

medications commonly prescribed have some potentially serious and even

permanent side effects, and the lowest dose will give you the best

protection against the possibility of those side effects.<<<<<,

I've been considering the medication route for sometime. I will be sure to be

careful, and use the lowest dose.

>>> Are you requiring the

school to transport your children to the YMCA? Is the school paying

for the YMCA? Is the YMCA a branch of the school or on school

property? If there is no school involvement, then the school has no

say. [i personally would be a little angry if the principal told me

YMCA could not handle my child, and it was my own opinion that YMCA

was capable of doing so. Also, you can mention " gee, your school

can't handle him because you call me to get him early, but by law I

still have to bring him to school, how is YMCA any different?] If

there is school involvement, then you can negotiate it into the IEP

[for example, " aide will accompany child to YMCA after school " ].

Also, you can ask the YMCA to write down its qualifications for

handling your son, its behavior plan, etc. Might be informational for

the school even LOL<<<<<<<

The YMCA program is in the gym. They don't have to transport him there, and he

will only be there for 1 hour a day, with his NT brother. The " Y " said they are

fine with him attending, but the principal is fighting me big time. I did call

the head of Special Ed and tell her that if my disabled son is not allowed into

the school sponsored program, than I need a written letter stating this fact and

that I would like her and the principal to sign it for me. I'm hoping this

stirs them up. This is definately discrimination.

>>>>>If latchkey is offered to

all students at this school, it must in most cases also be offered to

ALL students, including yours.<<<<<

Oh it states right in the Y's handbook that they will not discriminate and that

all children are accepted. I don't think the principal knows what she is doing,

or what she is getting herself into.

>>>>>>Are you receiving SSI? That would provide you with a little more

income, if you qualify. Also, there are several organizations which

provide care for children with disabilities, I can give you links if

you tell me your state and nearest major city.<<<<<

Yes, we receive $260 per month, but once my job kicks in it drops to $65. I

live in Peoria Illinois, so please let me know if you have any links on this.

>>>>>Very nice of him, but having a difficult child with you at work,

especially at the beginning of your employment, may not work out well

with your new employer.<<<<<

Oh, he wouldn't go to work with me, just meet me in the parking lot. I get out

of work at 4:00, and school lets out at 3:15. They would do something in the

interim, than meet me at my car. This would obviously be temporary, until I

find something or the school gets their act together on the Y thing.

Thanks for all your help and advice. I also posted to the autism news list, and

found a woman here in Peoria who is helping me. She has many contacts, and is

also hooking me up with an advocate, who works for free. She told me that

there is a program locally called Home Based Support, so I will apply for that.

It's done by a lottery, and can take awhile.

Again, thanks!!!

a - Peoria IL mom to Alec 7, 5.4 (ASD), 3.6Get more from the

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