Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Yeah, I asked the family doc about the sleeping and he said it is very normal....sometimes they dont sleep the nite till they are a year old....and yes she eats lots-solids and everything!!!! > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Re: Bars >Date: Thu, 9 Feb 2006 23:02:00 -0500 (EST) > >Just a couple more weeks to hang in there! Trust me, as long as the shoes >are fitting well and she has proper correction, she will get accustomed to >them and hopefully sleep longer. Although my first kid was a big one and >nursed constantly, so who can say!! Is she on solids yet? > > Huston wrote: I havent been putting >na in the boots and bars-just the AFO's to not >lose any dorsiflexion. I dont believe that Dr. Pirani will have to do a >tenotomy as na has had one and her dorsiflexion still is great. >However her feet are starting to turn inwards again so I was thinking about >using the boots. But I think I will just leave and keep her using her >AFO's >just so we dont lose the dorsiflexion. thanks for the support. Its >getting >really hard to deal with-especially with not very much support. I am also >very worried about na not sleeping once she does get some sort of >corrective shoes after seeing Dr. Pirani-as on a good day right now, >na >only sleeps 3 hrs straight before she wakes up and wants to eat again-its >very exshausting > > > >From: Cohen > >Reply-To: nosurgery4clubfoot > >To: nosurgery4clubfoot > >Subject: Re: Re: Bars > >Date: Thu, 9 Feb 2006 11:08:39 -0500 (EST) > > > >When Dr. Alvarez put Hayden in the boots and bar way back when, the bar > >was very short (maybe 6 inches heel to heel when the shoes were >attached), > >but we were instructed to only set it at 45 degrees. I think it was >still > >uncomfortable as Hayden is obviously much wider than that (he measures >10 > >inches from shoulder to shoulder) as is na. Also his feet weren't > >corrected at the time. When Hayden went into the Markells a few weeks > >ago, we had one bad night - the first one. Since then he has been A-OK > >with the shoes. I can't tell you what a relief that is! I'm so looking > >forward to hearing what Dr. Pirani has to say about na's feet. > > > > P.S. I am still laughing about the Botox Queen of Canada....!!! > > > > wrote: > > > Alvarez? The botox queen of Canada? > > > > Yep, that's her Kori. > > > > If you remember, is waiting to get na in to see Dr. > > Pirani so he can finally fix her feet. He is away - Uganda I believe > > (I didn't think to ask when I called his asst. to find out why > > had to wait so long, when she said he was away for a month, I > > just assumed it was for the Ugandan project). > > > > > > , How are you doing? How is na, are you still putting her > > in the brace? I would be suprised if she could tolerate it since her > > feet haven't been properly/fully corrected. Have you noticed that > > they are turning back in a bit? PLEASE don't worry if you have and > > don't try putting her in the brace...it is much better to let the > > feet relapse a bit and then be corrected by a Qualified doctor than > > trying to put her in the brace when her feet aren't ready for it. > > > > I don't know, maybe you have the outward rotation of the shoes set > > much less than 70 degrees and she has been ok with it, I would just > > worry that with her feet not being ready for the shoes, well, you > > don't want to get any blisters or sores or anything like that. Dr. > > Pirani is going to recast her anyway, he WILL fix her feet and > > probably with only a couple of casts =) > > > > After *bad* or improper casting, many Ponseti certified docs are now > > saying that it is better to let the foot regress a bit before re- > > starting casting, so I guess what I am trying to say with all this > > rambling is try not to worry and don't put her in the shoes if > > she is really uncomfy in them. > > > > Can't wait until you go for your first appt...pls remind me the date > > again? > > > > Big hugs to you and hang in there! You and na have been through > > a lot, just KNOW that her feet WILL be fine!! Dr. Pirani will have > > them all straightened out in no time I promise!! > > > > Smiles, > > > > & Grace > > > > > > > > At 10:48 PM 2/8/2006, you wrote: > > > >I know its probably different for everyone but how long should the > > bar > > > >on the Dennis Browne Boots and Bars be for a 7 1/2 month old 21 > > lbs 27 > > > >inches???????? > > > >If anyone even has any idea that would be great-I looked at the > > one Dr > > > >Alvarez gave for na and it is 10 " > > > > > > > >Thanks > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Well don't feel bad - I haven't one of my three sleep through the night yet, not until they were weaned, which was around a year to a year and a half - guess I'll be toughing it out again! Huston wrote: Yeah, I asked the family doc about the sleeping and he said it is very normal....sometimes they dont sleep the nite till they are a year old....and yes she eats lots-solids and everything!!!! >From: Cohen >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Re: Bars >Date: Thu, 9 Feb 2006 23:02:00 -0500 (EST) > >Just a couple more weeks to hang in there! Trust me, as long as the shoes >are fitting well and she has proper correction, she will get accustomed to >them and hopefully sleep longer. Although my first kid was a big one and >nursed constantly, so who can say!! Is she on solids yet? > > Huston wrote: I havent been putting >na in the boots and bars-just the AFO's to not >lose any dorsiflexion. I dont believe that Dr. Pirani will have to do a >tenotomy as na has had one and her dorsiflexion still is great. >However her feet are starting to turn inwards again so I was thinking about >using the boots. But I think I will just leave and keep her using her >AFO's >just so we dont lose the dorsiflexion. thanks for the support. Its >getting >really hard to deal with-especially with not very much support. I am also >very worried about na not sleeping once she does get some sort of >corrective shoes after seeing Dr. Pirani-as on a good day right now, >na >only sleeps 3 hrs straight before she wakes up and wants to eat again-its >very exshausting > > > >From: Cohen > >Reply-To: nosurgery4clubfoot > >To: nosurgery4clubfoot > >Subject: Re: Re: Bars > >Date: Thu, 9 Feb 2006 11:08:39 -0500 (EST) > > > >When Dr. Alvarez put Hayden in the boots and bar way back when, the bar > >was very short (maybe 6 inches heel to heel when the shoes were >attached), > >but we were instructed to only set it at 45 degrees. I think it was >still > >uncomfortable as Hayden is obviously much wider than that (he measures >10 > >inches from shoulder to shoulder) as is na. Also his feet weren't > >corrected at the time. When Hayden went into the Markells a few weeks > >ago, we had one bad night - the first one. Since then he has been A-OK > >with the shoes. I can't tell you what a relief that is! I'm so looking > >forward to hearing what Dr. Pirani has to say about na's feet. > > > > P.S. I am still laughing about the Botox Queen of Canada....!!! > > > > wrote: > > > Alvarez? The botox queen of Canada? > > > > Yep, that's her Kori. > > > > If you remember, is waiting to get na in to see Dr. > > Pirani so he can finally fix her feet. He is away - Uganda I believe > > (I didn't think to ask when I called his asst. to find out why > > had to wait so long, when she said he was away for a month, I > > just assumed it was for the Ugandan project). > > > > > > , How are you doing? How is na, are you still putting her > > in the brace? I would be suprised if she could tolerate it since her > > feet haven't been properly/fully corrected. Have you noticed that > > they are turning back in a bit? PLEASE don't worry if you have and > > don't try putting her in the brace...it is much better to let the > > feet relapse a bit and then be corrected by a Qualified doctor than > > trying to put her in the brace when her feet aren't ready for it. > > > > I don't know, maybe you have the outward rotation of the shoes set > > much less than 70 degrees and she has been ok with it, I would just > > worry that with her feet not being ready for the shoes, well, you > > don't want to get any blisters or sores or anything like that. Dr. > > Pirani is going to recast her anyway, he WILL fix her feet and > > probably with only a couple of casts =) > > > > After *bad* or improper casting, many Ponseti certified docs are now > > saying that it is better to let the foot regress a bit before re- > > starting casting, so I guess what I am trying to say with all this > > rambling is try not to worry and don't put her in the shoes if > > she is really uncomfy in them. > > > > Can't wait until you go for your first appt...pls remind me the date > > again? > > > > Big hugs to you and hang in there! You and na have been through > > a lot, just KNOW that her feet WILL be fine!! Dr. Pirani will have > > them all straightened out in no time I promise!! > > > > Smiles, > > > > & Grace > > > > > > > > At 10:48 PM 2/8/2006, you wrote: > > > >I know its probably different for everyone but how long should the > > bar > > > >on the Dennis Browne Boots and Bars be for a 7 1/2 month old 21 > > lbs 27 > > > >inches???????? > > > >If anyone even has any idea that would be great-I looked at the > > one Dr > > > >Alvarez gave for na and it is 10 " > > > > > > > >Thanks > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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