Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I think I know what you're talking about but I know it as Pascal's Wager. > > > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Faith > To: neurosarcoidosis@ yahoogroups. com > Cc: NSMods-owner@ yahoogroups. com > Date: Tuesday, February 16, 2010, 10:54 PM > > > > > > > > > > > > > > > > > > > > > Once again, I find myself being the " heavy; " and having to address the issue of faith and religious posts. > There is not a member on this group that doesn't have some form of faith-- a belief that they can find a way to live with sarcoidosis and all that it entails. Faith even as small as a mustard seed. Sometimes that is all we have. > Will faith alone heal us? Probably not. That is why we are here to share the journey of what we have learned in treatment options, medication options, diet, exercise, coping skills, and more. > Is it a lack of faith that keeps us sick? Absolutely not. Is it the name of my religion, or yours? Is yours better than mine? Do I need to be told and have those who believe that their faith is better than mine tell me over and over that it is their faith that will heal me. Absolutely not. > As a woman of faith-- and a woman with a wonderful, powerful spiritual side that guides me in my research and sharing of this journey-- I know how powerful faith can be. I also know that it can scare alot of people away. > You may not understand this-- but when you are dealing with the issues of a chronic illness-- and where our medical science doesn't even know how this illness begins, and has no way to cure us-- we - even those of us with faith-- can be so very pissed at god-- or a higher power. > We can all go to our local church or synagogue, or chapel or creek-- and have communion with other people of like minds. We can easily get all the support we need in the manner of our faith. > When it comes to living with sarcoidosis- - we have ten or so support groups-- primarily online. Very few communties have " live " group meetings. So we searched and found this group. > The owners and moderators (also very much woman of faith) all want this forum to be a place where regardless of faith-- you can be supported in learning to live with sarcoidosis. > This is an international --worldwide- globally accessible group. Anyone can join. No one will ask you what you believe in-- who you believe in, or what political party you belong to. We don't want to know! None of that will help us find better treatment for sarcoidosis. > It is this goal in mind-- that we again ask that you remember that this is not a forum to use as a testimony to your faith. We're glad you have faith to lean on-- it's important that we not lose faith-- and that we have access without judgement where we can share treatment options and ideas. > It takes a huge heart to hold this-- to stay strong when even our faith or religious background is on the edge of telling us that it's a lack of " some thing " that keeps us ill. > Please-- open your hearts- know that we all know that this is a tough journey-- and save the religion for your local friends-- share your journey to wellness-- and your sorrows -- and keep a balance. > We know that often it is what is not said-- but what is held in your heart that allows us to be here to discuss sarcoidosis. It is here where we can laugh and cry and yell and fight our way through our disrupted relationships, marriages, job losses, financial in-securities- - and find ways to cope-- and a place to share these issues. >  > I share this wth all of you because we do have members that refuse to post because of such a strong passionate group of people that mean well-- and yet are misunderstood when they insist on telling us that faith is what gets them through. > Faith, a dose of an immunosuppressant, a dose of an antidepressant, a dose of hugs and laughter and a dose of tears- are all necessary. >  > My heart goes out to all of you, and all that each of you bring to this group-- and we truly appreciate the prayers-- so please-- keep some perspective and balance. > Sincerely, > Tracie > NS Co-owner/moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Thanks. Sometimes I sure as H*** don't feel like it. But I plug on anyway. Matt From: tracie feldhaus <tiodaat2001@ yahoo.com>Subject: FaithTo: neurosarcoidosis@ yahoogroups. comCc: NSMods-owner@ yahoogroups. comDate: Tuesday, February 16, 2010, 10:54 PM Once again, I find myself being the "heavy;" and having to address the issue of faith and religious posts. There is not a member on this group that doesn't have some form of faith-- a belief that they can find a way to live with sarcoidosis and all that it entails. Faith even as small as a mustard seed. Sometimes that is all we have. Will faith alone heal us? Probably not. That is why we are here to share the journey of what we have learned in treatment options, medication options, diet, exercise, coping skills, and more. Is it a lack of faith that keeps us sick? Absolutely not. Is it the name of my religion, or yours? Is yours better than mine? Do I need to be told and have those who believe that their faith is better than mine tell me over and over that it is their faith that will heal me. Absolutely not. As a woman of faith-- and a woman with a wonderful, powerful spiritual side that guides me in my research and sharing of this journey-- I know how powerful faith can be. I also know that it can scare alot of people away. You may not understand this-- but when you are dealing with the issues of a chronic illness-- and where our medical science doesn't even know how this illness begins, and has no way to cure us-- we - even those of us with faith-- can be so very pissed at god-- or a higher power. We can all go to our local church or synagogue, or chapel or creek-- and have communion with other people of like minds. We can easily get all the support we need in the manner of our faith. When it comes to living with sarcoidosis- - we have ten or so support groups-- primarily online. Very few communties have "live" group meetings. So we searched and found this group. The owners and moderators (also very much woman of faith) all want this forum to be a place where regardless of faith-- you can be supported in learning to live with sarcoidosis. This is an international --worldwide- globally accessible group. Anyone can join. No one will ask you what you believe in-- who you believe in, or what political party you belong to. We don't want to know! None of that will help us find better treatment for sarcoidosis. It is this goal in mind-- that we again ask that you remember that this is not a forum to use as a testimony to your faith. We're glad you have faith to lean on-- it's important that we not lose faith-- and that we have access without judgement where we can share treatment options and ideas. It takes a huge heart to hold this-- to stay strong when even our faith or religious background is on the edge of telling us that it's a lack of "some thing" that keeps us ill. Please-- open your hearts- know that we all know that this is a tough journey-- and save the religion for your local friends-- share your journey to wellness-- and your sorrows -- and keep a balance. We know that often it is what is not said-- but what is held in your heart that allows us to be here to discuss sarcoidosis. It is here where we can laugh and cry and yell and fight our way through our disrupted relationships, marriages, job losses, financial in-securities- - and find ways to cope-- and a place to share these issues. I share this wth all of you because we do have members that refuse to post because of such a strong passionate group of people that mean well-- and yet are misunderstood when they insist on telling us that faith is what gets them through. Faith, a dose of an immunosuppressant, a dose of an antidepressant, a dose of hugs and laughter and a dose of tears- are all necessary. My heart goes out to all of you, and all that each of you bring to this group-- and we truly appreciate the prayers-- so please-- keep some perspective and balance. Sincerely, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I don't remember seeing Tracie apologizing in her concern of writing to the group, in reference to FAITH. It was I that did the apologizing. Please re-read, as Tracie informed me to do, after replying to my apologetic message to the group. I bid you all wellness, and hold no grudge towards anyone. To: Neurosarcoidosis Sent: Fri, February 19, 2010 7:12:37 PMSubject: Re: Faith I think I know what you're talking about but I know it as Pascal's Wager.> > > From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Faith> To: neurosarcoidosis@ yahoogroups. com> Cc: NSMods-owner@ yahoogroups. com> Date: Tuesday, February 16, 2010, 10:54 PM> > > > > > > > > > > > > > > > > > > > > Once again, I find myself being the "heavy;" and having to address the issue of faith and religious posts.> There is not a member on this group that doesn't have some form of faith-- a belief that they can find a way to live with sarcoidosis and all that it entails. Faith even as small as a mustard seed. Sometimes that is all we have. > Will faith alone heal us? Probably not. That is why we are here to share the journey of what we have learned in treatment options, medication options, diet, exercise, coping skills, and more. > Is it a lack of faith that keeps us sick? Absolutely not. Is it the name of my religion, or yours? Is yours better than mine? Do I need to be told and have those who believe that their faith is better than mine tell me over and over that it is their faith that will heal me. Absolutely not. > As a woman of faith-- and a woman with a wonderful, powerful spiritual side that guides me in my research and sharing of this journey-- I know how powerful faith can be. I also know that it can scare alot of people away.> You may not understand this-- but when you are dealing with the issues of a chronic illness-- and where our medical science doesn't even know how this illness begins, and has no way to cure us-- we - even those of us with faith-- can be so very pissed at god-- or a higher power. > We can all go to our local church or synagogue, or chapel or creek-- and have communion with other people of like minds. We can easily get all the support we need in the manner of our faith. > When it comes to living with sarcoidosis- - we have ten or so support groups-- primarily online. Very few communties have "live" group meetings. So we searched and found this group. > The owners and moderators (also very much woman of faith) all want this forum to be a place where regardless of faith-- you can be supported in learning to live with sarcoidosis. > This is an international --worldwide- globally accessible group. Anyone can join. No one will ask you what you believe in-- who you believe in, or what political party you belong to. We don't want to know! None of that will help us find better treatment for sarcoidosis. > It is this goal in mind-- that we again ask that you remember that this is not a forum to use as a testimony to your faith. We're glad you have faith to lean on-- it's important that we not lose faith-- and that we have access without judgement where we can share treatment options and ideas. > It takes a huge heart to hold this-- to stay strong when even our faith or religious background is on the edge of telling us that it's a lack of "some thing" that keeps us ill. > Please-- open your hearts- know that we all know that this is a tough journey-- and save the religion for your local friends-- share your journey to wellness-- and your sorrows -- and keep a balance. > We know that often it is what is not said-- but what is held in your heart that allows us to be here to discuss sarcoidosis. It is here where we can laugh and cry and yell and fight our way through our disrupted relationships, marriages, job losses, financial in-securities- - and find ways to cope-- and a place to share these issues.>  > I share this wth all of you because we do have members that refuse to post because of such a strong passionate group of people that mean well-- and yet are misunderstood when they insist on telling us that faith is what gets them through. > Faith, a dose of an immunosuppressant, a dose of an antidepressant, a dose of hugs and laughter and a dose of tears- are all necessary. >  > My heart goes out to all of you, and all that each of you bring to this group-- and we truly appreciate the prayers-- so please-- keep some perspective and balance.> Sincerely,> Tracie> NS Co-owner/moderator> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No grudges at all! To: Neurosarcoidosis Sent: Sat, February 20, 2010 3:05:15 PMSubject: Re: Re: Faith I don't remember seeing Tracie apologizing in her concern of writing to the group, in reference to FAITH. It was I that did the apologizing. Please re-read, as Tracie informed me to do, after replying to my apologetic message to the group. I bid you all wellness, and hold no grudge towards anyone. From: rachyanne <stiks11 (AT) hotmail (DOT) com>To: Neurosarcoidosis@ yahoogroups. comSent: Fri, February 19, 2010 7:12:37 PMSubject: Re: Faith I think I know what you're talking about but I know it as Pascal's Wager.> > > From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Faith> To: neurosarcoidosis@ yahoogroups. com> Cc: NSMods-owner@ yahoogroups. com> Date: Tuesday, February 16, 2010, 10:54 PM> > > > > > > > > > > > > > > > > > > > > Once again, I find myself being the "heavy;" and having to address the issue of faith and religious posts.> There is not a member on this group that doesn't have some form of faith-- a belief that they can find a way to live with sarcoidosis and all that it entails. Faith even as small as a mustard seed. Sometimes that is all we have. > Will faith alone heal us? Probably not. That is why we are here to share the journey of what we have learned in treatment options, medication options, diet, exercise, coping skills, and more. > Is it a lack of faith that keeps us sick? Absolutely not. Is it the name of my religion, or yours? Is yours better than mine? Do I need to be told and have those who believe that their faith is better than mine tell me over and over that it is their faith that will heal me. Absolutely not. > As a woman of faith-- and a woman with a wonderful, powerful spiritual side that guides me in my research and sharing of this journey-- I know how powerful faith can be. I also know that it can scare alot of people away.> You may not understand this-- but when you are dealing with the issues of a chronic illness-- and where our medical science doesn't even know how this illness begins, and has no way to cure us-- we - even those of us with faith-- can be so very pissed at god-- or a higher power. > We can all go to our local church or synagogue, or chapel or creek-- and have communion with other people of like minds. We can easily get all the support we need in the manner of our faith. > When it comes to living with sarcoidosis- - we have ten or so support groups-- primarily online. Very few communties have "live" group meetings. So we searched and found this group. > The owners and moderators (also very much woman of faith) all want this forum to be a place where regardless of faith-- you can be supported in learning to live with sarcoidosis. > This is an international --worldwide- globally accessible group. Anyone can join. No one will ask you what you believe in-- who you believe in, or what political party you belong to. We don't want to know! None of that will help us find better treatment for sarcoidosis. > It is this goal in mind-- that we again ask that you remember that this is not a forum to use as a testimony to your faith. We're glad you have faith to lean on-- it's important that we not lose faith-- and that we have access without judgement where we can share treatment options and ideas. > It takes a huge heart to hold this-- to stay strong when even our faith or religious background is on the edge of telling us that it's a lack of "some thing" that keeps us ill. > Please-- open your hearts- know that we all know that this is a tough journey-- and save the religion for your local friends-- share your journey to wellness-- and your sorrows -- and keep a balance. > We know that often it is what is not said-- but what is held in your heart that allows us to be here to discuss sarcoidosis. It is here where we can laugh and cry and yell and fight our way through our disrupted relationships, marriages, job losses, financial in-securities- - and find ways to cope-- and a place to share these issues.>  > I share this wth all of you because we do have members that refuse to post because of such a strong passionate group of people that mean well-- and yet are misunderstood when they insist on telling us that faith is what gets them through. > Faith, a dose of an immunosuppressant, a dose of an antidepressant, a dose of hugs and laughter and a dose of tears- are all necessary. >  > My heart goes out to all of you, and all that each of you bring to this group-- and we truly appreciate the prayers-- so please-- keep some perspective and balance.> Sincerely,> Tracie> NS Co-owner/moderator> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 specialk....great handle Subject: Re: FaithTo: Neurosarcoidosis Date: Friday, February 19, 2010, 9:12 PM I think I know what you're talking about but I know it as Pascal's Wager.> > > From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Faith> To: neurosarcoidosis@ yahoogroups. com> Cc: NSMods-owner@ yahoogroups. com> Date: Tuesday, February 16, 2010, 10:54 PM> > > > > > > > > > > > > > > > > > > > > Once again, I find myself being the "heavy;" and having to address the issue of faith and religious posts.> There is not a member on this group that doesn't have some form of faith-- a belief that they can find a way to live with sarcoidosis and all that it entails. Faith even as small as a mustard seed. Sometimes that is all we have. > Will faith alone heal us? Probably not. That is why we are here to share the journey of what we have learned in treatment options, medication options, diet, exercise, coping skills, and more. > Is it a lack of faith that keeps us sick? Absolutely not. Is it the name of my religion, or yours? Is yours better than mine? Do I need to be told and have those who believe that their faith is better than mine tell me over and over that it is their faith that will heal me. Absolutely not. > As a woman of faith-- and a woman with a wonderful, powerful spiritual side that guides me in my research and sharing of this journey-- I know how powerful faith can be. I also know that it can scare alot of people away.> You may not understand this-- but when you are dealing with the issues of a chronic illness-- and where our medical science doesn't even know how this illness begins, and has no way to cure us-- we - even those of us with faith-- can be so very pissed at god-- or a higher power. > We can all go to our local church or synagogue, or chapel or creek-- and have communion with other people of like minds. We can easily get all the support we need in the manner of our faith. > When it comes to living with sarcoidosis- - we have ten or so support groups-- primarily online. Very few communties have "live" group meetings. So we searched and found this group. > The owners and moderators (also very much woman of faith) all want this forum to be a place where regardless of faith-- you can be supported in learning to live with sarcoidosis. > This is an international --worldwide- globally accessible group. Anyone can join. No one will ask you what you believe in-- who you believe in, or what political party you belong to. We don't want to know! None of that will help us find better treatment for sarcoidosis. > It is this goal in mind-- that we again ask that you remember that this is not a forum to use as a testimony to your faith. We're glad you have faith to lean on-- it's important that we not lose faith-- and that we have access without judgement where we can share treatment options and ideas. > It takes a huge heart to hold this-- to stay strong when even our faith or religious background is on the edge of telling us that it's a lack of "some thing" that keeps us ill. > Please-- open your hearts- know that we all know that this is a tough journey-- and save the religion for your local friends-- share your journey to wellness-- and your sorrows -- and keep a balance. > We know that often it is what is not said-- but what is held in your heart that allows us to be here to discuss sarcoidosis. It is here where we can laugh and cry and yell and fight our way through our disrupted relationships, marriages, job losses, financial in-securities- - and find ways to cope-- and a place to share these issues.>  > I share this wth all of you because we do have members that refuse to post because of such a strong passionate group of people that mean well-- and yet are misunderstood when they insist on telling us that faith is what gets them through. > Faith, a dose of an immunosuppressant, a dose of an antidepressant, a dose of hugs and laughter and a dose of tears- are all necessary. >  > My heart goes out to all of you, and all that each of you bring to this group-- and we truly appreciate the prayers-- so please-- keep some perspective and balance.> Sincerely,> Tracie> NS Co-owner/moderator> Quote Link to comment Share on other sites More sharing options...
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