Re: New to list

[Guest guest]

Hello Darrin and welcome. This group is most knowledgeable and helpful in getting information on this awful disease. I think you will find it most beneficial for information as well as support. They have certainly helped me. MattSubject: New to listTo: "neurosarcoidosis " <neurosarcoidosis >Date: Friday, February 19, 2010, 1:42 AM

Hi,

I'm Darrin, new to the list, and thought I should introduce myself.

For many years I've been experiencing a worsening neuro condition

I felt was ms with tremors, twitches, spasms, a myoclonic jerk, and

a contracture plus visual and other sensory problems. I finally got

to see an ms neuro recently who prescribed a battery of tests that

included comprehensive bloodwork and not yet done potentials tests.

I haven't been to the follow up yet but the blood tests were negative

for just about everything except an ACE level in the 90s when it should

be 60 or below. A search on this got me to neurosarcoidosis and info on

it seems to cover my symptoms well plus it explains the ACE.

I don't know yet if I'm just a stranger sitting at the campfire for a night

or if I'll be building a cabin here but in any event it is nice to see a

thriving community.

Cheers,

Darrin