Re: Back from Iowa

[Guest guest]

What a wonderful report on ! (I have a little , too...my third child

who is three years old.) has taken a bit of a circuitous course with the

casts, shoes, more casts, going to Iowa, another cast and then back to shoes,

but she is younger so tolerating it better, I imagine. What a little trooper

you have! And when you see him run like the wind down a soccer field, it will

all be worth it!

Carol and , bcf, 10-27-05, FAB 23/7

Back from Iowa

and I are back from Iowa. We were there for about 2 1/2 weeks

and I have to say, I'm so relieved we went. For the first time in

's life someone (Dr. Ponseti) told me that his foot is not that

severe. I almost fell over when I heard that! Coming from a place

where we'd been buffering him against suggestions of major surgery

for over a year, to hear him say, " that's really not that severe a

foot, " I can't tell you the relief I felt. Dr. Ponseti told me that

it won't be a perfect foot, but it will be fine. needed three

casts while we were there, and then we came home. He wore the first

two casts for 7 days a piece and he'll have this last one on for 2

weeks. It comes off on 2/27.

Then he goes into shoes again for 22 hours/day for a month,

then down to 20 hours/day for a month, then 18/day if it looks like

his correction can tolerate more time out of the brace. We go back

to Iowa in 4 months. Going to see Dr. Ponseti was the best decision

we've made for ! Thanks to all who encouraged us. We really

needed an expert opinion for our son and now he's in the best hands.

Truly God's Angel!

You should see though, it took him about 2 weeks but he now has

figured out how to walk in his cast! Bent leg and all!! Dr. P. said

I can't prevent him, so here I am at home with my nerves and extra

plaster to reinforce the toe if needed! Egad! I hope I won't have

to do any reinforcements! What a nightmare if I mess up!

Fortunately, we had a cast shoe at home left over from his other

castings and that has worked like a charm! There's not much wear and

tear on the plaster when he wears the shoe over the cast.

I think I'm gonna need to start a " shoes and brace " support group

here. My poor boy has gone from freedom and walking, to long-leg

casts, and soon back to shoes and a bar. God bless him! He's been

so tolerant of all that's been done to his foot. But I know he's

frustrated! We're not looking forward to the next few months. It's

not how we imagined going into his second year. Oh well, little

regrets for a big payoff for his foot.

[Guest guest]

-

That's great news! I'm so glad you went. Dr. Ponseti is amazing.

I can't believe he's walking in his casts! I bet he'll just take off

once he gets the chance. He may even try to walk in his brace. Right

now Lucas has had his brace for 3 weeks (22 hrs) and he

pulls up in it and shuffles forward while holding onto something.

Looks like he's trying to walk in a snowboard! I have a feeling the

brace won't slow your little one down at all!!

Jenn

>

> and I are back from Iowa. We were there for about 2 1/2

weeks

> and I have to say, I'm so relieved we went. For the first time in

> 's life someone (Dr. Ponseti) told me that his foot is not

that

> severe. I almost fell over when I heard that! Coming from a

place

> where we'd been buffering him against suggestions of major surgery

> for over a year, to hear him say, " that's really not that severe a

> foot, " I can't tell you the relief I felt. Dr. Ponseti told me

that

> it won't be a perfect foot, but it will be fine. needed

three

> casts while we were there, and then we came home. He wore the

first

> two casts for 7 days a piece and he'll have this last one on for 2

> weeks. It comes off on 2/27.

>

> Then he goes into shoes again for 22 hours/day for a

month,

> then down to 20 hours/day for a month, then 18/day if it looks

like

> his correction can tolerate more time out of the brace. We go

back

> to Iowa in 4 months. Going to see Dr. Ponseti was the best

decision

> we've made for ! Thanks to all who encouraged us. We really

> needed an expert opinion for our son and now he's in the best

hands.

> Truly God's Angel!

>

> You should see though, it took him about 2 weeks but he now

has

> figured out how to walk in his cast! Bent leg and all!! Dr. P.

said

> I can't prevent him, so here I am at home with my nerves and extra

> plaster to reinforce the toe if needed! Egad! I hope I won't

have

> to do any reinforcements! What a nightmare if I mess up!

> Fortunately, we had a cast shoe at home left over from his other

> castings and that has worked like a charm! There's not much wear

and

> tear on the plaster when he wears the shoe over the cast.

>

> I think I'm gonna need to start a " shoes and brace " support group

> here. My poor boy has gone from freedom and walking, to long-leg

> casts, and soon back to shoes and a bar. God bless him! He's

been

> so tolerant of all that's been done to his foot. But I know he's

> frustrated! We're not looking forward to the next few months.

It's

> not how we imagined going into his second year. Oh well, little

> regrets for a big payoff for his foot.

>

>

>