Re: a complaint

[Guest guest]

Hi, Matt. This is Shanniemel, (aka., ). I know how you feel. Sometimes when I've been offline, sick for awhile I feel like I'm kind of starting all over again. Give the group a chance. There are so many wonderful people on here, and they are all dealing with NS in some way or another. It took me a bit to figure it out, but just as you and I have trouble feeling well enough to get on line, so others have a tough time responding to all the queries out there. Email me whenever you want someone to chat with. I can't guarantee when I will be able to respond, but I definitely WILL do eventually~! Bear with me! Heck, bear with us all! Sending you virtual smiles,shanniemel@...To: Neurosarcoidosis Sent: Fri, February 19, 2010 12:17:07 AMSubject: Re: a complaint

Seattle Matt,

I know it's been a long time since we've heard from you-- what can we do to help you? I'm lost as to what we missed.

Blessings,

Tracie

From: Barbara Weber <beautybarnweber@ yahoo.com>To: Neurosarcoidosis@ yahoogroups. comSent: Thu, February 18, 2010 9:56:52 AMSubject: Re: a complaint

i am sorry you feel this way. please be patient as we are all sick on this support group. what is your question maybe i can help you ? sometimes my computer will post answers and i never see the question !

From: belltown_mac <chapmac (AT) gmail (DOT) com>To: Neurosarcoidosis@ yahoogroups. comSent: Thu, February 18, 2010 12:38:10 PMSubject: a complaint

I know i dont post very often, and one of the reasons is I have been real sick the past year. I do try to read the posts everyday to keep informed about the community. but I also have a complaint. The last few times I have posted and asked a question I got virtually no responses from anyone. It makes me feel like I have been excluded from the group. i realize that there may not always be an answer to my question but it would be nice if my post was at least acknowledged. I am sure there are others like me in the group, who are , due to there illness not able to post often but rely on the group for information. i think that maybe this group has kind of forgotten about people like us. We need to remember that there are people like me who are also battling this illness who need support just like everyone else, and the fact that we post rarely means when we do make the effort to post we have a major concern. matt in

Seattle

[Guest guest]

Matt, I am sorry to hear this, partly is my fault, I am not on here as much as I should be. I just got back from Wash. Spokane, My Aunt died, she was 82, but has been sick with something most of her life, I didn't know what, and found out at the funeral she

had Sarcoidosis.  I know we are all sick, and I hate the thought of being sick for the rest of my life, but reality is that we are.  I am going back to see your questions. You know the one we relied on the most Tracie has been really, really sick, I am

worried about her, so she hasn't been on much. I will try to do better.  Again I am sorry. Blessings, Marla

 

I know i dont post very often, and one of the reasons is I have been real sick the past year. I do try to read the posts everyday to keep informed about the community. but I also have a complaint. The last few times I have posted and asked a question I got virtually no responses from anyone. It makes me feel like I have been excluded from the group. i realize that there may not always be an answer to my question but it would be nice if my post was at least acknowledged. I am sure there are others like me in the group, who are , due to there illness not able to post often but rely on the group for information. i think that maybe this group has kind of forgotten about people like us. We need to remember that there are people like me who are also battling this illness who need support just like everyone else, and the fact that we post rarely means when we do make the effort to post we have a major concern. matt in Seattle