Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I have missed you all. Currently, I am dealing with a bit of a flare up. Get this....while I'm discussing current problems with the doc, he tells me he is writing a paper on me and my fight to get a correct diagnosis, etc. (I sought treatment at 5 diffe4rent hospitals before anyone found the NS lesions in my brainstem and spinal cord....even though I have had sarcoid in my eyes, and interdermally). He wanted to know what I thought, etc, and I told him GREAT! Now maybe the next person won't have to go through all the % & ^(*^ we have. I told him about the support group, and how common it is for us (NS sufferers), to go for years without a correct diagnosis; in the meanwhile, the nerve damage just continues to worsen. He seemed surprised to hear that misdiagnosis was so rampant; I guess he thought I was a rare case. Does anyone else have any comments/horror stories to share? SHanniemel@... Quote Link to comment Share on other sites More sharing options...
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