RE: from Rose

[Guest guest]

Thanks, Matt. I wonder actually if caring for my mom in her last months of Alzheimer's might have triggered this. It will be 2 years in July since she died. I don't know how much support you have, but this is a great site for caregivers: http://www.nfcacares.org/

There are also other resources in the Links section, listed at the bottom of each group message.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: dmatt1960@...Date: Fri, 23 Apr 2010 20:03:38 -0700Subject: Re: from Rose

Take care of yourself Rose. I am a caregiver & I am finding out just how much this illness affects us all. Matt

Subject: from RoseTo: neurosarcoidosis , nsmods Date: Friday, April 23, 2010, 10:24 PM

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

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[Guest guest]

Thanks, Jackie. There seems to be so much pulling on me, from family & friends, problems with my church, needy groups & charities, along with world issues. I knolw everyone has the same types of stress, but I just seem to have lost the ability to cope with most of it. For 35 years I worked as an RN, then nurse-midwife, raised my family, lived through an unhappy marriage & finally a divorce, gardened, sewed, did crafts, volunteered. I could always rise to the occasion, even tho I have struggled with depression most of my adult life. It all seemed to come crashing down in the last year or so. I will do what I can here & try not to feel guilty about it. I felt so guilty that I was reluctant to tell the group about a fundraiser I'm participating in tomorrow. It's call Mutt Strut. Dog owners & their dogs walk around the Indianapolis Motor Speedway (where the 500 is run). It's 2-1/2 miles, so I'm riding my scooter. My son suggested it as a mom-son activity. I don't get to spend much time with him, so I'm excited about it. You can check out my personal page at www.indymuttstrut.org. Click on donate (I don't expect any to donate), then find participant & type in Rose . There is a photo of my dog L.B. and me on my trike.

Well, it feels good to be back, with everything out in the open!

Ramblin' RoseModerator

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: shadowme810@...Date: Sat, 24 Apr 2010 00:01:08 -0500Subject: Re: from Rose

welcome back Rose. We have missed you but understand. I get the emotional drain also and to think we can just suck it up is wrong. Deal with it would be better. Anyway take care and take it slow we are here for you just as you have been for us.

Jackie

from Rose

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully--mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

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[Guest guest]

Rose, I was just wondering about you and here you are! I am presently recuperating from a three-month flare so I can't write much now but it's so good to see you posting again. hugs S.Life is short...live it to the fullest...to your last living breath.Subject: from RoseTo: neurosarcoidosis , nsmods Date: Saturday, April 24,

2010, 2:24 AM

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully--mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to

do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long.

Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or

test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

Rosie, I promise to kick the ass of ANYONE that thinks you or any of us should "suck it up." They may have to get down on their knees where I can reach them sitting down, so I don't tip over if I have only one leg on the ground--- but I will do it! It's a promise!

Love ya,

Tracie

NS Co-owner/moderator

To: neurosarcoidosis ; nsmods Sent: Fri, April 23, 2010 7:24:01 PMSubject: from Rose

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to

do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere,

whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

Sorry you've been having a rough time, . Hope the pendulum swings the other way for awhile.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mary_s777@...Date: Sat, 24 Apr 2010 09:09:24 -0700Subject: Re: from Rose

Rose, I was just wondering about you and here you are! I am presently recuperating from a three-month flare so I can't write much now but it's so good to see you posting again. hugs S.Life is short...live it to the fullest...to your last living breath.

Subject: from RoseTo: neurosarcoidosis , nsmods Date: Saturday, April 24, 2010, 2:24 AM

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully--mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

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[Guest guest]

Are we allowed to say "ass" on the Internet?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: tiodaat2001@...Date: Sat, 24 Apr 2010 13:27:22 -0700Subject: Re: from Rose

Rosie, I promise to kick the ass of ANYONE that thinks you or any of us should "suck it up." They may have to get down on their knees where I can reach them sitting down, so I don't tip over if I have only one leg on the ground--- but I will do it! It's a promise!

Love ya,

Tracie

NS Co-owner/moderator

To: neurosarcoidosis ; nsmods Sent: Fri, April 23, 2010 7:24:01 PMSubject: from Rose

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

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[Guest guest]



And I will be there to help Tracie..............You can count on that.

Hugs,DarleneNS Co-Owner/Moderator

from Rose

Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

YEP

To: neurosarcoidosis Sent: Sat, April 24, 2010 2:24:05 PMSubject: RE: from Rose

Are we allowed to say "ass" on the Internet?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis@ yahoogroups. comFrom: tiodaat2001@ yahoo.comDate: Sat, 24 Apr 2010 13:27:22 -0700Subject: Re: from Rose

Rosie, I promise to kick the ass of ANYONE that thinks you or any of us should "suck it up." They may have to get down on their knees where I can reach them sitting down, so I don't tip over if I have only one leg on the ground--- but I will do it! It's a promise!

Love ya,

Tracie

NS Co-owner/moderator

From: Rose <mamadogrose@ hotmail.com>To: neurosarcoidosis@ yahoogroups. com; nsmods (AT) yahoogroups (DOT) comSent: Fri, April 23, 2010 7:24:01 PMSubject: from Rose Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's

what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or

grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now.

Ramblin' RoseModerator

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

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