Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Hi I am new to the support group and need help. I was diagnosed with sarcoidosis in 2002. And move to Kentucky from New Orleans after huricane Katrina. I think I have neurosarcoidosis. I was first diagnosed from a polyp that was removed from the orbit of my left eye. I have since been told that I have a putuitary tumor and I suffer with facial swelling(bells palsy), joint pain, limb numbness and tingling, poor vision, headaches, and trouble breathing. I have not been able to find a doctor who specializes in treating patients with sarcoidosis. I live in Lexington, KY. And I would welcome any help? Quote Link to comment Share on other sites More sharing options...
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