Re: desperately needing advice - Lawrence update

[Guest guest]

Dear Listmates,

I would like to tell you about some personal good news in

these tragic days.

Perhaps some of you remember my post a couple of days/weeks

ago under the subject *Desperately needing advice*.

First of all, I would like to thank everybody who responded,

either with advice or just with some kind words of sympathy.

I received quite a lot of useful thoughts and information. I

was not able to process them all yet, but I studied and will

study every letter very thoroughly.

In the meantime, I stopped some multivitamins that Lawrence

used to take in this bad period, containing too much niacin

and similar cholinergic /?/ compounds. A few days later I

began giving him DMG, to speed him up.

His condition was getting better day by day, especially his

movement problems improved quickly. He is still sleeping too

much, often more than 12 hours a day, but otherwise his

behavior is similar to that before the death of his

grandfather.

Unfortunately, I cannot take him to school yet because of his

sleeping habits, only on a few days when he goes to a very

good one-to-one complex theraphy.

There is only one medicine he is taking now, an SSRI, which he

has been taking for 6 years. I guess that there may be a

connection between this medicine and too much melatonin being

produced in his system. Maybe I am wrong. I shall try to

reduce this drug in the near future. /I do not want to change

too much factors at a time./

Perhaps there is a connection with his adolescence beginning

to take place, too; and/or the grieving process. Or the

opiates leaving his system because of the GFCF diet. I can

only guess. But I am quite happy with his process.

If anybody has any further idea on this sleeping abnormality,

please inform me. I can only hope that it is not some severe

disease... narcolepsy? :-(

So thanks again for everybody,s supporting posts.

Agnes in Hungary

(Lawrence, 13,5, non speaking autistic, Maurice, 10, NT,

little math prof,

, husband, 64, physycyst.)

Agnes in HUngary wrote:

.......

> Lawrence is in severe depression since the death of his

> grandfather. He sleeps

> too much: 12 hours or more almost every day. When this began

> /actually

> some weeks before the death of his grandfather/ I thought

his

> Haldol was no

> more necessary because of his therapies. I started to reduce

> the dose and then

> stop it. The reducing took place in about 6 weeks -- 2

months,

> from 40 drops

> to 10 drops/day. Then I slowed down, and later continued to

> give him 2 /!/

> drops per day for 3 more months. We became Haldol free 2

weeks

> ago.

>

> When reducing it, serious movement disorders/difficulties

> began with my

> son: he became very slow and could not well coordinate his

> movements. It

> was never characteristic for him; there have never been big

> problems with his

> great or fine motor abilities.

>

.......