Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 I do not think plaquniel alone is enough. it really helps with the brain fog. but I think you need to be on Imuran or one of the other meds ... that is just my Neuro's opinion. I was told that when he first started me on the plaquinel 7 years ago. Many blessings and hugs and a pain free day Rose, I'm on Remicade and was taken off Methotrexate due to increased liver enzymes, but I'm on Plaquanil, do you think that is enough. Marla May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) On Wed, Feb 18, 2009 at 12:42 AM, Rose <mamadogrose (AT) hotmail (DOT) com> wrote: Hey, Barb, that's great! You are on Methotrexate or something similar, right? Otherwise, you can form antibodies to the Remicade, which is bad news. Best of luck to you. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: beautybarnweber (AT) yahoo (DOT) comDate: Sat, 14 Feb 2009 03:28:16 +0000Subject: im approved!!!!! HELLO ALL,I JUST WANTED TO LET YOU KNOW I HAD MY VERY FIRST REMICADE INFUSION AT CLEVELAND CLINIC.MY INSURANCE ONLY TOOK 2 WEEKS FOR APPROVAL. I FEEL OK JUST TIRED AND VERY SWEATY. IS THIS NORMAL? I HAVE TO GO BACK IN 2 WEEKS, THEN 4 WEEKS AND EVERY 4 WEEKS AFTER THAT UNTIL AUGUST. HAPPY BIRTHDAY TO THOSE I HAVE MISSED. HOPE ALL IS WELL WITH EVERYONE . HAPPY VALENTINES DAY TO ALL!! BLESSINGS BARB See how Windows connects the people, information, and fun that are part of your life. See Now Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 , I am on Remicade too, they took me off the Methotrexate due to my liver, but my GI Doc said if needed I could go back on the Methotrexate, my Plum Doc wants to hold off, save it for a just in case, and My Rheum Doc, says I will be OK without it too. My Neuro said only that I needed to get on Remicade and soon:) am I missing any docs. And my Reg Doc wonders why I don't come in for a routine check up, I don't know about all of you, but by then I am just a little tired of docs:) how are you doing? Marla May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace. (Numbers 6:24-26) I do not think plaquniel alone is enough. it really helps with the brain fog. but I think you need to be on Imuran or one of the other meds ... that is just my Neuro's opinion. I was told that when he first started me on the plaquinel 7 years ago. Many blessings and hugs and a pain free day Rose, I'm on Remicade and was taken off Methotrexate due to increased liver enzymes, but I'm on Plaquanil, do you think that is enough. Marla May the Lord bless you and keep you,May the Lord make his face to shine upon You,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) Hey, Barb, that's great! You are on Methotrexate or something similar, right? Otherwise, you can form antibodies to the Remicade, which is bad news. Best of luck to you. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: beautybarnweber@... Date: Sat, 14 Feb 2009 03:28:16 +0000Subject: im approved!!!!! HELLO ALL,I JUST WANTED TO LET YOU KNOW I HAD MY VERY FIRST REMICADE INFUSION AT CLEVELAND CLINIC.MY INSURANCE ONLY TOOK 2 WEEKS FOR APPROVAL. I FEEL OK JUST TIRED AND VERY SWEATY. IS THIS NORMAL? I HAVE TO GO BACK IN 2 WEEKS, THEN 4 WEEKS AND EVERY 4 WEEKS AFTER THAT UNTIL AUGUST. HAPPY BIRTHDAY TO THOSE I HAVE MISSED. HOPE ALL IS WELL WITH EVERYONE . HAPPY VALENTINES DAY TO ALL!! BLESSINGS BARB See how Windows connects the people, information, and fun that are part of your life. See Now Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Hi, you mentioned all the docs with diff. opinions and diff meds. Same here - very frustrating! Hey, Barb, that's great! You are on Methotrexate or something similar, right? Otherwise, you can form antibodies to the Remicade, which is bad news. Best of luck to you. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis@ yahoogroups. comFrom: beautybarnweber@ yahoo.comDate: Sat, 14 Feb 2009 03:28:16 +0000Subject: im approved!!!! ! HELLO ALL,I JUST WANTED TO LET YOU KNOW I HAD MY VERY FIRST REMICADE INFUSION AT CLEVELAND CLINIC.MY INSURANCE ONLY TOOK 2 WEEKS FOR APPROVAL. I FEEL OK JUST TIRED AND VERY SWEATY. IS THIS NORMAL? I HAVE TO GO BACK IN 2 WEEKS, THEN 4 WEEKS AND EVERY 4 WEEKS AFTER THAT UNTIL AUGUST. HAPPY BIRTHDAY TO THOSE I HAVE MISSED. HOPE ALL IS WELL WITH EVERYONE . HAPPY VALENTINES DAY TO ALL!! BLESSINGS BARB See how Windows connects the people, information, and fun that are part of your life. See Now Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Quote Link to comment Share on other sites More sharing options...
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