Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 hello everyone, i went to a winterfest the day after my first infusion and was able to walk around unassisted for 8 and a half hours!!!! i have not been able to do that since july!! rose, i am on 20mg of prednisone (which they will start to ween me off on the 25th of this month!) 20mgs of arava, 20mgs of prilosec,and fosomax. is this the right meds so i do not build up antibodies? i went to physical therapy and did not get far due to the facial palsey , it led to spasms and breathlessness. does anyone have this problem? i was told by the therapist i need a 2 wheeled walker for now. ron sorry to hear about you having ms now my prayers are with you. marla i sent my insurance company the info you gave me about remicade and i think it helped with speedy approval plus i called everyday to push them. so if anyone is waiting approval push and push some more. hope all is well with everyone. tracie will you be back? i hope so! it has been kind of quiet on this support group! blessings for all, barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 Wow Barb you walked 8 and 1/2 hours, that is awesome, when you say winterfest does that mean cold weather, might sound like a dumb question, but I can't remember where you live, I say that because I would not be able to stay out in the cold for an hour without being in pain. I am so happy for you, I hope you continue to have great results. My next infusion is Friday, and I can tell I do a little better each time, but I still don't do cold well. Tracie will be back, she is just not feeling well these days, it's been hard for since the fires in the summer, but have no fear, she will be back. Keep up the good work Barb:) Marla May the Lord bless you and keep you, May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) hello everyone, i went to a winterfest the day after my first infusion and was able to walk around unassisted for 8 and a half hours!!!! i have not been able to do that since july!! rose, i am on 20mg of prednisone (which they will start to ween me off on the 25th of this month!) 20mgs of arava, 20mgs of prilosec,and fosomax. is this the right meds so i do not build up antibodies? i went to physical therapy and did not get far due to the facial palsey , it led to spasms and breathlessness. does anyone have this problem? i was told by the therapist i need a 2 wheeled walker for now. ron sorry to hear about you having ms now my prayers are with you. marla i sent my insurance company the info you gave me about remicade and i think it helped with speedy approval plus i called everyday to push them. so if anyone is waiting approval push and push some more. hope all is well with everyone. tracie will you be back? i hope so! it has been kind of quiet on this support group! blessings for all, barb Quote Link to comment Share on other sites More sharing options...
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