Re: I'm new to all of this and need help!

[Guest guest]

Hi ,

I know just what you mean, I also found this board so so helpful

after our daughter was born with cf. Which was a total shock, I

didn't even know what club foot was. I really thought that it was

something like polio that had been erradicated a long time ago,

pretty dumb huh lol. I found it so helpful to talk with the other

parents here especially in those first few months when we were going

through the casting and full time brace wear and my hormones were

raging, I spent a lot of time here during that period, it was really

good for me =)

Looking forward to taking a look at Mallory's pics (LOVE that name

btw). I am interested to see how her feet are spaced, this may be the

cause of the marks on her noncf. It could be that her noncf shoe is

too small also as was mentioned. Gracies left foot (noncf) is about a

half a size bigger than her right (cf) foot. But size differences

vary from child to child, do you notice that her left shoe is small

on her?

Will be able to offer more insightful comments after we see the pics

(make sure to send one of her lil face too OK).

Smiles,

& Grace 19mos

urcf FAB 13hrs

> > >

> > > Hello,

> > >

> > > I have a few questions....our daughter just received her DBB

this

> > > past Wednesday and has not been a very happy camper! She is

> > > developing pressure areas on her non-club foot on both sides of

> her

> > > ankle and the ball of her foot. We have tried changing the

type

> > of

> > > socks, using moleskin and blister bandaids and it doesn't seem

> to

> > > really make any difference. I'm probably a little paranoid

> > because

> > > our daughter was not casted properly by the first doctor and

> ended

> > up

> > > with a pressure sore from the cast that developed into

cellulits

> > and

> > > she had to hospitalized and on IV anti-biotics! And I don't

> want

> > to

> > > go down that road again!

> > >

> > > Thanks to your site we found out about the s shoes and

> > have

> > > been doing some research. The brace room " guy " associated

with

> > our

> > > doctor said that the s are more of an " ankle treatment "

> and

> > > he wasn't sure about the long-term success rate for cf.

> However,

> > I

> > > haven't seen that mentioned in any of your wonderfully

> enlightening

> > > emails! HELP!!! We want to do what is best for our daughter

> but

> > we

> > > also hate to see her so unhappy and uncomfortable!

> > >

> > > Any help you could offer would be greatly appreciated!

> > >

> > > Thanks,

> > >

> > > laura

> > >

> >

>