Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 I sent our doctor an email ratting us out. Hopefully, he will be able to communicate to my husband just how import following the protocol is to our son. Even if he has to wear the shoes for another two years, we're still getting off easier than my husband had it when he was treated for clubfeet as a child. I don't understand the motivation for intentionally not making him wear it. I know why I'm lazy about it - lack of sleep. But my husband stays home, and lack of sleep isn't a real issue. It's not the same as lying to your dentist about how often you floss. > > Here's a link to a recent post that Naomi made that had a bunch of > information about this: > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/39695 > (or type in 39695 in the message# box on the website). > Discarding the brace prior to age 2 is statistically the biggest > risk for relapse. I cannot tell you for sure if the curving on your > son's foot is a sign of relapse or just in-toeing/natural > curvature. There is some information on in-toeing in the files > section from Dr. son that might help you. Does the > foot sit flat on the floor? Does he still have the dorsiflexion > that he had initially? > What doctor is treating your son? If you're concerned about not > getting all the information that you need from your husband, you > could call your doctor's office and ask that your doctor call you > after the appointment to review his findings with you personally (or > call you on your cell phone while they're together if you'll be > somewhere that you can step out and take a call?). Or send a list > of questions with your husband and ask the doctor to either write > his responses on there or call/email you later to discuss. > I understand this completely because I would be in the same > situation if my husband had to take one of our kids to the doctor. > This is definitely important. You'll need to work with your doctor > to figure out how to get your son compliant with the brace and get > the necessary hours in. Maybe you need to increase his time in the > brace and get him used to wearing it again. You need to get him > used to it now so that you can keep him in it until age 4-5 as it's > the best insurance you have against a severe relapse needing > reconstructive surgery. > About the feet not being " perfect " , well, they should be *perfect* > from a functional standpoint. No pain and no limitations. From > an " aesthetic " standpoint, they may not look exactly like a non- > clubfoot, but this is going to be different from foot-to-foot and > kid to kid. Some kids have curvy toes and some have straight. You > can look at some of the pictures in the photos section to see if any > of the kids' feet look like your son's. You can see my daughter's > feet also if you're interested (birth through age 5)- the link to > the album is in the links section, or through our website (which > I'll paste below) on the photo gallery page. > Keep us posted! > & (3-16-00, left clubfoot) > > http://ponseticlubfoot.freeservers.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 It's hard to say what is up with his foot right now, but it's not a far reach to say that in the future you can expect the foot/feet to relapse quite a bit with out proper brace use. Then they will require more casting and FAB use if not surgery(s). The FAB is very critical to the long term success of his correction. As for " Perfect " feet - well a properly corrected club foot is hardly noticable compared to a normal foot. In most cases, if a person didn't know it was clubbed they wouldn't guess by looking at it (a properly corrected foot) as the child enters toddlerhood and beyond. What kind of issues is yoru son having with the FAB that doesn't allow him to sleep in it? Could his bar be too short? s. Recurrence after DBB I was wondering if anyone could shed some light on recurrence. My 1yo son has been wearing his DBB off and on for the last month (he doesn't sleep well wearing it, and neither do we). His feet look okay except that one foot has always curved in a bit more than the other. It's barely noticable and I don't think it will effect his ability to walk or run, but...is it normal to have that little bit of asymmetry? The doctors told me his feet would never be " perfect " . I just don't know what that means. He has his appointment tomorrow, but only my husband will be going and he's not very good at hearing what the doctor actually says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 You know the Bad Mommy that I am - I was going to let Everett have a " night off " at Thanksgiving...the silly little poot woudln't go to bed WITH OUT his brace on! LOL! He brought it to me! s. Recurrence after DBB I was wondering if anyone could shed some light on recurrence. My 1yo son has been wearing his DBB off and on for the last month (he doesn't sleep well wearing it, and neither do we). His feet look okay except that one foot has always curved in a bit more than the other. It's barely noticable and I don't think it will effect his ability to walk or run, but...is it normal to have that little bit of asymmetry? The doctors told me his feet would never be " perfect " . I just don't know what that means. He has his appointment tomorrow, but only my husband will be going and he's not very good at hearing what the doctor actually says. Quote Link to comment Share on other sites More sharing options...
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