Re: Please help- 2nd band or not???

[Guest guest]

Hi ,

My daughter wore a starband for 5 mo and graduated at 10 mo old. Her

head went from 96 to 85%. At 14 mo we did a follow up and her head was

the same - she had grown but it was all over so both length and width

increase and her head hadn't improved any. I still notice her brachy

and she is 3 yrs old now. Others won't notice it unless they are

hyper-aware like me, but I still wish it wasn't there. She definitely

has extra width and this hasn't improve even though she's been out of

her band over 2 years. I think if you're not happy with his head now,

do a second band. Otherwise you'll always be questioning yourself. Our

specialist (cranio facial plastic surgeon) recommends getting below

90% if at all possible. So based on that I would also recommend a 2nd

band. To be honest most peds aren't very experience with plagio/brachy

and trusting them when they say " it will round out " can be a mistake.

-christine

sydney, 3 yrs, starband grad

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> I wanted to see if I could get your opinion, my son has Brachy and

we had our progress visit last week at CT and we have about 1-2 weeks

left in the band. She told us at this point we could go either way and

not go wrong with either being done or getting a second band. She told

us if we got a 2nd band he would be in it for about 3 months and have

about 1 cm of growth- I asked her if we would notice that to the eye

and she told us not really. He started at 96.0 and is now 96.1 (But

the standard deviation based on age went from 4.46 to 2.75) so we are

about 2 standard deviations away from normal. We have had 2 CM of

growth in 6 weeks we started at 40.8 and are at 42.7. His Cranial

Vault Asymmetry went from 7 to 5.

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> She told us to take off the helmet for a few hours each day and see

what we think- can we live with it ect.. We did that and I keep

looking at other kids heads and at the end of the day his head will

never be perfect. I had to take him to the doctors for a cold on

Friday and I had the print out of before and after pics and

measurements and showed them to the doctor (we saw a different doc in

the group than our Primary doc) and he took one look and told us not

to do the 2nd band- he told us he has only ever had one person do 2

bands and that now that he was rolling ect- the rest would grow out

and he looks normal- told us to take that $ and put it in a college

fund.. ha ha but I wanted to see what you think. I can not figure out

how to upload the pics- any help let me know.

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> Do you think we should do a second band? He is only 6 months old. I

want to do the very best for him but with the CT doc telling us we

could not go wrong either way- we are fine. Please let me know your

thoughts and if anyone else could have done a 2nd band and did not? We

are hoping he has more growth this week too and that will help (he

only had 1 mm last week).

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> Thanks

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> Mom to Aidan 6 months and in DOC band for 6 weeks

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