Re: We're approaching 3yo...

[Guest guest]

Boy I dunno Kori - we all so long for the day of ditching the dang thing and yet

I understand your apprehension of not using it anymore six more months

couldn't hurt though.

s.

We're approaching 3yo...

And I'm starting to get nervous. Darbi's got an appointment on the

13th with Dr. Sussman. Who, if anyone remembers wanted to let her

discard the FAB at 17mo's. I refused, and said at least till 3. Now

I'm getting nervous as 3 is about 3 mo's away and I'm thinking

another 6mo's would be the best option for her. She was considered

mild at birth, corrected easily and has never had any issues with

relapse or correction. In fact... her foot looks about as normal as

can be except the heel which is more rounded than her non CF. She'll

be getting an x-ray at her appointment (well SEE if any bones are

crossed lol!). I am fairly certain that she would be fine with

discarding the FAB but I'm not entirely sure and it just seems to me

that it would be so much better and easier to play it safe and go to

3-1/2yo now. She can't hardly sleep without it and it's so much a

part of her life that it wouldn't be so much to just go the extra

6mo's. I don't think she'll need it past that though. I have a

feeling that even Dr. P. would say she could stop wearing it.

I'd be kicking myself big time if she did have a relapse though. It

would be very difficult to go back to it if that happened and I

really don't even want to risk the possibility. But then

again... she's in such good shape with this the chances are low.

Thoughts?

Kori

[Guest guest]

(grr, somehow my response got eaten. hope it doesn't show up twice.)

>

> so what you're saying is that maybe I should really consider 4y

> then?

That would be my inclination.. if she's doing fine with it, and it's

not a battle for her or for you, it's extra insurance against the

risk of a relapse, and all that would entail in an older kid.

About the hours.. as time went on with us, I watched the clock much

less. it truly became only 'while she slept', so it didn't trickle

over into daily life at all.

I can see your predicament about approval and Shriners, etc. If they

have a parent who wants to be conservative, I wonder why they'd

resist. yet I know you had to be armed for battle with them in the

past. (17 months.. yikes! so early.)

I was wondering something about the s. Was the original idea

in developing them that they were for those littler kids who were

having trouble, for whatever reason, wearing the standard brace, but

that as they got older they would go back to the Markell FAB? Or am I

wrong about that? Can the shoes be custom made up to any

size? or have none of the kids gotten old enough yet to be

at that point?

you should definitely write to Dr. Ponseti. I'm sure he'd be willing

to consult with you, esp. as related to the s, brace time,

etc. (It sounds like those issues have been on his mind especially as

of late..)