Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Remacade, can you please tell me your guys experience and side effects? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 I'll get back to you on the books. Marla Remacade, can you please tell me your guys experience and side effects? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Rick, I never gained any more weight since I started Remicade, I wonder if the is an individual thing? I was already on Methotrexate, and it worked great along with Plaquanil which I've been on for about 12 years, and the combo stop working for me, that is why I went on Remicade, benefits outweigh the side effects. The only time I really gained weight was when I was on Prednisone for 5 years, and yes it's hard to take off. also exercise for some of us is pretty limited. I can only do about 10-15 mins on the treadmill, and that's not enough, I can't be out in the Sun very long, as I break out in a flaming red rash, and feel like I have the flu, as for eating right I try. It's different for everyone, like I said I did really well on the Methotrexate for about 5 years, then it sort of stop working, and that's why I choose Remicade. I am so happy however, that it is working for you, I hope it works for you for a very long time! Blessings, Marla Hi, I opted to use Methotrexate instead of Remicade and I'm very happy I did. The majority of my original symptoms are gone, I'm able to work a 40 hr week. The thought of gaining 25-80lbs is out of the question. Being over weight only adds to our illness and creates others. Being overweight a killer for your heart and bones, increases blood pressure, sleeping and breathing problems, etc. Everyone's personal situation is different but I would only recommend Remicade once everything else has failed. Do everything you can to heal yourself, eat right, exercise and get plenty of natural vitamin D (sunshine). Just my opinion, but it's been working well for me for 2 1/2 years. feel well, Rick Remacade, can you please tell me your guys experience and side effects? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2009 Report Share Posted November 17, 2009 Rick, I didn't take it a knock on Remicade at all, I was just sharing my experience, we kept holding out on Remicade, as a last resort, the Methotrexate worked so well for me for many years, I've been off it due to increased liver enzymes, but I only have a fatty liver, so can go back on it, but again my doc wanted to wait until we really needed to, and we do now, more symptoms cropping up, I've been sick with bronchitis for the past 5 weeks, and he wanted to wait until I was completely over it before starting the Methotrexate again, if he does?? I hope so. Many things are better, for sure, but some things are still progressing, This is such an unfair disease to have, but that's life, and like you said keep the faith, I do. Thanks for sharing your thoughts we all appreciate them. Marla Hi Marla, I'm sorry that you've been battling this for so long. It's very possible I might wind up on Remicade someday. I'm not knocking Remicade, it has done wonders for many, I'm just avoiding it. From observing posts here I've concluded that everyone has their own individual symptoms and remedies. Doctors don't really have a clue about NS yet, it's all trial and error and we are their guinea pigs. It's important to follow your own instincts and keep faith. I wish you the very best, Rick Remacade, can you please tell me your guys experience and side effects? Quote Link to comment Share on other sites More sharing options...
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