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Re: I'm nervous!! Back to the Ortho

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Good luck to you and Aidan, Lynne!

lynnekruchten wrote: Well my son Aidan goes to

the Ortho tomorrow and I am hoping that he

will finally have his hours reduced in the DBB. He is still currently

23/7 at almost 10 months of age.

He had his second tenotomy in November and casts removed December

22nd. I couldn't believe how great his feet looked. I think they grew

2 sizes. I've learned in the last year never to anticipate what will

happen at these Ortho visits because I am almost always blindsided.

I just wanted to vent some of my nervous energy in the hopes to calm

myself.

Thanks to everyone for all your support over the last 10 months. What

a year!!

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Good luck! Hope Aidan get his hours reduced, I remember when Grace

got her hours reduced, I felt like having a party to celebrate =)

& Grace

>

> Well my son Aidan goes to the Ortho tomorrow and I am hoping that

he

> will finally have his hours reduced in the DBB. He is still

currently

> 23/7 at almost 10 months of age.

>

> He had his second tenotomy in November and casts removed December

> 22nd. I couldn't believe how great his feet looked. I think they

grew

> 2 sizes. I've learned in the last year never to anticipate what

will

> happen at these Ortho visits because I am almost always blindsided.

>

> I just wanted to vent some of my nervous energy in the hopes to

calm

> myself.

>

> Thanks to everyone for all your support over the last 10 months.

What

> a year!!

>

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Have you been helping him stand when he's in the shoes? We did that

with Aleksander when he first got them (he was around 4 months old

then, I think). Now, he's just about 14 months and stands in his

shoes all the time. He even likes to try to walk in them if we hold

his hands.

He never had any problems rolling over or crawling in them.

It does seem strange though that you can't reduce the hours at all.

How do they expect him to learn to stand if you can't take the shoes

off?

> > > >

> > > > Well my son Aidan goes to the Ortho tomorrow and I am hoping

> that

> > >he

> > > > will finally have his hours reduced in the DBB. He is still

> > >currently

> > > > 23/7 at almost 10 months of age.

> > > >

> > > > He had his second tenotomy in November and casts removed

> December

> > > > 22nd. I couldn't believe how great his feet looked. I

think

> they

> > >grew

> > > > 2 sizes. I've learned in the last year never to anticipate

what

> > >will

> > > > happen at these Ortho visits because I am almost always

> blindsided.

> > > >

> > > > I just wanted to vent some of my nervous energy in the hopes

to

> > >calm

> > > > myself.

> > > >

> > > > Thanks to everyone for all your support over the last 10

months.

> > >What

> > > > a year!!

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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I really agree with you here Lynn. 6 mos of full time wear is a long

time. Understandable perhaps because he had a second tenotomy, may I

ask why btw but really Dr. Ponseti has set up bracing protocols that

work and I am sure that he would be erring on the side of caution so

I really don't understand why your ortho would want your son to

continue at 23/7 when he could reduce you to 20 hrs for a bit then to

18 etc al a.

I have heard of a few kids that were recommended by their ortho's

(not proper Ponseti protocol in most cases though) to wear the brace

23/7 untill they were pulling up and cruising hopefully one of their

parents will see your post and comment.

In my opinion, an ortho who follows protocols would not have your son

in the brace this long. I would cite the global help booklet (you

will find it in the files section) and Dr. Ponseti's bracing

protocol's as a reference and any info your PT could give also. Your

little guy needs time out of the brace to learn to pull up and cruise

at this point.

See what your ortho then has to say. If it is not what you want to

hear, you could always email Dr. Ponseti with your sons history and

some pics and ask his advise and then just lower the hours gradually

on your own. There aren't any 'bracing police' kwim?

Let us know when you hear back and hope you can reduce soon =)

& Grace

> > > >

> > > > Well my son Aidan goes to the Ortho tomorrow and I am hoping

> that

> > >he

> > > > will finally have his hours reduced in the DBB. He is still

> > >currently

> > > > 23/7 at almost 10 months of age.

> > > >

> > > > He had his second tenotomy in November and casts removed

> December

> > > > 22nd. I couldn't believe how great his feet looked. I think

> they

> > >grew

> > > > 2 sizes. I've learned in the last year never to anticipate

what

> > >will

> > > > happen at these Ortho visits because I am almost always

> blindsided.

> > > >

> > > > I just wanted to vent some of my nervous energy in the hopes

to

> > >calm

> > > > myself.

> > > >

> > > > Thanks to everyone for all your support over the last 10

months.

> > >What

> > > > a year!!

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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