Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Hi guys.. i finally was able to post picsof Jakes foot. Just a reminder.. this was my initial post.. My son was born with clubfoot of the right foot. He went thru the Ponseti casting, and then issued the Denis Browne Bar and shoes. We could not get that boy to keep those shoes on for more than a few hours no matter how or what we tried. For over a month, we tried so many different things. His foot started turning back in, so the orthopedist started the casting again. After 2 additional weeks, the casting was relieved and a foam mold was taken of his feet for a special pair of new sandals Dr Ponseti just came out with. They get fitted next Friday.. My only concern is, the reason we couldnt (and unfortunately still cant) get his shoes to stay on him, is that his foot wont go flat enough against the bottom of the shoes. His heel stays close to the top of the shoe, making it very easy for him to pull his foot out. I cant bend his foot up enough to make it completely flat. I dont know if i should request the casting be restarted (yet again...) or perhaps opt for surgery. (which i want to stay away from.. i've heard too many horror stories about kids and adults getting this procedure only to have pain for numerous years.) I feel like I am at fault for not being dillegent enough, though i have tried and tried.. everytime the shoes do get put on him, he cries so much he passes out, only to wake up an hour later, in pain and i assume with cramps in his feet, and starts screaming again.. a mother can only handle so much..i feel like a bad parent for intentionally causing her baby so much undeserved pain.. Somebody please off some advice, as i am at my wits end. Rowe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Hi , Is that all you can get his foot to dorsiflex? If so, wow. Of course you can't get the shoes on him. The new ones won't work either. Did he have the tenotomy? If so, it didn't work. You see how his non-affected foot dorsiflexes? The Clubfoot should do that too. Or at least past " L " (neutral - 0 degrees) 5 degrees. Preferably 10-15 degrees which is about where his other foot is dorsiflexing to. Where are you located? What does the doc say about this? Does he suggest the tenotomy and you are not wanting to do that? If so, know that 85% of Ponseti kids have the tenotomy and it really is a good thing. That tendon has to flex if that foot is to sit flat in the shoes. There is little or no reason to even bother with shoes without dorsiflexion. Can you tell us more about all this and why he's not been corrected fully? Do you have pictures of his casts? his last cast? You really can't expect any shoes to work with this foot. It needs to be fully corrected and if that means tenotomy, or another doctor, we can help you. There IS a solution to this so hang in there and we'll help you figure it out. Kori At 08:53 PM 2/12/2006, you wrote: >Hi guys.. i finally was able to post picsof Jakes foot. Just a >reminder.. this was my initial post.. > >My son was born with clubfoot of the right foot. He went thru the >Ponseti casting, and then issued the Denis Browne Bar and shoes. We >could not get that boy to keep those shoes on for more than a few >hours no matter how or what we tried. For over a month, we tried so >many different things. His foot started turning back in, so the >orthopedist started the casting again. After 2 additional weeks, the >casting was relieved and a foam mold was taken of his feet for a >special pair of new sandals Dr Ponseti just came out with. They get >fitted next Friday.. My only concern is, the reason we couldnt (and >unfortunately still cant) get his shoes to stay on him, is that his >foot wont go flat enough against the bottom of the shoes. His heel >stays close to the top of the shoe, making it very easy for him to >pull his foot out. I cant bend his foot up enough to make it >completely flat. I dont know if i should request the casting be >restarted (yet again...) or perhaps opt for surgery. (which i want >to stay away from.. i've heard too many horror stories about kids >and adults getting this procedure only to have pain for numerous >years.) I feel like I am at fault for not being dillegent enough, >though i have tried and tried.. everytime the shoes do get put on >him, he cries so much he passes out, only to wake up an hour later, >in pain and i assume with cramps in his feet, and starts screaming >again.. a mother can only handle so much..i feel like a bad parent >for intentionally causing her baby so much undeserved pain.. > >Somebody please off some advice, as i am at my wits end. > Rowe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 , Based on the pictures you have provided, I would have to say that 's foot does not look very well corrected. After the last cast, the affected foot should look and function very much like the unaffected foot. There should certainly be much, much more dorsiflexion. The shoes--even the s--aren't going to do your little fellow any good unless his foot is corrected in the first place. Have you been trying to use the Markells since the second round of casting while you are waiting for the s to come? If he has been without casts or brace for some time (even for a couple of days), it's possible that he is losing correction and that he will need to be recasted prior to going into the shoes. Unfortunately for so many babies and their parents, lack of correction before going into the DBB/FAB is a common problem. These babies cannot wear the brace properly, some wind up with awful sores, most need to have additional casting. Fortunately, there are more and more experienced Ponseti method doctors throughout the country who are able to correct feet quickly and correctly. If you let us know where you are located, we can direct you to one of these doctors near you. There are many other options to exhaust before considering surgery. We're wishing the best for you and . You are a wonderful mother--it shows in how much you hate to have your son be in pain and how you are looking for ways to fix what is wrong. Hugs to both of you. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 12/7) wrote: Hi guys.. i finally was able to post picsof Jakes foot. Just a reminder.. this was my initial post.. My son was born with clubfoot of the right foot. He went thru the Ponseti casting, and then issued the Denis Browne Bar and shoes. We could not get that boy to keep those shoes on for more than a few hours no matter how or what we tried. For over a month, we tried so many different things. His foot started turning back in, so the orthopedist started the casting again. After 2 additional weeks, the casting was relieved and a foam mold was taken of his feet for a special pair of new sandals Dr Ponseti just came out with. They get fitted next Friday.. My only concern is, the reason we couldnt (and unfortunately still cant) get his shoes to stay on him, is that his foot wont go flat enough against the bottom of the shoes. His heel stays close to the top of the shoe, making it very easy for him to pull his foot out. I cant bend his foot up enough to make it completely flat. I dont know if i should request the casting be restarted (yet again...) or perhaps opt for surgery. (which i want to stay away from.. i've heard too many horror stories about kids and adults getting this procedure only to have pain for numerous years.) I feel like I am at fault for not being dillegent enough, though i have tried and tried.. everytime the shoes do get put on him, he cries so much he passes out, only to wake up an hour later, in pain and i assume with cramps in his feet, and starts screaming again.. a mother can only handle so much..i feel like a bad parent for intentionally causing her baby so much undeserved pain.. Somebody please off some advice, as i am at my wits end. Rowe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Hi - my son Hayden had a similar experience with the Markell shoes initially because his feet were not corrected. We switched doctors and he recently went into the Markells again temporarily until we could get his s in (the Ponseti shoes you referred to). I am going to upload a list of suggestions passed on to myself by a Mom in England to get the shoes on properly. It is compiled by parents. We have found the s to be really great - Hayden has no problem with us putting them on and they are very comfortable and lightweight. I wish you luck! wrote: Hi guys.. i finally was able to post picsof Jakes foot. Just a reminder.. this was my initial post.. My son was born with clubfoot of the right foot. He went thru the Ponseti casting, and then issued the Denis Browne Bar and shoes. We could not get that boy to keep those shoes on for more than a few hours no matter how or what we tried. For over a month, we tried so many different things. His foot started turning back in, so the orthopedist started the casting again. After 2 additional weeks, the casting was relieved and a foam mold was taken of his feet for a special pair of new sandals Dr Ponseti just came out with. They get fitted next Friday.. My only concern is, the reason we couldnt (and unfortunately still cant) get his shoes to stay on him, is that his foot wont go flat enough against the bottom of the shoes. His heel stays close to the top of the shoe, making it very easy for him to pull his foot out. I cant bend his foot up enough to make it completely flat. I dont know if i should request the casting be restarted (yet again...) or perhaps opt for surgery. (which i want to stay away from.. i've heard too many horror stories about kids and adults getting this procedure only to have pain for numerous years.) I feel like I am at fault for not being dillegent enough, though i have tried and tried.. everytime the shoes do get put on him, he cries so much he passes out, only to wake up an hour later, in pain and i assume with cramps in his feet, and starts screaming again.. a mother can only handle so much..i feel like a bad parent for intentionally causing her baby so much undeserved pain.. Somebody please off some advice, as i am at my wits end. Rowe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 My daughter too was not fully corrected before going into the Markells. Alls she would do was scream, and this is not like her at all. I too felt like I was doing something wrong, like I was at fault, and such. I know how you feel! But it was NOT, and is NOT your fault either. Your son is not fully corrected, and NO FAB will work until he is! Please tell us more about what has been done so far for treatment with him so that we can understand better. Christee Mother of... *Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning & Speech disorders (9yrs old) **Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old) ***Dylan, (4 yrs old) & ****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R foot) & Mild/Moderate Metatarsus Adductus (L foot). *Ponseti/ Brace 18/24. --------------------------------- Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi ! I agree with both Kori and Naomi. His foot doesn't look quite corrected yet. Needs more dorsiflexion...and it looks like that Anterior tendon is really pulling that foot up and in right now too. More casting is always the safest way to go. Your are SOOO doing the right thing there! A couple more questions (I have to ask). Your son's foot looks a bit thick to me. Can you tell if your son has a crease that runs horizontal across the sole of his foot... or perhaps residual creases on the inside-middle of his foot? Does his big toe tend to point up like that all the time? We too experienced this with our son. However, he has atypical cf. Because his foot was so fat... and his arch so high the actual degree of dorsflexion was deceptive. He never had to have second tenotomies, but he will be in the 's for the duration of his bracing. Markell's will never... well, with very few exceptions...work with atypical feet. Anyway... will shut up now and wait for your next postings. Faith > Hi guys.. i finally was able to post picsof Jakes foot. Just a > reminder.. this was my initial post.. > > My son was born with clubfoot of the right foot. He went thru the > Ponseti casting, and then issued the Denis Browne Bar and shoes. We > could not get that boy to keep those shoes on for more than a few > hours no matter how or what we tried. For over a month, we tried so > many different things. His foot started turning back in, so the > orthopedist started the casting again. After 2 additional weeks, the > casting was relieved and a foam mold was taken of his feet for a > special pair of new sandals Dr Ponseti just came out with. They get > fitted next Friday.. My only concern is, the reason we couldnt (and > unfortunately still cant) get his shoes to stay on him, is that his > foot wont go flat enough against the bottom of the shoes. His heel > stays close to the top of the shoe, making it very easy for him to > pull his foot out. I cant bend his foot up enough to make it > completely flat. I dont know if i should request the casting be > restarted (yet again...) or perhaps opt for surgery. (which i want > to stay away from.. i've heard too many horror stories about kids > and adults getting this procedure only to have pain for numerous > years.) I feel like I am at fault for not being dillegent enough, > though i have tried and tried.. everytime the shoes do get put on > him, he cries so much he passes out, only to wake up an hour later, > in pain and i assume with cramps in his feet, and starts screaming > again.. a mother can only handle so much..i feel like a bad parent > for intentionally causing her baby so much undeserved pain.. > > Somebody please off some advice, as i am at my wits end. > Rowe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 My fosterson the same way he been in the DBB twice so far the doctor thought I was stupid when I told him all he does is scream that something is wrong I called one Wed they told me to come in next Wed so I did that the orthotics put more padding in the shoe then we went to see the doctor at Children he brought the shoes in some told me to come back next Wed so I did that had the shoe on him he said the heel wasn't all the way down he tried to put the heel down in the shoe and he couldn't get his heel all the way down so he said back to cast the 3rd time back in cast. Trying to get hime to the Shriner hospital for a second opinion. Larissa and Christee wrote: My daughter too was not fully corrected before going into the Markells. Alls she would do was scream, and this is not like her at all. I too felt like I was doing something wrong, like I was at fault, and such. I know how you feel! But it was NOT, and is NOT your fault either. Your son is not fully corrected, and NO FAB will work until he is! Please tell us more about what has been done so far for treatment with him so that we can understand better. Christee Mother of... *Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning & Speech disorders (9yrs old) **Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old) ***Dylan, (4 yrs old) & ****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R foot) & Mild/Moderate Metatarsus Adductus (L foot). *Ponseti/ Brace 18/24. --------------------------------- Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 My fosterson the same way he been in the DBB twice so far the doctor thought I was stupid when I told him all he does is scream that something is wrong I called one Wed they told me to come in next Wed so I did that the orthotics put more padding in the shoe then we went to see the doctor at Children he brought the shoes in some told me to come back next Wed so I did that had the shoe on him he said the heel wasn't all the way down he tried to put the heel down in the shoe and he couldn't get his heel all the way down so he said back to cast the 3rd time back in cast. Trying to get hime to the Shriner hospital for a second opinion. Larissa and Christee wrote: My daughter too was not fully corrected before going into the Markells. Alls she would do was scream, and this is not like her at all. I too felt like I was doing something wrong, like I was at fault, and such. I know how you feel! But it was NOT, and is NOT your fault either. Your son is not fully corrected, and NO FAB will work until he is! Please tell us more about what has been done so far for treatment with him so that we can understand better. Christee Mother of... *Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning & Speech disorders (9yrs old) **Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old) ***Dylan, (4 yrs old) & ****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R foot) & Mild/Moderate Metatarsus Adductus (L foot). *Ponseti/ Brace 18/24. --------------------------------- Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi , I'm so sorry to hear what you're going through. You are not a bad parent. This is all a learning experience for us too, as parents. You mentioned that your son went through the Ponseti casting. Was the treatment done by a Ponseti certified doctor? Was a tenotomy (a small incision just above the heel to lengthen the heel cord) done? It sounds as though that may not have been done if your son cannot get his foot flat in the shoe. The foot should be able to dorsiflex about 15 degrees. That means, when the foot is flat, you should be able to bring it up by another 15 degrees. If not, then his heel cord is too tight. The tenotomy will take care of this. It is not considered a true surgery. It is a very tiny incision done under a local anesthetic. If he has had it done, then quite possibly, it was not done correctly or the cast applied after the tenotomy was not applied correctly. You may want to ask your doc about this, better yet, see a Ponseti certified doc to make sure it is done correctly. Here is the link for Dr. Ponseti's site: http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clubfeet/inde\ x.html wrote: Hi guys.. i finally was able to post picsof Jakes foot. Just a reminder.. this was my initial post.. My son was born with clubfoot of the right foot. He went thru the Ponseti casting, and then issued the Denis Browne Bar and shoes. We could not get that boy to keep those shoes on for more than a few hours no matter how or what we tried. For over a month, we tried so many different things. His foot started turning back in, so the orthopedist started the casting again. After 2 additional weeks, the casting was relieved and a foam mold was taken of his feet for a special pair of new sandals Dr Ponseti just came out with. They get fitted next Friday.. My only concern is, the reason we couldnt (and unfortunately still cant) get his shoes to stay on him, is that his foot wont go flat enough against the bottom of the shoes. His heel stays close to the top of the shoe, making it very easy for him to pull his foot out. I cant bend his foot up enough to make it completely flat. I dont know if i should request the casting be restarted (yet again...) or perhaps opt for surgery. (which i want to stay away from.. i've heard too many horror stories about kids and adults getting this procedure only to have pain for numerous years.) I feel like I am at fault for not being dillegent enough, though i have tried and tried.. everytime the shoes do get put on him, he cries so much he passes out, only to wake up an hour later, in pain and i assume with cramps in his feet, and starts screaming again.. a mother can only handle so much..i feel like a bad parent for intentionally causing her baby so much undeserved pain.. Somebody please off some advice, as i am at my wits end. Rowe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi , I would mirror everthing that has been said, just wanted to send ya a quick note of encouragment =). It should be very easy for an experienced Ponseti doctor to get his foot fully corrected. My guess would be a tenotomy and one or maybe two casts and that will be it! I think that it is important for you to get Jake in the hands of someone 'experienced' in the method. I say this because your current doctor has put your son in the brace with uncorrected feet and that will never never work. Let us know where you live and we can help you to find a doctor that will have you on track and in the shoes (with fully corrected feet) in no time! There is NO need for surgery, and it may seem amazing that a great Ponseti doctor could get these results so fast but it is true, I promise you =). Glad that you are here and we would love to help you get Jake to a better doctor and get his lil foot fixed! Smiles, & Grace 18mos Unilateral Right Club foot (corrected in 4 casts by Dr. Pirani - Ponseti certified) now wears her 'nighty night shoes' 13hrs/day > > Hi guys.. i finally was able to post picsof Jakes foot. Just a > reminder.. this was my initial post.. > > My son was born with clubfoot of the right foot. He went thru the > Ponseti casting, and then issued the Denis Browne Bar and shoes. We > could not get that boy to keep those shoes on for more than a few > hours no matter how or what we tried. For over a month, we tried so > many different things. His foot started turning back in, so the > orthopedist started the casting again. After 2 additional weeks, the > casting was relieved and a foam mold was taken of his feet for a > special pair of new sandals Dr Ponseti just came out with. They get > fitted next Friday.. My only concern is, the reason we couldnt (and > unfortunately still cant) get his shoes to stay on him, is that his > foot wont go flat enough against the bottom of the shoes. His heel > stays close to the top of the shoe, making it very easy for him to > pull his foot out. I cant bend his foot up enough to make it > completely flat. I dont know if i should request the casting be > restarted (yet again...) or perhaps opt for surgery. (which i want > to stay away from.. i've heard too many horror stories about kids > and adults getting this procedure only to have pain for numerous > years.) I feel like I am at fault for not being dillegent enough, > though i have tried and tried.. everytime the shoes do get put on > him, he cries so much he passes out, only to wake up an hour later, > in pain and i assume with cramps in his feet, and starts screaming > again.. a mother can only handle so much..i feel like a bad parent > for intentionally causing her baby so much undeserved pain.. > > Somebody please off some advice, as i am at my wits end. > Rowe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 's feet are atypical, according to Dr. Ponseti, even though they aren't short or fat and have no creases in the arch. They are atypical because of the involvement of the plantar intrinsics, which causes her toes to curve under sharply and her big toes to curve toward the rest of the toes. Also, she had metatarsus adductus in addition to bilateral club feet. So evidently the atypical feet don't have to be short and fat. The Markells did not work with because of these issues. They gave her a pressure sore in 24 hours which took a month to fully go away. So she is in the s now, which are working much better for us. I think that any baby with something atypical about their feet would be better off in the s. They are also lighter weight than the Markells and are easier for parents to put on and take off, in my opinion. I am glad that we made the change and have no regrets. Just our experience, anyway. Carol and , bcf Re: Dorsiflextion Hi ! I agree with both Kori and Naomi. His foot doesn't look quite corrected yet. Needs more dorsiflexion...and it looks like that Anterior tendon is really pulling that foot up and in right now too. More casting is always the safest way to go. Your are SOOO doing the right thing there! A couple more questions (I have to ask). Your son's foot looks a bit thick to me. Can you tell if your son has a crease that runs horizontal across the sole of his foot... or perhaps residual creases on the inside-middle of his foot? Does his big toe tend to point up like that all the time? We too experienced this with our son. However, he has atypical cf. Because his foot was so fat... and his arch so high the actual degree of dorsflexion was deceptive. He never had to have second tenotomies, but he will be in the 's for the duration of his bracing. Markell's will never... well, with very few exceptions...work with atypical feet. Anyway... will shut up now and wait for your next postings. Faith > Hi guys.. i finally was able to post picsof Jakes foot. Just a > reminder.. this was my initial post.. > > My son was born with clubfoot of the right foot. He went thru the > Ponseti casting, and then issued the Denis Browne Bar and shoes. We > could not get that boy to keep those shoes on for more than a few > hours no matter how or what we tried. For over a month, we tried so > many different things. His foot started turning back in, so the > orthopedist started the casting again. After 2 additional weeks, the > casting was relieved and a foam mold was taken of his feet for a > special pair of new sandals Dr Ponseti just came out with. They get > fitted next Friday.. My only concern is, the reason we couldnt (and > unfortunately still cant) get his shoes to stay on him, is that his > foot wont go flat enough against the bottom of the shoes. His heel > stays close to the top of the shoe, making it very easy for him to > pull his foot out. I cant bend his foot up enough to make it > completely flat. I dont know if i should request the casting be > restarted (yet again...) or perhaps opt for surgery. (which i want > to stay away from.. i've heard too many horror stories about kids > and adults getting this procedure only to have pain for numerous > years.) I feel like I am at fault for not being dillegent enough, > though i have tried and tried.. everytime the shoes do get put on > him, he cries so much he passes out, only to wake up an hour later, > in pain and i assume with cramps in his feet, and starts screaming > again.. a mother can only handle so much..i feel like a bad parent > for intentionally causing her baby so much undeserved pain.. > > Somebody please off some advice, as i am at my wits end. > Rowe > > > > > > Quote Link to comment Share on other sites More sharing options...
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