Re: 2 questions for all and anyone in Casron City or Reno, Nevada

[Guest guest]

Hi Holly,

I can only answer your second question. My twins were

born 7 weeks early and spent 3 weeks in NICU. Before

they were even born I emailed Dr Ponseti about it and

he said that treatment should start once the baby is

stable and/or out of NICU.

I think ideally it should start within the first few

weeks up to the first 6 months but there are cases of

2-year-olds and even older kids that were treated

successfully.

Hope this helps,

with (3y)

and Alister (3y, RCF, Ponseti method, UK)

--- holly wrote:

> Well it's been a long time since I've posted, but I

> know of some1 who's

> going to have a baby with both feet clubbed and the

> baby has other

> complications to so it'll be in the hospital for

> awhile after it's

> born. I've got two questions the first is: Is there

> a Ponseti qualified

> DR or hospital in Carson City, NV? I know I can look

> at the website

> that is set up, but my DR isn't on it and he is

> Ponseti so that's why

> I'm asking so if anyone in Carson can let me know

> where I could direct

> her to go. My second question is can the process of

> correcting begin

> after the baby is out of the NICU? Basically can it

> start for older

> children like over a year but younger than 4 since

> the baby will have

> to be in the NICU and the family might want to wait

> to fix the baby's

> feet because of costs and suffering (not that the

> ponseti method causes

> suffering it's just easier sometimes to focus on one

> problem at a

> time). Thanks in advance I know someone will help.

>

> Holly mom of athan LCF DBB naps and nights

>

>

>

>

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[Guest guest]

I'm not sure how long is " too long " but I've heard several times to let the baby

recover from his other issues first, I mean if they are critical things such as

a heart surgery or something, kwim? It may have a lot to do with the actual

issues at hand so perhaps a note to Iowa would be in order to get a straight

answer for this particular baby's case.

I'm realy sorry to hear your friend is going to have such a rough go of it and

we'll sure be sending happy thoughts that her baby will recover quickly.

s

2 questions for all and anyone in Casron City or

Reno, Nevada

Well it's been a long time since I've posted, but I know of some1 who's

going to have a baby with both feet clubbed and the baby has other

complications to so it'll be in the hospital for awhile after it's

born. I've got two questions the first is: Is there a Ponseti qualified

DR or hospital in Carson City, NV? I know I can look at the website

that is set up, but my DR isn't on it and he is Ponseti so that's why

I'm asking so if anyone in Carson can let me know where I could direct

her to go. My second question is can the process of correcting begin

after the baby is out of the NICU? Basically can it start for older

children like over a year but younger than 4 since the baby will have

to be in the NICU and the family might want to wait to fix the baby's

feet because of costs and suffering (not that the ponseti method causes

suffering it's just easier sometimes to focus on one problem at a

time). Thanks in advance I know someone will help.

Holly mom of athan LCF DBB naps and nights

[Guest guest]

I am not sure if this will help or not.... I had my girls 8 weeks early and they

had to spend some time in the NICU... the one with the club foot had to stay for

4 1/2 weeks.... we didn't really know if she had other complications at the

time... on ultrasound they thought there could have been some really major

things going on.... so when she was born we were very scared and of course

because of coming so early it just added to that..... so when she was born she

was on a ventilator but only for 12 hours so that was awesome but she couldn't

feed by bottle for about 10 days... only a feeding tube because they didn't want

her to use up to many calories (as a girl, I am sure she will never be told that

again, right???) ...so she was on Oxygen, a montitor, a feeding tube and some

other little things... it was very tough.... but she did amazingly well but when

she came home, she came with a monitor and also had to start casting right

away..... the Ortho didn't want to start while she was

in the hospital... they want to get them stabilzed first.... so now looking

back I think we could have waited a couple of weeks but I thought that her being

in for a month was to long... so anyways, all in all things have gone great....

of course there have been a few bumps in the road but with your friend it is

hard to say exactly what to do because of not knowing the babies situation when

it is born but it will be a good idea to just get him stabalized first and I am

sure any pediatric ortho would say the same... then start casting....one great

thing to tell her is to do the 'Kangarooing'.... if you want to know more let me

know.. it is a great way to bond with your baby while in the NICU....I think it

helped Avery so much to get better sooner!!!.... Best of luck to your friend...I

hope this helped a little....

holly wrote:

Well it's been a long time since I've posted, but I know of some1 who's

going to have a baby with both feet clubbed and the baby has other

complications to so it'll be in the hospital for awhile after it's

born. I've got two questions the first is: Is there a Ponseti qualified

DR or hospital in Carson City, NV? I know I can look at the website

that is set up, but my DR isn't on it and he is Ponseti so that's why

I'm asking so if anyone in Carson can let me know where I could direct

her to go. My second question is can the process of correcting begin

after the baby is out of the NICU? Basically can it start for older

children like over a year but younger than 4 since the baby will have

to be in the NICU and the family might want to wait to fix the baby's

feet because of costs and suffering (not that the ponseti method causes

suffering it's just easier sometimes to focus on one problem at a

time). Thanks in advance I know someone will help.

Holly mom of athan LCF DBB naps and nights

[Guest guest]

I've told her that the biggest thing is to just wait until the baby

is born and they'll know more then. My son was in the NICU too for

only 10 days and he wasn't too critical. I don't know what

Kangarooing is so I would like to know more about it. I did send the

March Of Dimes website to my sister who's friend it is, I actually

don't even know the women. Thanks to all for helping

Holly

Mom of atahn LCF DBB naps and nights

>

> I am not sure if this will help or not.... I had my girls 8 weeks

early and they had to spend some time in the NICU... the one with

the club foot had to stay for 4 1/2 weeks.... we didn't really know

if she had other complications at the time... on ultrasound they

thought there could have been some really major things going on....

so when she was born we were very scared and of course because of

coming so early it just added to that..... so when she was born she

was on a ventilator but only for 12 hours so that was awesome but

she couldn't feed by bottle for about 10 days... only a feeding tube

because they didn't want her to use up to many calories (as a girl,

I am sure she will never be told that again, right???) ...so she was

on Oxygen, a montitor, a feeding tube and some other little

things... it was very tough.... but she did amazingly well but when

she came home, she came with a monitor and also had to start casting

right away..... the Ortho didn't want to start while she was

> in the hospital... they want to get them stabilzed first.... so

now looking back I think we could have waited a couple of weeks but

I thought that her being in for a month was to long... so anyways,

all in all things have gone great.... of course there have been a

few bumps in the road but with your friend it is hard to say exactly

what to do because of not knowing the babies situation when it is

born but it will be a good idea to just get him stabalized first and

I am sure any pediatric ortho would say the same... then start

casting....one great thing to tell her is to do

the 'Kangarooing'.... if you want to know more let me know.. it is a

great way to bond with your baby while in the NICU....I think it

helped Avery so much to get better sooner!!!.... Best of luck to

your friend...I hope this helped a little....

>

>

[Guest guest]

My son was in the NICU for about 2 weeks. He was early, and the

nurses there told us about kangarooing. It was great for

Aleksander. Really made him feel secure (I think!). It is when you

hold the baby skin-to-skin, against your chest. Baby is usually in

just a diaper (and wires), and if you wear a button up shirt, it

works well for you too. I continued to hold him like that even

after I brought him home, but I was wearing a tank top then. Too

cold in MN in December not to have anything on! Brrr....especially

in an old house.

Also, he didn't get his first set of casts until December 23rd. He

was born on November 24th, so that was nearly a month later. He's 1

now and his feet are just fine.

> >

> > I am not sure if this will help or not.... I had my girls 8

weeks

> early and they had to spend some time in the NICU... the one with

> the club foot had to stay for 4 1/2 weeks.... we didn't really

know

> if she had other complications at the time... on ultrasound they

> thought there could have been some really major things going

on....

> so when she was born we were very scared and of course because of

> coming so early it just added to that..... so when she was born

she

> was on a ventilator but only for 12 hours so that was awesome but

> she couldn't feed by bottle for about 10 days... only a feeding

tube

> because they didn't want her to use up to many calories (as a

girl,

> I am sure she will never be told that again, right???) ...so she

was

> on Oxygen, a montitor, a feeding tube and some other little

> things... it was very tough.... but she did amazingly well but

when

> she came home, she came with a monitor and also had to start

casting

> right away..... the Ortho didn't want to start while she was

> > in the hospital... they want to get them stabilzed first.... so

> now looking back I think we could have waited a couple of weeks

but

> I thought that her being in for a month was to long... so anyways,

> all in all things have gone great.... of course there have been a

> few bumps in the road but with your friend it is hard to say

exactly

> what to do because of not knowing the babies situation when it is

> born but it will be a good idea to just get him stabalized first

and

> I am sure any pediatric ortho would say the same... then start

> casting....one great thing to tell her is to do

> the 'Kangarooing'.... if you want to know more let me know.. it is

a

> great way to bond with your baby while in the NICU....I think it

> helped Avery so much to get better sooner!!!.... Best of luck to

> your friend...I hope this helped a little....

> >

> >

>