Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Rach, I didn't want you to think that this is being ignored. This is a huge subject and one we all deal with-- and I'm trying to put a post together that will allow us to speak on this. I'm not thinking real clearly right now-- so it's going to be a couple of days before I do get to this-- but it will be answered. A quick one liner-- yes, you will find ways to relax and trust that good days are possible, and we don't have to live in fear of the what ifs? Hugs, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Mon, March 1, 2010 11:00:25 PMSubject: Can you ever relax... The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.When can you relax? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Bill-- you are a very wise guy! Realizing that we have to "listen" to our body-- is a huge, huge part of being as healthy as we can be. Somewhere in the ARCHIVES-- I know I did a post on THE NEW NORMAL-- i'll try to find it and repost it. Love to all, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Tue, March 9, 2010 12:59:21 AMSubject: Re: Can you ever relax... Tracie Thank You for yet another lesson. I have been struggling with the whole work thing and getting back to maybe 75 percent of the old me. However, that may not help me last longer. You changed my mind, and Im going to listen to my body. From: tracie feldhaus <tiodaat2001@ yahoo.com>Subject: Re: Can you ever relax...To: Neurosarcoidosis@ yahoogroups. comDate: Monday, March 8, 2010, 7:58 PM Rach, I know that when I first started this journey I wanted so much to return to what was "normal." I put myself through hell thinking that I had to get back to work, get back to doing all that my "type A" personality (bet ya all didn't know I was a "type a" LOL!) had been able to do prior to sarcoidosis. And I was able to muscle my way through life for a very long time. The problem was that by pushing that hard- I was making myself even more unhealthy. Right now, you are living in fear of the unknown. Chronic illness puts us into the Five Stages of Grieving-- and Fear is the top of the list. The good news is that you don't have to stay there. From: rachyanne <stiks11 (AT) hotmail (DOT) com>To: Neurosarcoidosis@ yahoogroups. comSent: Mon, March 1, 2010 11:00:25 PMSubject: Can you ever relax... The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.When can you relax? Quote Link to comment Share on other sites More sharing options...
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