Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 sorry i have not been around .. but i have found out that this portal hypertention is really bad. I go back to the liver doc April 6 to find out what the next procedure is ... the doc told me over the phone it is due to the sarcoid.. he said it is uncommon for sarcoid to cause portal hypertention but sarcoid was found in transjugular biopsy i had last month .. i don't know what stage it is in yet till my appt. .. is there anyone out there who has liver involvement with sarcoid and ended up with portal hypertention??? i am scared out of my mind because what i read online depending on the stage there is only up to a 2year life expected.. plz help me... Many blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 thank you for your prayers Jackie Many blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 There isn't much I can do but pray for you., and I will. Hang in there and be strong. Sherrif is right you can bounce back from this. Thinking of you with smiles. Jackie Hi everyone.. att:mods sorry i have not been around .. but i have found out that this portal hypertention is really bad. I go back to the liver doc April 6 to find out what the next procedure is ... the doc told me over the phone it is due to the sarcoid.. he said it is uncommon for sarcoid to cause portal hypertention but sarcoid was found in transjugular biopsy i had last month .. i don't know what stage it is in yet till my appt. .. is there anyone out there who has liver involvement with sarcoid and ended up with portal hypertention??? i am scared out of my mind because what i read online depending on the stage there is only up to a 2year life expected.. plz help me... Many blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 , I've been dx with portal hypertension as well.. about 6months ago..along with chronic illness hepatitis, psychorsis(sp) along with the severe case of anemia so bad that some days I can't walk and talk at the same time, I just don't have the oxygen .. I told the GI person that I had been taken Immuran for 8 years and one of Vanderbilts smartest idiot, took me off of it to see how I did.. well, I haven't done so well.. I asked him how this was treated and guess what he said.. Immuran.. Tracie keeps telling me I should sue Vanderbilt.. I won't be here long enough to see the results of that.. anyway.. you are NOT alone.. Hi everyone.. att:mods sorry i have not been around .. but i have found out that this portal hypertention is really bad. I go back to the liver doc April 6 to find out what the next procedure is ... the doc told me over the phone it is due to the sarcoid.. he said it is uncommon for sarcoid to cause portal hypertention but sarcoid was found in transjugular biopsy i had last month .. i don't know what stage it is in yet till my appt. .. is there anyone out there who has liver involvement with sarcoid and ended up with portal hypertention??? i am scared out of my mind because what i read online depending on the stage there is only up to a 2year life expected.. plz help me... Many blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 , I am sorry I have not been around either, seems like everyones been sick, on my second antibiotic for sinus infection and they just wipe me out, I am so behind in everything. I'm sorry I don't have any information for you, but please know I am praying for you. Marla sorry i have not been around .. but i have found out that this portal hypertention is really bad. I go back to the liver doc April 6 to find out what the next procedure is ... the doc told me over the phone it is due to the sarcoid.. he said it is uncommon for sarcoid to cause portal hypertention but sarcoid was found in transjugular biopsy i had last month .. i don't know what stage it is in yet till my appt. .. is there anyone out there who has liver involvement with sarcoid and ended up with portal hypertention??? i am scared out of my mind because what i read online depending on the stage there is only up to a 2year life expected.. plz help me... Many blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
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