Re: have got some questions

February 22, 2006

Amber,

Pope, MS is 5 hours and 17 minutes from St. Louis. Dr.

Dobbs, practices at Shriners there and all your son's care will be

free till he's 18 at Shriners.

I say, do not pass go, do not collect $200... call Shriners in St.

Louis tomorrow morning, talk to e his nurse and get him

corrected by one of the best there is. his contact info is on the U

of Iowa website.

OK - you'll have to post Dr. Dobbs info again for Amber cuz

I'm lame and can't find it. Who to talk to, etc. I know you posted

it recently but I can't find it quickly. I search for Dobbs in my

email and I get all your posts because of the signature! lol... not

your fault, but will you post it again please?

Just go to Dr. Dobbs Amber. Do that and life gets simple now and

will be just fine... go see him at Shriners. 5 hours, that's

really doable for this kind of opportunity for .

Kori

At 09:44 PM 2/22/2006, you wrote:

>My Name is Amber my son is 11 weeks old and has bilateral

>clubfeet. He has been in cast for the last 6 weeks now. 's

>casts are changed out every 2 weeks. We are having soem problems

>though. For one with this last set of casts he was able to wiggle out

>of his right cast. From the start i have not like the way they did

>things but with the insurance that we have its the only option that i

>have right now. The second problem that has now come along is that

>the crease in the bad of his foot above the heal of the foot has been

>rubbed raw and has been bleeding. i know before i let them if think

>about doing surgery on my baby boy later on down the road other than

>the nipping of the tendon. that he will go some where else and get a

>second option. I have learn alot by reading and lurking for alittle

>while. I didnt find out till nathan was born that he had clubfeet.

>Where i take him its a club foot clinic the doctors dont do any of

>the casting the interns do. We have only seen the Dr Warrener when he

>was first evaluted. i dont like the way they do things at all. When u

>go up there u better not have to be anywhere in the next 2 to 4 hours

>because that is how long we are normally up there. We live in Pope,

>MS and travel up to Memphis,TN to LCH (Labonor Children Hospital). I

>was wondering if there was anyone else around this area that goes up

>there or just anyone close by?

>

>You all have help alot with all i have read on here and also answered

>alot of questions that i had from the beginning.

>

>Thanks

> Amber

>Mommy to

> Born 12/6/05

>

February 22, 2006

Amber,

It is very clear from your decription of the casting that they are

doing things incorrectly. Properly applied casts do not fall off. I

would have to do some checking around for recommendations in your

area, but have you looked into going to a Shriner's hospital? I know

I cannot recommend the one in Shreveport, but there is one in Tampa,

how far is that from you? All medical care for children under the

age of 18 is free at shriners hospitals, they can sometimes help with

transportation depending on which Shriners you choose to go to.

There are also special airlines that fly people for free for medical

care. And of course most Shriners also have a Mc house

nearby or some other sort of inexpensive housing for families to stay

in. Also, I know the Shriners in St. Louis is far, but Dr.

Dobbs, one of the best Ponseti doctors in the country practices

there. Also, have you seen the list of Ponseti qualified doctors?

http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clu

bfeet/physicians.html

Hope this helps some, keep asking questions well help you figure out

where to go to get little 's feet all fixed up in no time!

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 14hrs/day)

>

> My Name is Amber my son is 11 weeks old and has bilateral

> clubfeet. He has been in cast for the last 6 weeks now. 's

> casts are changed out every 2 weeks. We are having soem problems

> though. For one with this last set of casts he was able to wiggle

out

> of his right cast. From the start i have not like the way they did

> things but with the insurance that we have its the only option that

i

> have right now. The second problem that has now come along is that

> the crease in the bad of his foot above the heal of the foot has

been

> rubbed raw and has been bleeding. i know before i let them if think

> about doing surgery on my baby boy later on down the road other

than

> the nipping of the tendon. that he will go some where else and get

a

> second option. I have learn alot by reading and lurking for alittle

> while. I didnt find out till nathan was born that he had clubfeet.

> Where i take him its a club foot clinic the doctors dont do any of

> the casting the interns do. We have only seen the Dr Warrener when

he

> was first evaluted. i dont like the way they do things at all. When

u

> go up there u better not have to be anywhere in the next 2 to 4

hours

> because that is how long we are normally up there. We live in Pope,

> MS and travel up to Memphis,TN to LCH (Labonor Children Hospital).

I

> was wondering if there was anyone else around this area that goes

up

> there or just anyone close by?

>

> You all have help alot with all i have read on here and also

answered

> alot of questions that i had from the beginning.

>

> Thanks

> Amber

> Mommy to

> Born 12/6/05

>

February 22, 2006

,

Im about little over an hour south of memphis,tn. HIs doctor when he

was in nicu in tupelo,ms because he was 8 weeks early. talked me out

of gettin a hold of and goin with the shriner's because would be to

much trouble goin back and forth and stuff like that and that it

would have been a couple of weeks before he could get up there after

he got out the hospital. And at first i was stupid about all this and

didnt know any different but i am learning there is more to it that

this. And im am thankful that there is a place like tis to find out

information that others wont tell you. And now i wish that i would

have done what right in the first place

and i will say it thanks again for ppl like yall being around to help

others

amber

> >

> > My Name is Amber my son is 11 weeks old and has bilateral

> > clubfeet. He has been in cast for the last 6 weeks now. 's

> > casts are changed out every 2 weeks. We are having soem problems

> > though. For one with this last set of casts he was able to wiggle

> out

> > of his right cast. From the start i have not like the way they

did

> > things but with the insurance that we have its the only option

that

> i

> > have right now. The second problem that has now come along is

that

> > the crease in the bad of his foot above the heal of the foot has

> been

> > rubbed raw and has been bleeding. i know before i let them if

think

> > about doing surgery on my baby boy later on down the road other

> than

> > the nipping of the tendon. that he will go some where else and

get

> a

> > second option. I have learn alot by reading and lurking for

alittle

> > while. I didnt find out till nathan was born that he had

clubfeet.

> > Where i take him its a club foot clinic the doctors dont do any

of

> > the casting the interns do. We have only seen the Dr Warrener

when

> he

> > was first evaluted. i dont like the way they do things at all.

When

> u

> > go up there u better not have to be anywhere in the next 2 to 4

> hours

> > because that is how long we are normally up there. We live in

Pope,

> > MS and travel up to Memphis,TN to LCH (Labonor Children

Hospital).

> I

> > was wondering if there was anyone else around this area that goes

> up

> > there or just anyone close by?

> >

> > You all have help alot with all i have read on here and also

> answered

> > alot of questions that i had from the beginning.

> >

> > Thanks

> > Amber

> > Mommy to

> > Born 12/6/05

> >

>

February 22, 2006

Many parents who travel for care just go to the city they are going

to and stay for the duration of the initial casting phase. This is

usually about 5-6 weeks. Some people do fly or drive back and forth

too. It just depends on whichever works out best for you.

No matter how you handle it you won't be sorry that you went to the

extra " trouble " of traveling. It is so worth it!

> > >

> > > My Name is Amber my son is 11 weeks old and has

bilateral

> > > clubfeet. He has been in cast for the last 6 weeks now.

's

> > > casts are changed out every 2 weeks. We are having soem

problems

> > > though. For one with this last set of casts he was able to

wiggle

> > out

> > > of his right cast. From the start i have not like the way they

> did

> > > things but with the insurance that we have its the only option

> that

> > i

> > > have right now. The second problem that has now come along is

> that

> > > the crease in the bad of his foot above the heal of the foot

has

> > been

> > > rubbed raw and has been bleeding. i know before i let them if

> think

> > > about doing surgery on my baby boy later on down the road other

> > than

> > > the nipping of the tendon. that he will go some where else and

> get

> > a

> > > second option. I have learn alot by reading and lurking for

> alittle

> > > while. I didnt find out till nathan was born that he had

> clubfeet.

> > > Where i take him its a club foot clinic the doctors dont do any

> of

> > > the casting the interns do. We have only seen the Dr Warrener

> when

> > he

> > > was first evaluted. i dont like the way they do things at all.

> When

> > u

> > > go up there u better not have to be anywhere in the next 2 to 4

> > hours

> > > because that is how long we are normally up there. We live in

> Pope,

> > > MS and travel up to Memphis,TN to LCH (Labonor Children

> Hospital).

> > I

> > > was wondering if there was anyone else around this area that

goes

> > up

> > > there or just anyone close by?

> > >

> > > You all have help alot with all i have read on here and also

> > answered

> > > alot of questions that i had from the beginning.

> > >

> > > Thanks

> > > Amber

> > > Mommy to

> > > Born 12/6/05

> > >

> >

>

February 23, 2006

Amber,

Dr. Grogan in Tampa is good, but if you are having to travel from MS, I

would DEFINATELY say go to Dobbs in St. Louis as opposed to going to Tampa.

Both doctors are at a Shriners, but go straight to Dr. Dobbs if you have a

week or so.

Good luck!

( 2/1/05:bcf P/M 22/7)

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: have got some questions

>Date: Thu, 23 Feb 2006 06:28:15 -0000

>

>Amber,

>It is very clear from your decription of the casting that they are

>doing things incorrectly. Properly applied casts do not fall off. I

>would have to do some checking around for recommendations in your

>area, but have you looked into going to a Shriner's hospital? I know

>I cannot recommend the one in Shreveport, but there is one in Tampa,

>how far is that from you? All medical care for children under the

>age of 18 is free at shriners hospitals, they can sometimes help with

>transportation depending on which Shriners you choose to go to.

>There are also special airlines that fly people for free for medical

>care. And of course most Shriners also have a Mc house

>nearby or some other sort of inexpensive housing for families to stay

>in. Also, I know the Shriners in St. Louis is far, but Dr.

>Dobbs, one of the best Ponseti doctors in the country practices

>there. Also, have you seen the list of Ponseti qualified doctors?

>http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clu

>bfeet/physicians.html

>

>Hope this helps some, keep asking questions well help you figure out

>where to go to get little 's feet all fixed up in no time!

>

>Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 14hrs/day)

>

> >

> > My Name is Amber my son is 11 weeks old and has bilateral

> > clubfeet. He has been in cast for the last 6 weeks now. 's

> > casts are changed out every 2 weeks. We are having soem problems

> > though. For one with this last set of casts he was able to wiggle

>out

> > of his right cast. From the start i have not like the way they did

> > things but with the insurance that we have its the only option that

>i

> > have right now. The second problem that has now come along is that

> > the crease in the bad of his foot above the heal of the foot has

>been

> > rubbed raw and has been bleeding. i know before i let them if think

> > about doing surgery on my baby boy later on down the road other

>than

> > the nipping of the tendon. that he will go some where else and get

>a

> > second option. I have learn alot by reading and lurking for alittle

> > while. I didnt find out till nathan was born that he had clubfeet.

> > Where i take him its a club foot clinic the doctors dont do any of

> > the casting the interns do. We have only seen the Dr Warrener when

>he

> > was first evaluted. i dont like the way they do things at all. When

>u

> > go up there u better not have to be anywhere in the next 2 to 4

>hours

> > because that is how long we are normally up there. We live in Pope,

> > MS and travel up to Memphis,TN to LCH (Labonor Children Hospital).

>I

> > was wondering if there was anyone else around this area that goes

>up

> > there or just anyone close by?

> >

> > You all have help alot with all i have read on here and also

>answered

> > alot of questions that i had from the beginning.

> >

> > Thanks

> > Amber

> > Mommy to

> > Born 12/6/05

> >

>

February 23, 2006

Hi Amber,

It's good you are starting to look around for other options. At this point your

son still has an excellent chance for total correction despite these past weeks

of inferior treatments.

I believe others mentioned it but I want to echo what they say - travel to St.

Louis, Missouri to see Dr. Dobbs. It's a pain in the butt, we know that - but

the alternative is your son getting bad treatment and living a life on sore feet

with possible surgical interventions over the years. You really only have one

chance to do this right before your son is old enough that his window of

opportunity is shut on him. Meaning, as he ages, the chances of gaining full

correction will decrease dramatically. And, as he goes further in to inferior

treatment, he may well end up with worse feet than he started with, such as

happened to my oldest son several years ago.

We suggest Dr. Dobbs first because he is an excellent Ponseti Method doctor with

years of training, practice and lots of parents who can recommend him first

hand. Secondly, working at the Shrine hospital lets you forget insurance

considerations - it'll be paid for through the Shrine organization.

Angel Flights, Wings of Hope and other groups will transport you and your child

there for free. Shrine will see that you are transported to your appointments.

The Youth Bridge House or one of the Mc Houses will lodge you there

for minimal amount of money. RMD houses in St. Louis are $5.00 per night with

no limit to how long you stay. The Youth Bridge house costs considerably more

per night but there is the chance that Shrine would pay your bill there as well.

If you need to travel back and forth between St. Louis and your home, the Wings

of Hope, etc., can accomodate you there almost every time.

If you have other children, they can likely go with you if necessary.

All this adds up to an excellent opportunity for you to get your son in to one

of the USA's most respected Ponseti Method doctors for practically no money,

allowing you to go where he can be treated with expert hands and thus enjoy a

life time of excellent feet to live on.

By calling the Shrine/Dr. Dobbs/etc. they can get you started going there. If

this is your plan, I think you asked if you should continue the casting at home

- my advice is NO. Take the stupid things off. Likely the bad casts are doing

more harm than good by staying on. The little bit of ground you child might

lose is nothing compared to the abuse to his feet the casts could cause which

will be harder to fix in St. Louis.

Best of luck to you!

shawnee

have got some questions

My Name is Amber my son is 11 weeks old and has bilateral

clubfeet. He has been in cast for the last 6 weeks now. 's

casts are changed out every 2 weeks. We are having soem problems

though. For one with this last set of casts he was able to wiggle out

of his right cast. From the start i have not like the way they did

things but with the insurance that we have its the only option that i

have right now. The second problem that has now come along is that

the crease in the bad of his foot above the heal of the foot has been

rubbed raw and has been bleeding. i know before i let them if think

about doing surgery on my baby boy later on down the road other than

the nipping of the tendon. that he will go some where else and get a

second option. I have learn alot by reading and lurking for alittle

while. I didnt find out till nathan was born that he had clubfeet.

Where i take him its a club foot clinic the doctors dont do any of

the casting the interns do. We have only seen the Dr Warrener when he

was first evaluted. i dont like the way they do things at all. When u

go up there u better not have to be anywhere in the next 2 to 4 hours

because that is how long we are normally up there. We live in Pope,

MS and travel up to Memphis,TN to LCH (Labonor Children Hospital). I

was wondering if there was anyone else around this area that goes up

there or just anyone close by?

You all have help alot with all i have read on here and also answered

alot of questions that i had from the beginning.

Thanks

Amber

Mommy to

Born 12/6/05

February 23, 2006

Amber,

I'll be going to St. Louis on March 12 for my foster son appointment on March

13. Prayers do work we was schudule to go on Feb. 20 but cancel because

couldn't find a way we live about 8 hours away. So I thought I could go

Louisana trip paid in full, the Shriners would drive me there, just me and my

baby. So I called last Thursday they told me it could be several months to get

a appointment down there. So I called St. Louis talked to Family Services told

them my problem, she told me she would make some calls for me. She called me

later told me I got another appointment on March 13 at 8:30 A.M. She also called

the Wings of Hope pilots, they are going to take me there on the 12th pick me up

on the 14th. She called me Tuesday of this week to tell me everything is set to

go. She also ask the Temple about helping us, so they are paying my stay at the

Haven House which is usually 25 dollars a night. So I don't have to pay for

anything there. That's so WONDERFUL. God answer

prayers.

Oh the Shriners will pick me up from the airport there take me to the Haven

House, this way I can take one other person with me.

Any question you can email

Larissa and 7-15-05

frogabog wrote: