Re: 3 months now-no change

August 20, 2008

Hi Mandy,

do you have a clarren helmet? With any active helmet/band you should

definitely see change in 3 mo time. Even with a passive one I would

think you should still see change since her head must grow from 9 to

12 mo old. Do they check the circumference of her head each time? if

that is increasing there should be some improvment in the shape too.

I know Seattle doesn't have a lot of treatment options. Do you think

the helmet fits her properly? I'm also sorry about the rude people. We

had a few questions, but nothing like someone shouting across the store.

-christine

sydney 2.5 yrs starband grad

>

> 3 months now and still no change. Isabelles first birthday is

> saterday..i was hoping to be rid of the helmet no such luck....I

> need to make another appt at the childrens hospital but they werent

> real helpful at the last one(a month ago) just said " when she grows she

> will grow " and it is a 3 hour drive to seattle from where we

> live.........and im sorry but a real quick vent--i am so sick to death

> of all the quistions of " why is she in a helemet? " I acually had a lady

> at the grocery store, 2 isles over shout " whats wrong with your

> daughter " I was ready for the innocent quistions from children, but i

> never dreamed the adults would be so downright rude. and i have tried

> to be informative, but when im making a quick trip into a store, its

> usually about the 3rd person to ask in 10 min that gets my eye roll.

> whoo now that i have that off my chest ahhh feels better already.

> antone form washington state?

>

August 20, 2008

> >

> > 3 months now and still no change. Isabelles first birthday is

> > saterday..i was hoping to be rid of the helmet no such

luck....I

> > need to make another appt at the childrens hospital but they

werent

> > real helpful at the last one(a month ago) just said " when she

grows she

> > will grow " and it is a 3 hour drive to seattle from where we

> > live.........and im sorry but a real quick vent--i am so sick to

death

> > of all the quistions of " why is she in a helemet? " I acually had

a lady

> > at the grocery store, 2 isles over shout " whats wrong with your

> > daughter " I was ready for the innocent quistions from children,

but i

> > never dreamed the adults would be so downright rude. and i have

tried

> > to be informative, but when im making a quick trip into a store,

its

> > usually about the 3rd person to ask in 10 min that gets my eye

roll.

> > whoo now that i have that off my chest ahhh feels better

already.

> > antone form washington state?

> >

>

August 20, 2008

Mandy,

We also have a Clarren Helmet from Children's in Seattle. We have had

it almost six weeks and my daughter is almost 11 months old. She too

is not crawling or walking. Our helmet though is starting to get

really tight and hard to get on and off. I am thinking of giving them

a call, but I was told the helmet would fit for three months. There

is no way it is going to fit for that long. We have gotten a fair bit

of correction, but it is far from perfect. I had asked them if they

did additional scans during the process to track the rate of

correction and they said that scan time was expensive, so they didn't

do that. It sounds like they did a scan for you, which I am glad to

hear. It sounds like your daughter needs to just have a growth spurt,

which is frustrating to wait for. I think my daughter has grown

faster than they expected. She is adopted from Ethiopia and has

gained 5 pounds in the last 3 1/2 months. Let's just say she no longer

suffering from malnourishment. I think I am going to give them a call

too and see if they can do a scan to let me know how much correction

we have actually gotten.

Good luck!

~ in Olympia