Re: Newbie just saying hi.

[Guest guest]

what is wrong with his hands? amniotic bands are sometimes associated

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 22/24 until 2/14/06, then to 18/24.

---------------------------------

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[Guest guest]

Welcome Hazel & Ollie!

We have quite a few members who are in the UK, so hopefully they can

help you as far as the particulars of referrals and finding great

doctors over there, as well as " connecting with locals " . Are you a

member of the STEPS charity clubfoot forum also? There's a great on-

line community there too!

Can you give us some more details about Ollie's hands and what the

orthotists thought was unusual? Do they seem to be stiff or

contracted? There is a condition called arthrogryposis where more

than one joint in the body is contracted. So, if his hands are

contracted in addition to his clubfoot, this could be an indicator

that he might have arthrogryposis. Typically, clubfeet are

difficult to treat and maintain correction when they are associated

with this syndrome. However, I would have thought that your

doctor/consultant would have picked up on this by now since your son

is 6 weeks old and has completed correction.

We're glad you're here!

Regards,

& (3-16-00, left clubfoot)

http://ponseticlubfoot.freeservers.com/

>

> Hello,

> My names Hazel and i have four kids. my youngest is 12 weeks old

and

> has bilateral talipes. He is being treated at Lincoln County

Hospital

> by Mr Arivathem, using the ponseti method which was started at

only 4

> days old. He had casts on for 6 weeks with weekly changes. Then was

> fitted with his boots.

> i'd be interested to chat to anyone, especially anyone in my area.

>

> i have one question for you guys, When the orthopedics were

checking

> Ollie's feet, they also ummmed and arred about his hands, is this

> connected to talipes??

>

> it's really weird a friend of mine is expecting her third baby in

> about 10 weeeks. She's been told her baby has talipes, a whole in

the

> heart and twisted fingers. Hence why i ask the above question.

>

> i had only heard in passing about clubfoot but never knew of anyone

> who has this untill now when my own son has it and my above

mentioned

> friend is expecting it.

>

> thanks for any repies in advance.

>

> hazel of lincoln.

>

[Guest guest]

Hi Hazel

Welcome. I'm in the UK too....in Surrey, and my son is being treated

using the Ponseti method by Naomi in Manchester. He's doing

really well. I'd suggest as well that you join the Steps discussion

forum to see if there is anyone near you....the forum ahs grown a

lot in the last year or so and has quite a few members now. The

address is http://steps-charity.org.uk/forum/

Hope this helps and that we see you on the Steps website

soon...although i have to say that even though I'm an avid member of

the Steps website, I always read the postings on this site as

everyone here is so kind and helpful and just full of experience and

knowledge!!

Stella

>

> Hello,

> My names Hazel and i have four kids. my youngest is 12 weeks old

and

> has bilateral talipes. He is being treated at Lincoln County

Hospital

> by Mr Arivathem, using the ponseti method which was started at

only 4

> days old. He had casts on for 6 weeks with weekly changes. Then was

> fitted with his boots.

> i'd be interested to chat to anyone, especially anyone in my area.

>

> i have one question for you guys, When the orthopedics were

checking

> Ollie's feet, they also ummmed and arred about his hands, is this

> connected to talipes??

>

> it's really weird a friend of mine is expecting her third baby in

> about 10 weeeks. She's been told her baby has talipes, a whole in

the

> heart and twisted fingers. Hence why i ask the above question.

>

> i had only heard in passing about clubfoot but never knew of anyone

> who has this untill now when my own son has it and my above

mentioned

> friend is expecting it.

>

> thanks for any repies in advance.

>

> hazel of lincoln.

>

[Guest guest]

hi,

thanks for your replies.

i have alot of questions for the consultant when i see him next

just to sound dum, what are creases?? and what is the significance of

this?

Ollie has some deep creases on the outter top side of his feet. is

this what is ment??

thanks again,

haz of uk.

[Guest guest]

Hazel,

The creases you've probably seen discussed here are the ones across

the sole of the foot, seen in an uncorrected foot or incomplete

correction. The wrinkles on the ankle area are from the excess skin

after correction and usually go away almost completely as the child

grows.

>

> hi,

>

> thanks for your replies.

>

> i have alot of questions for the consultant when i see him next

>

> just to sound dum, what are creases?? and what is the significance of

> this?

>

> Ollie has some deep creases on the outter top side of his feet. is

> this what is ment??

>

> thanks again,

>

> haz of uk.

>