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Re: New to post, tim

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Welcome Tim,

sorry we have to meet this way.. but you couldn't have found a more informative site. We all know what your going through. I hope they can get you off the steriods since all the weight you lost , you will put back on and plus some..:(. it can cause such terriable side effects. I was on high doses for years and became toxic.

I was tried on several combonations over the years and still searching.

I wish you well and and hope you have a good set of Doc's who know a lot about this monster.

Many blessings and a pain free day Please support Neurosarcoidosis society

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