Re: Going back to our local doctor

January 23, 2006

Hi Carol,

I completely understand where you're coming from, I felt the EXACT same

way when we decided to go see Dr. Ponseti. I was actually on the phone

with our local doctor the day before we went and said " I don't want you

to think that I'm not expecting you to treat Sierra anymore, we just

want to see what Dr. Ponseti has to say... " To make a long story

short, when we told Dr. Ponseti that our local doctor was interested in

his opinion and asked what we should tell him, he said " Tell him to

come back and take the classes again " . His response to my daughters'

treatment was basically disbelieve that the 2 local certified doctors

hadn't told us to go see him months before we did, and that we were the

ones that sought him out. I will not trust our local Ponseti certified

doctor again, and kick myself time and time again for not thinking

about going to see Dr. Ponseti earlier.

With atypical clubfoot cases especially, you should go see Dr. Ponseti

(once we asked for the referral, our local doctor told us that many of

the nation/worldwide atypical cases are going to see Ponseti, why he

never informed me of this earlier, I don't know…).

We really liked our doctor too, a very nice person, who definitely

seemed very versed in the Ponseti method. You shouldn't feel

ashamed/guilty of getting a second opinion at all, and in fact, you

should ask for a referral to continue to see Dr. Ponseti.

As far as showing your local doctor Ponseti's casts – I say go for it –

it is after all an art, not a science, and hopefully all people

involved can benefit from it. I took pictures of the first few casts

that Dr. Ponseti did for our daughter to show her local doctor, and

sometime in the near future will take her in to show him her new,

corrected feet.

Hope this helps,

Jescie and Sierra (Atypical BCF 06-13-05)

>

> Okay, I have committed doctor infidelity. LOL I went to see Dr.

> Ponseti without telling my local orthopedist here. I know I am not

> the only one who has done this and I am nervous about how to approach

> this issue with him. I like him a lot but went to Dr. Ponseti

because

> only he could answer some questions I had about 's feet, which

> are atypical in some ways. I would like to think that my doc here

> would like to see a Ponseti cast. He has been trained by Dr. Ponseti

> so is following the Ponseti method for the most part. Any

suggestions

> or experiences to share? I will post later about my visit with Dr.

> Ponseti. It was a wonderful experience!

>

> Carol and , bcf, 10-27-05

>

January 24, 2006

That makes me feel better. Dr. P diagnosed with MA, as well, and

recasted her. I don't think my local ortho would have fine-tuned her feet quite

like Dr. P was able to, but our local doc is a good doctor and really does want

to help club feet babies and not just feed his ego like some docs I hear about.

I don't want to hurt his feelings since he has been helpful, careful, kind and

gentle with us and . After hearing about 's treatment with him, Dr.

P said that we have a good doctor to return to. I hope he can look at this as a

learning opportunity.

Re: Going back to our local doctor

Don't worry Carol. I'm sure your ortho will understand. I did

somewhat the same thing, but without the actual visit to Dr. P. I

told my ortho all along that I was communicating with Dr. P via

phone/email. When this whole " c " shaped thing came along and I heard

from Dr. P that my little guy may need 1-2 more casts, I called the

ortho. It was so hard to tell him in a way which wouldn't be

interpreted as an offense. I simply told him that from the last set

of pics that I sent to Dr. P, he suggested 1-2 more casts would be

necessary. Then I told my ortho that I would like him to take a look

to see what he thinks. I really respect our ortho doctor and trust

his opinion also.

>

> Okay, I have committed doctor infidelity. LOL I went to see Dr.

> Ponseti without telling my local orthopedist here. I know I am

not

> the only one who has done this and I am nervous about how to

approach

> this issue with him. I like him a lot but went to Dr. Ponseti

because

> only he could answer some questions I had about 's feet,

which

> are atypical in some ways. I would like to think that my doc here

> would like to see a Ponseti cast. He has been trained by Dr.

Ponseti

> so is following the Ponseti method for the most part. Any

suggestions

> or experiences to share? I will post later about my visit with

Dr.

> Ponseti. It was a wonderful experience!

>

> Carol and , bcf, 10-27-05

>

January 24, 2006

That is so true about just doing what is best for your child. Thank you for

sharing your experience.

Going back to our local doctor

Okay, I have committed doctor infidelity. LOL I went to see Dr.

Ponseti without telling my local orthopedist here. I know I am not

the only one who has done this and I am nervous about how to approach

this issue with him. I like him a lot but went to Dr. Ponseti because

only he could answer some questions I had about 's feet, which

are atypical in some ways. I would like to think that my doc here

would like to see a Ponseti cast. He has been trained by Dr. Ponseti

so is following the Ponseti method for the most part. Any suggestions

or experiences to share? I will post later about my visit with Dr.

Ponseti. It was a wonderful experience!

Carol and , bcf, 10-27-05

January 24, 2006

Well, we have a different story to tell about this. Our doc did a good job,

ultimately, of

casting 's foot, but had ideas of using the KAFO and AFOs. I started

second

guessing our decision to use him and got Dr P's opinion. He said our doc did a

good job

on the foot, but scoffed at the use of the K/AFOs. I didn't feel that I should

have to fight

for the right treatment, eg the DBB, and didn't go back to the first doc. In

fact, I was a

wimp and never even called to tell them we wouldn't be back!! lol was

supposed

to have his cast removed on Jan 5th and we never went. To this day, I have not

heard from

his office!! Guess that shows we made the right decision to leave the first doc

and stick

with Dr Ponseti, huh?! We will be making the 3 hour drive to Dr Ponseti for

follow ups

from now on.

Stacee and 9/24/05 P/M 20/7

>

> That is so true about just doing what is best for your child. Thank you for

sharing your

experience.

> Going back to our local doctor

>

> Okay, I have committed doctor infidelity. LOL I went to see Dr.

> Ponseti without telling my local orthopedist here. I know I am not

> the only one who has done this and I am nervous about how to approach

> this issue with him. I like him a lot but went to Dr. Ponseti because

> only he could answer some questions I had about 's feet, which

> are atypical in some ways. I would like to think that my doc here

> would like to see a Ponseti cast. He has been trained by Dr. Ponseti

> so is following the Ponseti method for the most part. Any suggestions

> or experiences to share? I will post later about my visit with Dr.

> Ponseti. It was a wonderful experience!

>

> Carol and , bcf, 10-27-05

>

January 24, 2006

Carol,

Quite simply, you tell your doctor that you had the awesome

opportunity to take to go see Dr. Ponseti, and you jumped at

the chance because as a mother, you felt that you had to for peace

of mind. The doctor shouldn't be offended at all. If the doctor is

offended, then it's time to get another doctor. Doctors want the

best for their kids (if they have any) also; so they should

understand why a parent wouldn't turn down the opportunity to see

Dr. P. After all, I'm pretty confident that he probably has the

most personal clubfoot experience of any doctor in the world...plus

the experience of his partners at the U of I added to that....you

really can't find another location in the world with more expertise

and focus on the clubfoot condition.

Don't feel like you did anything wrong. Get it in your mind that

you are excited to share this news with your doctor about the

opportunity given to .....

It worked for me when I went back to my old doctor, I hope it helps

you too.

& (3-16-00, lcf)

January 24, 2006

We didn't say anything to our old doctor (who fortunately we didn't let do

surgery and who never got around to the Botox). We just called his

surgical coordinator and told her we were cancelling surgery and never

called them again. We're luckier than some, though, since we found Dr.

Tuck who really knows his stuff (look at the diplomas/certificates from

Iowa on his wall!), is as nice as can be, and is only 1/2 hr. away so

he'll be our doc through broken bones and anything else orthopedic our

kids or we need over the years. And hey, he must be smart since he kept

pushing me to get into this group.

- Seth

(Meir, lcf 1/29/04)

> Carol,

> Quite simply, you tell your doctor that you had the awesome

> opportunity to take to go see Dr. Ponseti, and you jumped at

> the chance because as a mother, you felt that you had to for peace

> of mind. The doctor shouldn't be offended at all. If the doctor is

> offended, then it's time to get another doctor. Doctors want the

> best for their kids (if they have any) also; so they should

> understand why a parent wouldn't turn down the opportunity to see

> Dr. P. After all, I'm pretty confident that he probably has the

> most personal clubfoot experience of any doctor in the world...plus

> the experience of his partners at the U of I added to that....you

> really can't find another location in the world with more expertise

> and focus on the clubfoot condition.

> Don't feel like you did anything wrong. Get it in your mind that

> you are excited to share this news with your doctor about the

> opportunity given to .....

>

> It worked for me when I went back to my old doctor, I hope it helps

> you too.

>

> & amp; (3-16-00, lcf)

>

January 25, 2006

Thank you for this advice. I think your English is delightful. Much better

than my Italian!

Carol

Re: Going back to our local doctor

Dear Carol,

I am italian grandfather of Giuseppe. Giuseppe's history is in PHOTOS of

group.

I have same experience with my local doctor who use Ponseti's method. But

the feet of Giuseppe have atipycal clubfoot. I talked directly with my italian

doctor and said my wish to meet Dott. Ponseti. He appreciated my sincerity and

understanded my idea. He liked to know the cure of Doct. Ponseti. I transmited

to my local doctor the exceptional experience with Doct. Ponseti and he

appreciated.

The frankness is the better solution.

Excuse my english.

Matteo Procacci

Carol ha scritto: