Re: OT autistic with bicusped valve in aorta

[Guest guest]

my son who is 2.7 is autistic he was born with a bicusped aortic valve not a

serious condition most go undetected 2 in every 100 people have this..at my

son's yearly cardiology check up the cardiologist suggested that my son's

delay was most likely a birth deffect not brought on by vaccinations or

metabolic problems...which can't be true due to the fact that my son

developed normally until 2 when he began to lose his words and started

stimming....does anyone else know of an autistic with a heart deffect? you

can e-mail me privately if you would like.... thanks sharon c.

[Guest guest]

My son also has a heart defect (ventricular septal defect...in other

words a hole in his heart) He seemed to be developing normally in

other ways until 15 months when he had a major regression.

Cathy

-- In GFCFKids@y..., sharashing@a... wrote:

> my son who is 2.7 is autistic he was born with a bicusped aortic

valve not a

> serious condition most go undetected 2 in every 100 people have

this..at my

> son's yearly cardiology check up the cardiologist suggested that my

son's

> delay was most likely a birth deffect not brought on by

vaccinations or

> metabolic problems...which can't be true due to the fact that my

son

> developed normally until 2 when he began to lose his words and

started

> stimming....does anyone else know of an autistic with a heart

deffect? you

> can e-mail me privately if you would like.... thanks sharon c.

[Guest guest]

gina, my son also had collic as a baby i don't know if there's a connection,

does your son have a heart defect? i also had a second mmr shot two yrs.

before i conceived my son which i think predisposed him . it's all so

confusing. i only hope someone figures it all out and puts an end to this

mystery. thanks sharon c.

[Guest guest]

> cathy', how is your son doing with the diet? if you don't mind my

asking

> we've just started 3 and a half weeks ago and we see

improvement...gradual.

> thanks sharon c.

Sharon, my son is doing WONDERFUL with the diet. He had lost every

word but one and now I can't even count how many words he has. He is

so much more focused. I truly believe that before any other

interventions or therapies would have worked for him we needed to

clear the " fog " that the gluten and casein causes in his brain. Keep

up the diet...three weeks ago my son (3-1/2) who could only say " da-

da " a year ago said " I lu yu " and kissed me.

[Guest guest]

Sharon,

The diet has helped and continues to help tremendously. It has

cleared the fog, virtually stopped his tic disorder and allows him to

enjoy eating again. We have had so much language develop in the last

4 months on the diet it's amazing! We thank God for people like this

group who have helped us when doctors have come up empty handed.

Dawn

> Dawn, Ifeel for you and your little boy, it is a shame how little

Drs.

> actually know i would think by this day and age they should think

twice

> before vaccinating such young children with heart issues. my son

never had

> surgeory, and may never need it he has to be checked yearly to make

sure his

> condition has not gotten worse. He did have a bad reaction after

his mmr and

> hib shot...it was soon after that he began to loose what liitle

language he

> had developed and the began to withdraw into himself and finally he

started

> weird stimulatory behavior thats when we started the diet. We did

get help

> for him as soon as we realized that his words were disappearing.

How is the

> diet working for you? Sharon cC.

[Guest guest]

>My son also was born with a ventricular septal defect (VSD) which in

his case was a very large hole in the heart. His cardiologist told me

that, although they do not know what causes this, they do know that

whatever it is happens during the 5th week of pregnancy, and it COULD

be caused by environmental toxins. I was at the time working in an

office that was undergoing renovations, and the smells from the paint

and carpet glue were sometimes overwhelming. I have no proof, but the

cardiologist said he would not be suprised if that were a factor. He

also seemed to be developing normally until around 3 when we started

noticing the odd behaviors.

[Guest guest]

> My son has been on the diet since September 2000. He is high

functioning, and we have seen some improvement though not the dramatic

improvements others have reported. He is more even tempered, less

aggressive, better able to concentrate. I suspect there are more

things we need to cut out, but have been reluctant to do so as he eats

such a limited diet to begin with. He stims a lot (running mostly). He

is 7 and in second grade, which just started last week, and so far

seems to be transitioning in much better than either kindergarten or

first grade, probably due to the diet.