Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 My daughter Lilee has been in the P/M now for about 2 weeks. She is 3 1/2 months old. I recently have noticed that her Clubfoot leg is longer than the other by up to 1/2? inch. I am going to measure it tonight. Has anyone else expierenced this? What was the outcome? The follow-up Dr. we have DID confirm ny suspishions about this. He did Xrays and said her hips were normal, but he wants to do another set of Xrays in about 2 more months. Any advice? Christee Lilee Unilateral A-Typical w/Plantaris CF --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Have they done ultrasounds of her hips? At her age ultrasounds sometimes tell them more than x-rays (the bones are still soft enough that everything doesn't show up in x-rays). The first thing that comes to mind is a hip issue. I only say that though because we have a daughter with bilateral congenital hip dysplasia. Maybe get a second opinion, just to be safe. Hip issues are much easier to fix the earlier they are caught! Marcia Leg longer that the other... My daughter Lilee has been in the P/M now for about 2 weeks. She is 3 1/2 months old. I recently have noticed that her Clubfoot leg is longer than the other by up to 1/2? inch. I am going to measure it tonight. Has anyone else expierenced this? What was the outcome? The follow-up Dr. we have DID confirm ny suspishions about this. He did Xrays and said her hips were normal, but he wants to do another set of Xrays in about 2 more months. Any advice? Christee Lilee Unilateral A-Typical w/Plantaris CF --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 They have only done Xrays. Should I go to another Orthopedic Surgeon for a 2nd opinion? Or some other kind of Dr? Marcia wrote: Have they done ultrasounds of her hips? At her age ultrasounds sometimes tell them more than x-rays (the bones are still soft enough that everything doesn't show up in x-rays). The first thing that comes to mind is a hip issue. I only say that though because we have a daughter with bilateral congenital hip dysplasia. Maybe get a second opinion, just to be safe. Hip issues are much easier to fix the earlier they are caught! Marcia Leg longer that the other... My daughter Lilee has been in the P/M now for about 2 weeks. She is 3 1/2 months old. I recently have noticed that her Clubfoot leg is longer than the other by up to 1/2? inch. I am going to measure it tonight. Has anyone else expierenced this? What was the outcome? The follow-up Dr. we have DID confirm ny suspishions about this. He did Xrays and said her hips were normal, but he wants to do another set of Xrays in about 2 more months. Any advice? Christee Lilee Unilateral A-Typical w/Plantaris CF --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 My Lily (now almost 8 months old) has been repeatedly screened for hip dysplasia. She was breech and female, so I guess that increases the risk. They did ultrasounds until she was 4 months old & then did an x-ray. The Dr. said that an x-ray isn't useful until about 4 months. Her pediatric orthopedist (the same one who treats her cf) is the doc who has done the screening. So I'd say that until Lilee is 4 months (which she will be soon, right?), an ultrasound will be better. Incidentally, Lily will have her (hopefully) last x-ray to rule out dysplasia on Tuesday. There is no asymmetry when her hips are not stressed and only a very slight asymmetry when they are stressed. Apparently there's disagreement among the medical community about whether the later case requires treatment. Both her orthopedist & her pediatrician think she'll be just fine without treatment. The x-ray on Tuesday is supposed to put the nail in the coffin (since by 7-8 months the hip joint is supposed to be fully developed). We don't notice any clicking in her hips or difference in the lengths of her legs. HTH, Kim christee dawson wrote: They have only done Xrays. Should I go to another Orthopedic Surgeon for a 2nd opinion? Or some other kind of Dr? Marcia wrote: Have they done ultrasounds of her hips? At her age ultrasounds sometimes tell them more than x-rays (the bones are still soft enough that everything doesn't show up in x-rays). The first thing that comes to mind is a hip issue. I only say that though because we have a daughter with bilateral congenital hip dysplasia. Maybe get a second opinion, just to be safe. Hip issues are much easier to fix the earlier they are caught! Marcia Leg longer that the other... My daughter Lilee has been in the P/M now for about 2 weeks. She is 3 1/2 months old. I recently have noticed that her Clubfoot leg is longer than the other by up to 1/2? inch. I am going to measure it tonight. Has anyone else expierenced this? What was the outcome? The follow-up Dr. we have DID confirm ny suspishions about this. He did Xrays and said her hips were normal, but he wants to do another set of Xrays in about 2 more months. Any advice? Christee Lilee Unilateral A-Typical w/Plantaris CF --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 I will say that if the issue is not hip related, then the proceedure for correction is the Ilizarov fixator, and isnt real nice. A heel lift or specially made shoes will suffice. My husband has a 1/2 in difference in his legs because of an accident that damaged his growth plate when he was 14. He used to wear a heel lift and he said that worked very well; now he doesnt use anything and he sometimes has chiropractic issues in his back, but it does not really affect his life beyond that. Angel Have they done ultrasounds > of her hips? At her age ultrasounds sometimes tell them more than > x-rays (the bones are still soft enough that everything doesn't show > up in x-rays). The first thing that comes to mind is a hip issue. I > only say that though because we have a daughter with bilateral > congenital hip dysplasia. Maybe get a second opinion, just to be safe. > Hip issues are much easier to fix the earlier they are caught! > > Marcia > > > > Leg longer that the other... > > > > > > My daughter Lilee has been in the P/M now for about 2 weeks. She > is 3 1/2 months old. I recently have noticed that her Clubfoot leg is > longer than the other by up to 1/2? inch. I am going to measure it > tonight. Has anyone else expierenced this? What was the outcome? The > follow-up Dr. we have DID confirm ny suspishions about this. He did > Xrays and said her hips were normal, but he wants to do another set of > Xrays in about 2 more months. Any advice? > > Christee > > Lilee Unilateral A-Typical w/Plantaris CF > > > > > > --------------------------------- > > Yahoo! FareChase - Search multiple travel sites in one click. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 I did call Dr. Ponseti yesterday. He said that I really didnt know enough info. (whatpart is shorter. Is it the leg or the hips, etc) for him to really give me an awnser. He said he wouldnt worry about it too much until I knew some more. I scheduled an appt. with a local Ortho for Nov. 29th. Im not too sure if this guy really deals with alot of this as we are a small town. But I am just going to go in there, and tell him that he needs to do an ultrasound on her hips. And if he doesnt, I will get it done elsewhere. I keep thinking, if she does have hip dysplasia or something that will require that hip brace...will she wear both the hip brace AND the P/M at the same time? WIll I have to choose which one she'll wear? I mean,she is in the P/M till she's 4yrs. The hip thing is I think 2 months? But I dont want to waste our trip to Iowa as she has A-Typical w/cavus. You know what I mean?! I pray to God her hips are Ok, and I wont have to make that decision! angelmommy23 wrote: I will say that if the issue is not hip related, then the proceedure for correction is the Ilizarov fixator, and isnt real nice. A heel lift or specially made shoes will suffice. My husband has a 1/2 in difference in his legs because of an accident that damaged his growth plate when he was 14. He used to wear a heel lift and he said that worked very well; now he doesnt use anything and he sometimes has chiropractic issues in his back, but it does not really affect his life beyond that. Angel Have they done ultrasounds > of her hips? At her age ultrasounds sometimes tell them more than > x-rays (the bones are still soft enough that everything doesn't show > up in x-rays). The first thing that comes to mind is a hip issue. I > only say that though because we have a daughter with bilateral > congenital hip dysplasia. Maybe get a second opinion, just to be safe. > Hip issues are much easier to fix the earlier they are caught! > > Marcia > > > > Leg longer that the other... > > > > > > My daughter Lilee has been in the P/M now for about 2 weeks. She > is 3 1/2 months old. I recently have noticed that her Clubfoot leg is > longer than the other by up to 1/2? inch. I am going to measure it > tonight. Has anyone else expierenced this? What was the outcome? The > follow-up Dr. we have DID confirm ny suspishions about this. He did > Xrays and said her hips were normal, but he wants to do another set of > Xrays in about 2 more months. Any advice? > > Christee > > Lilee Unilateral A-Typical w/Plantaris CF > > > > > > --------------------------------- > > Yahoo! FareChase - Search multiple travel sites in one click. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 If you get a 2nd opinion it would be with a pediatric orthopedist. Make sure they specialize in pediatrics though. Hip dysplasia is pretty common and if caught early very easily treated! Our daughter's case is unusually complex in that it is a congenital deformity present at birth, not the normal dysplasia. Anyway, for peace of mind I would get it checked out. Also, does she have uneven fat folds in her thighs/buttox area? That's another sign of dysplasia. If her hips ever make a clicking, thumping, bumping noise that's another sign. Like if she's sitting on your hip or if you bend her legs at the hips and knees you might feel it (have you ever seen the dr. do this part of the exam at a well-baby visit). I only recommend the ultrasound because of her age. I think ultrasounds are most accurate up until 6 months and after that x-rays can be adequate, Anyway, good luck with your decision. Marcia Leg longer that the other... My daughter Lilee has been in the P/M now for about 2 weeks. She is 3 1/2 months old. I recently have noticed that her Clubfoot leg is longer than the other by up to 1/2? inch. I am going to measure it tonight. Has anyone else expierenced this? What was the outcome? The follow-up Dr. we have DID confirm ny suspishions about this. He did Xrays and said her hips were normal, but he wants to do another set of Xrays in about 2 more months. Any advice? Christee Lilee Unilateral A-Typical w/Plantaris CF --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
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