Re: How many kids have significantly recovered...

[Guest guest]

Hi, would you mind telling what enzymes and the dosages you are using?

Also a sample of what his typical diet is, I'm really interested in how to

eliminate phenols from the diet. Also are you not giving him any supplements?

Thanks

danaatty@... >>

My son was diagnosed as classic Kanner's autism at

> age 3-1/2. He

> was very low functioning, he tested at developmental

> age 0-3 months.

> He did not develop and then regress, he just never

> developed. He had

> absolutely no language or play at all, he would just

> line up objects

> and stare at them all day long. He was a happy kid,

> just not " with

> us " .

>

> He has been gfcf plus removal of most other foods

> for about 22 months

> now. I have been able to add back many foods, altho

> not all, with the

> use of digestive enzymes. Before the enzymes, he

> was down to 7 foods,

> one of which he was still reacting to. Now, his

> diet has expanded

> somewhat, but he is still gfcf plus no nuts, seeds,

> cane sugar, high

> phenols, or most supplements.

>

[Guest guest]

my son Connor was diagnosed in January with borderline PDD-NOS and is now

incredibly social, connected, imitates other children, has good eye contact.

He doesn't only choose swings at the playground anymore and doesn't count

everything any more. These symptoms were sporadic, but cause for the

diagnosis. We beleive he is dramatically improved and my friend who has

known him since he was 6 months old saw him today after 2 months. She said

she felt as though she was re-meeting Connor-He's a different child. Always

sweet, but now talking with her, sharing things, playing with or next to

other children in playgroup, etc. He is 3 in Nov. and I am interested in his

child study team evaluations for preschool. He has delays but I beleave his

autistic tendencies have disappeared. Now if I could only get through his

delayed but blossoming terrible two's.....

Helene

[Guest guest]

My son has. I believe it was a combo of the diet and in home behavioral

therapy. We recently consulted with a doctor who is studying 1500 autistic

kids, and she said, " When was your son diagnosed? " I told her it was when he

was 3-1/2 and she swears he doesn't show any characteristics at all. She felt

he was very set in his ways, but that could just be personality. She said she

might label him as Asperger's, but in her honest opinion, she didn't feel he was

on the spectrum. When I received her letter regarding our visit, it was very

clear that she did not think he qualified for the ASD label.

It's a good feeling!

a - Peoria IL mom to Alec 7, 5.3 (ASD), 3.5

>>>>>I am just curious as to how many in this group have children who have

significantly recovered after implementing a gfcf diet, as my son has??

How many have had a diagnoses of PDD or whatever, and have been told their child

no longer fits the original diagnosis??..I am just curious......Thanks<<<<<<Get

more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

My son was diagnosed as classic Kanner's autism at age 3-1/2. He

was very low functioning, he tested at developmental age 0-3 months.

He did not develop and then regress, he just never developed. He had

absolutely no language or play at all, he would just line up objects

and stare at them all day long. He was a happy kid, just not " with

us " .

He has been gfcf plus removal of most other foods for about 22 months

now. I have been able to add back many foods, altho not all, with the

use of digestive enzymes. Before the enzymes, he was down to 7 foods,

one of which he was still reacting to. Now, his diet has expanded

somewhat, but he is still gfcf plus no nuts, seeds, cane sugar, high

phenols, or most supplements.

My son is now no longer autistic at all. He acts like a typical 2-1/2

yo child, but he is now age 5, so I believe he would still qualify as

PDD because he is still not age appropriate. But he no longer does

any behavior which would make anyone think he was anything other than

a very large 2-1/2 yo child.

I can give him a small amount of a " forbidden " food every once in a

while as a planned infraction, with enzymes, and he will have a mild

reaction to it, lasting about 2 days, but nothing that would make you

want to give him the label of autistic again. But he acts like a

2-1/2 yo boy in a 5 yo body, because he still has to go through all

the developmental stages just like every other child.

[Guest guest]

My son has fully recovered.

[Guest guest]

> is it safe to put kids on enzymes without a doc? what

> food should they avoid?

I began enzymes without a doctor advise. You can purchase them over

the counter. Here is a group where you can ask for more information

about enzymes.

http://groups.yahoo.com/group/enzymesandautism

I started the enzymes for my son from this url

http://www.houstonni.com/

I kept him on the same strict diet for a few weeks, then began adding

back foods one at a time, to see if the enzymes would help him with

other foods. I was able to add back many foods, but not all, as my

list from my previous reply indicated.

You would have to try for your own child, to see which foods s/he

would be able to tolerate with the use of whichever enzyme product/s

you chose to use.

[Guest guest]

> Hi, would you mind telling what enzymes and the dosages you are

using?

I use enzymes from this url

http://www.houstonni.com/

Some kids do okay with one capsule of each enzyme at each meal, but my

son needs two capsules of each enzyme, I think because he has so many

food issues and intolerances.

You can get more information about different enzymes from this group

http://groups.yahoo.com/group/enzymesandautism

> Also a sample of what his typical diet is, I'm really interested in

how to

> eliminate phenols from the diet.

I will send you a " typical " diet by email later when I can compile it

for you. I have had to eliminate all high phenol foods from my son's

diet, the enzymes do not help him with them, altho they do help some

kids with phenol issues. Here is more phenol information for you, if

you are interested.

http://home.pacbell.net/cscomp/phenol.htm

> Also are you not giving him any

supplements?

I give a general vitamin supplement, and a calcium supplement, which I

buy at my health food store. My son reacts to almost all supplements,

these are the only ones I have found that my son will tolerate.

> Thanks

>

>

[Guest guest]

My daughter has but the gfcf diet was only one piece of the puzzle.

-Phyllis

How many kids have significantly recovered...

> I am just curious as to how many in this group have children who have

significantly recovered after implementing a gfcf diet, as my son

has?? How many have had a diagnoses of PDD or whatever, and have been told

their child no longer fits the original diagnosis??..I am just

curious......Thanks

>

>

>

>

>

[Guest guest]

When this is the case, some members tend to move on to other groups,

like recoveredkids, abmd.

My son's school is currently disputing his diagnosis, so I guess you

can add him to your list. He is still courageous, creative and

curious, thank goodness, but no longer physically awkward, frequently

ill, stressed out, and out of sync with his surroundings. GFCF has

done wonders. He is also on a chelation program. His ASD dx

resulted from vaccination reactions, tons of antibiotics, and damaged

immune system.

> I am just curious as to how many in this group have children who

have significantly recovered after implementing a gfcf diet, as my

son has?? How many have had a diagnoses of PDD or whatever,

and have been told their child no longer fits the original

diagnosis??..I am just curious......Thanks

[Guest guest]

We've talked about this before on the list. Alot of our children have had to

play catch up and it's really nice to have them go through all the stages

they missed. You might want your child to just act age appropriate right

away but I think this is a better way of learning for them.

MA

[Guest guest]

> That's interesting that you compare your 5yo to a 21/2 yo. I said

that the

> other day when my son was testing me all day like a younger toddler

would.

> Do you really think they have to play catch up for the years they

lost ?

> Very interesting. Everyone who sees my son can't believe he is 5

because he

> looks and acts much younger.

I believe all children have to go through the " stages of childhood " .

At age two, so I have read, children learn they are their own person,

do not HAVE TO do what they are told, are exploring their boundaries

and limits, etc. My son never developed at all. At age 3-1/2 he was

still at the 0-3 month stage. But now he is progressing through all

the stages, and right now he is testing his limits and all, just like

a 2yo child would. He has about as much language as a 2yo, he

likes to play with 2yo toys, he is curious about the things in my

house, plays dress up, likes to " help " me with chores, wants to watch

Teletubbies [ugh!] etc. Fortunately however, he does not tantrum.

[Guest guest]

The diet has been a constant for almost 4 years now and my son regresses when

we deviate. Treating underlying virus and resulting brain inflammation has

been huge toward recovery as he is near normal now. We are looking into

metal chelation as the next treatment after underlying virus is cured because

we have heard of kids that can eat a regular diet a year into treatment for

heavy metals.

Miriam

[Guest guest]

> My son reminds me of just that and I was talked into sending him to

> Kindergarten by the school district. He does know the academics but

he is

> far behind in play,social and language skills. I now feel I made a

mistake.

> Do these kids eventually catch up or always lag.(I know there is no

one

> answer for that just curious what others may have experienced.)

Just my experience and humble opinion....catch up is possible, but

needs support, compassion, encouragement, and regular, direct

instruction. Just tossing a kid in with a " regular " class, even with

an aide, (as some schools do) won't do it and can be excruciatingly

stressful.