Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Yeah, just recently they interviewed the writers of House- and they did talk about how they have medical experts lookng up the diseases--it really is too bad that they don't put more importance in the seriousness of these weird diseases-- You're right about the inhalers with the steroid in it-- it would have been hiding the sarc and keeping the activity seemingly low-- it is a tough one-- do we use them or do we chance that we have gotten to a point of not needing them-- so we quit. As soon as we do, we find out that they were helping to some extent. For me, I gave up on the inhalers-- the thrush and constant candidis they caused in my lungs, sinuses and mouth were too much to handle-- no amount of rinsing my mouth after dosing with them helped that issue. Even with the "spacers" those wonderful harmonica type dohickeys that are supposed to help-- didn't-- To me, it was interesting to read a couple of the articles that came up when I searched-- because no one has ever mentioned that chew would suppress the immune system. It makes sense, because anything that is that bad for us-- has to have an effect on the immune system-- and for it to lead so directly to oral cancers shows just how nasty a substance it is. Heck, if the chew doesn't make your teeth fall out-- then the pred seems to have had the osteoporosis effect on mine-- they brittle, breaking from grinding, and now I'm faced with the decision-- do I have them pulled or fixed or capped. It's tough-- if I felt I'd be livng until I'm in my 80's- I'd fix them. With the sarc now effecting 3 of the valves in my heart-- why bother. Sincerely, Tracie NS Co-owner/moderator From: tracie feldhaus <tiodaat2001@ yahoo.com>Subject: Chewing tobacco as an immunosuppressantTo: neurosarcoidosis@ yahoogroups. comDate: Wednesday, April 29, 2009, 1:15 AM Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- I'd bet we'll all still die anyway. And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! It's nuts-- I know that the pred was what makes me wanna go out and "touch someone." Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. Oh my, it must be bed time.... What can I say- I'm on overload Tracie NS Co-owner and crazy woman tonight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 I also like they way the doctor said when asked, is this treatable and she replied, " Yes, we put him on corticosteroids and Methotrexate and he will be fine " Don't we wish it was just that easy:). OK did you understand why he listened to his larynx? I've had a hoarse voice for a long time, maybe I just forgot (imagine that), but is there something to that? The I can't remember if I am crazy or not person, Marla Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- I'd bet we'll all still die anyway. And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! It's nuts-- I know that the pred was what makes me wanna go out and " touch someone. " Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. Oh my, it must be bed time.... What can I say- I'm on overload Tracie NS Co-owner and crazy woman tonight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 He was probably hoarse-- or maybe he had some swelling of the parotids- or lymphnodes in his neck. What do you think? BTW guys, I'm not suggesting we go to chew to suppress our immune systems-- even this herbal is not a good thing. Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- I'd bet we'll all still die anyway. And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! It's nuts-- I know that the pred was what makes me wanna go out and "touch someone." Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. Oh my, it must be bed time.... What can I say- I'm on overload Tracie NS Co-owner and crazy woman tonight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 I mentioned once to my doc about my hoarseness, and thought maybe I could have a lesion on my vocal cords, I do find that the more tired, or stress I am, the more hoarse I am, sometimes to the point I can barely get the words out. So I think having a lesion on the vocal cord is possible. Don't know for sure what they were looking for when they did that on House?? Don't you just love that show though, it really makes me think and stimulates my under worked brain some, my husband just thinks I have thing for Dr. House, I'm like watch the show, he's a jerk, just a smart jerk! Hope you are doing well, is the sun out there, it is here today, and warming up finally. Blessings, Marla He was probably hoarse-- or maybe he had some swelling of the parotids- or lymphnodes in his neck. What do you think? BTW guys, I'm not suggesting we go to chew to suppress our immune systems-- even this herbal is not a good thing. Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- I'd bet we'll all still die anyway. And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! It's nuts-- I know that the pred was what makes me wanna go out and " touch someone. " Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. Oh my, it must be bed time.... What can I say- I'm on overload Tracie NS Co-owner and crazy woman tonight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Tracie, Ok as you know I use to dip Copenhagen for almost 30 years. I look over my past, and I remember when the docs on 6 different times dx me with hep and/or meng. That was until the they did the proper blood work to validate their DX. Then every time after the tests I came up clean. This was ina time period from 1990 to 2005. I am thinking that I had NS longer then I know and maybe the copenhagen or the nicotine in it may have suppressed the onset. I was still dipping when NS Flared Up big and nasty. SO I believe it may suppress they onset but it will not keep it suppressed. Now all that being said I do not think all of BS that comes with dipping or chewing is worth the endeavor. I tried to quit dipping for the last 5 Years. And now I have found a way and I am loving. Please everybody " Do not fall for the media and TV hype " Please do not take up the habit it is not worth it................ I know!!!!! Pray for all my friends (thats all of you) Greg the former tobacco user > > > > > > > > > > > > > > Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- > I'd bet we'll all still die anyway. > And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! > It's nuts-- I know that the pred was what makes me wanna go out and " touch someone. " Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! > Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. > Oh my, it must be bed time.... > What can I say- I'm on overload > > Tracie > NS Co-owner and crazy woman tonight. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Tracie As a former resident of Cincinnati, Ohio and worked there after I came back to KY, I salute you and your Flying Pig! That's the name of their official 26.2 marathon! I used to work one of the water stops in front of the building I worked in along with about 50 --70 other employees. They have people dress up in big stuffed pig costumes and it's on their logo also. The most amazing things is the racing wheelchair participants who start first! What strength & determination they have! PS When can the piggie come spend a weekend with Auntie ? The race is coming up in a couple of weeks! LOL Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: Chewing tobacco as an immunosuppressantTo: neurosarcoidosis Date: Wednesday, April 29, 2009, 4:15 AM Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- I'd bet we'll all still die anyway. And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! It's nuts-- I know that the pred was what makes me wanna go out and "touch someone." Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. Oh my, it must be bed time.... What can I say- I'm on overload Tracie NS Co-owner and crazy woman tonight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 I'm not sure, it's not house broke yet-- I think... From: tracie feldhaus <tiodaat2001@ yahoo.com>Subject: Chewing tobacco as an immunosuppressantTo: neurosarcoidosis@ yahoogroups. comDate: Wednesday, April 29, 2009, 4:15 AM Wow-- that is interesting. So, if we chew tobacco-- then we'd not need the other stuff, pred, BRM's, Dmards-- but then, we'd be worried about the tongue and gum cancers-- and after having 2 bro-in laws have hunks of both carved out from chew-- I'd bet we'll all still die anyway. And Greg-- I'm proud of you that between quitting the snuff, and starting the pred-- that as you said-- there is no dead bodies around -- I'm not sure I could have done it! LOL! It's nuts-- I know that the pred was what makes me wanna go out and "touch someone." Maybe now, I'll just carry my Flying Pig everywhere I go-- and instead of giving people a salute of sorts (see the Beverly Hillbillies movie if you are confused-- I do live in California) I'll just smack em with my pig! Oh, and Rose-- you can come over in those leopard skin things, and fit right in-- of course, you'll need your ice brassiere wrapped around your head to make it complete. Oh my, it must be bed time.... What can I say- I'm on overload Tracie NS Co-owner and crazy woman tonight. Quote Link to comment Share on other sites More sharing options...
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