Re: Contemplating a second consult with Cranial Tech- ? for Leila and others

May 14, 2009

I don't post here much anymore, as my son who had plagio/tort is now 5 yrs. old,

but your post caught my eye. My son wore a helmet for 3 mos., which corrected

the plagio but his tort side still didn't look normal (bulged above his ear and

his neck was much thinner on that side). Although I think the helmet kept it

from getting worse, it didn't correct it. That said, as a 5 yr. old with close

cropped hair (buzzed on the sides), I don't know that anyone would notice it.

After his tort resolved (we stopped PT at 13 mos.), his neck started to fill in

and the bulging became less pronounced. His ear on that side still sticks out

slightly further than the other side. Although my husband and I can still see

this, I don't think anyone else notices it. You'd have to be studying him pretty

hard and know what you were looking for. Even people who could see it before

don't really notice it now. I just wanted to give you some hope that some of

what you see may correct on its own as she grows. Good luck!

Mom to Connor (resolved plagio/tort, age 5 1/2)

> > > >

> > > > Okay. Well ...long story short...last time I called on the phone to get

my sons cephalic index and messurements at CT they got us confused with another

patient with the same first and last name. His mom is Antoinette not

Antonia...ironic I know, but I'm so HAPPY and heres why!!!!!!

> > > >

> > > > Well today...was our graduation. I was ready to walk into CT and spit

fire or punch one of them after last week they had gave me another patients

numbers and said we started at 95% and only went down a few decimals. Here is

the real scoop and ill be posting pics ASAP!

> > > >

> > > > Today was graduation and of course they could tell I was pissed off

beyond words when we got there. I was really getting mad because after the mix

up on the phone ( and at this point they hadnt realized it yet) they were

discouraging a second band to the fullest. Like they made me feel like they were

pushing us (nicely out the door) which I find odd since they help so many older

babies.

> > > >

> > > > Anyway, after we figured out the mix up....We started with the scan.

Well Jayden wasnt having it and they didnt get a very good one to compare.

Not at all. So they did the measurements and the after pics. THANK GOD I got the

CORRECT info. on 1/19/09 we were at 96.5 percent for the cephalic index WOW.

Today....drum roll please...we went to 90.6 percent. OMG. I guess because I see

him everyday...I couldnt tell. The before and after pics you can REALLY see

change. Now for the head out of the top of the helmet. They said that He had

increased head height that made his head slope down to his forehead, and that

the growth on top gave a more even across the top look, which now I DO see in

the after pic. I'm going to have to take a pic of a pic since I dont have a

scanner but it will show you a good idea. Now of course....his head still has a

major flat spot in the back that I will just have to learn to accept and...It

still looks ugly to me from the

> > > top, BUt hey those are really good measurements. Now as for the mix up I

told them I was ready to rip some eyeballs out and they are making sure to pay

better attention in the future cause boy was I HEATED. Its been a long 16 weeks

but...I'm glad its over. The ladies cried and hugged him bye, and my son kept

pointing to his " hemmie " and pointing to his head because he wants it back on. I

am mad they were kind of careless about the mix up, BUT so glad it was a mistake

because Jayden DID get correction regardless of what I still see. A big

thing that does have me wondering though, when they did mix me up on the phone

and had said the baby went from 95% to 94.6 % they were like pretty much

refusing to do a second band because of older babies not growing so much. That I

find odd cause many people hear started later and had two bands. Perhaps a

second band would get even better numbers, but eh, I just dont think I can do 16

more weeks of Arizona lol.

> > > After seeing everything in the end AFTER figuring out they had confused me

with another patient on the phone I'm much better now. I still wonder why not

much was shaved out of the back of the band, I asked and they said that he had

mild plagio too so they were focasing on that primarily and the brachy as a

close second. Its kind of bitter sweet because the 16 weeks went so fast and we

are not used to the helmet free head but I'm glad to be done.

> > > > Of course as soon as we got off the plane we were drivin home and got

into a serious car accident where Baby got a concussion. Wish we had left

" hemmie " on just a bit longer and it might have added some protection. Our car

is totaled, but were all okay. That is our story! Thank you all so much for the

encouragement, the tips, the suggestions that got us to angel flights then to

Arizona CT. I'll be sticking around because I see how much staying around really

helps the newbies who are so lost. I know without you and this board...it would

have not been possible.

> > > >

> > >

> >

>

May 14, 2009

,

Thanks for your post. Self correction from now on is all I can hope for at this point as we have gone through bands and CST, stretches and PT and are all just about done now. I am hoping for some positive natural changes as she grows, but I am also looking forward to see if her brachy improves by the 4% that was quoted on one of the studies posted on this board.

Bottom line is that she really looks good to us.

Thanks,

Leila,

Maysa, almost 16 months, 2 weeks left in DOC band 2

www.mymaysa.wordpress.com

From: <andileigh@...>Subject: Re: Contemplating a second consult with Cranial Tech- ? for Leila and othersPlagiocephaly Date: Thursday, May 14, 2009, 10:18 AM

I don't post here much anymore, as my son who had plagio/tort is now 5 yrs. old, but your post caught my eye. My son wore a helmet for 3 mos., which corrected the plagio but his tort side still didn't look normal (bulged above his ear and his neck was much thinner on that side). Although I think the helmet kept it from getting worse, it didn't correct it. That said, as a 5 yr. old with close cropped hair (buzzed on the sides), I don't know that anyone would notice it. After his tort resolved (we stopped PT at 13 mos.), his neck started to fill in and the bulging became less pronounced. His ear on that side still sticks out slightly further than the other side. Although my husband and I can still see this, I don't think anyone else notices it. You'd have to be studying him pretty hard and know what you were looking for. Even people who could see it before don't really notice it now. I just wanted to give you some hope that some of what you see may

correct on its own as she grows. Good luck!Mom to Connor (resolved plagio/tort, age 5 1/2)> > > >> > > > Okay. Well ...long story short...last time I called on the phone to get my sons cephalic index and messurements at CT they got us confused with another patient with the same first and last name. His

mom is Antoinette not Antonia...ironic I know, but I'm so HAPPY and heres why!!!!!!> > > > > > > > Well today...was our graduation. I was ready to walk into CT and spit fire or punch one of them after last week they had gave me another patients numbers and said we started at 95% and only went down a few decimals. Here is the real scoop and ill be posting pics ASAP!> > > > > > > > Today was graduation and of course they could tell I was pissed off beyond words when we got there. I was really getting mad because after the mix up on the phone ( and at this point they hadnt realized it yet) they were discouraging a second band to the fullest. Like they made me feel like they were pushing us (nicely out the door) which I find odd since they help so many older babies.> > > > > > > > Anyway, after we figured out the mix up....We started with the scan. Well Jayden

wasnt having it and they didnt get a very good one to compare. Not at all. So they did the measurements and the after pics. THANK GOD I got the CORRECT info. on 1/19/09 we were at 96.5 percent for the cephalic index WOW. Today....drum roll please...we went to 90.6 percent. OMG. I guess because I see him everyday...I couldnt tell. The before and after pics you can REALLY see change. Now for the head out of the top of the helmet. They said that He had increased head height that made his head slope down to his forehead, and that the growth on top gave a more even across the top look, which now I DO see in the after pic. I'm going to have to take a pic of a pic since I dont have a scanner but it will show you a good idea. Now of course....his head still has a major flat spot in the back that I will just have to learn to accept and...It still looks ugly to me from the> > > top, BUt hey those are really good measurements. Now as for the mix

up I told them I was ready to rip some eyeballs out and they are making sure to pay better attention in the future cause boy was I HEATED. Its been a long 16 weeks but...I'm glad its over. The ladies cried and hugged him bye, and my son kept pointing to his "hemmie" and pointing to his head because he wants it back on. I am mad they were kind of careless about the mix up, BUT so glad it was a mistake because Jayden DID get correction regardless of what I still see. A big thing that does have me wondering though, when they did mix me up on the phone and had said the baby went from 95% to 94.6 % they were like pretty much refusing to do a second band because of older babies not growing so much. That I find odd cause many people hear started later and had two bands. Perhaps a second band would get even better numbers, but eh, I just dont think I can do 16 more weeks of Arizona lol.> > > After seeing everything in the end AFTER figuring

out they had confused me with another patient on the phone I'm much better now. I still wonder why not much was shaved out of the back of the band, I asked and they said that he had mild plagio too so they were focasing on that primarily and the brachy as a close second. Its kind of bitter sweet because the 16 weeks went so fast and we are not used to the helmet free head but I'm glad to be done. > > > > Of course as soon as we got off the plane we were drivin home and got into a serious car accident where Baby got a concussion. Wish we had left "hemmie" on just a bit longer and it might have added some protection. Our car is totaled, but were all okay. That is our story! Thank you all so much for the encouragement, the tips, the suggestions that got us to angel flights then to Arizona CT. I'll be sticking around because I see how much staying around really helps the newbies who are so lost. I know without you and this board...it would

have not been possible.> > > >> > >> >>

May 15, 2009

,

I was so happy to read your post becuase my biggest concern with my daughter's

head right now is the bulge over the ear and her neck also looks thinner on that

side (I did not mention that before because I wasn't sure if it was related). I

actually asked the PT yesterday if the neck would change once the muscle was

lengthened and we were both wondering if then the head bulge would look less

pronounced. It's encouraging to hear your son's story.

Thank you, I am so greatful for this group.

Annette

> > > > >

> > > > > Okay. Well ...long story short...last time I called on the phone to

get my sons cephalic index and messurements at CT they got us confused with

another patient with the same first and last name. His mom is Antoinette not

Antonia...ironic I know, but I'm so HAPPY and heres why!!!!!!

> > > > >

> > > > > Well today...was our graduation. I was ready to walk into CT and spit

fire or punch one of them after last week they had gave me another patients

numbers and said we started at 95% and only went down a few decimals. Here is

the real scoop and ill be posting pics ASAP!

> > > > >

> > > > > Today was graduation and of course they could tell I was pissed off

beyond words when we got there. I was really getting mad because after the mix

up on the phone ( and at this point they hadnt realized it yet) they were

discouraging a second band to the fullest. Like they made me feel like they were

pushing us (nicely out the door) which I find odd since they help so many older

babies.

> > > > >

> > > > > Anyway, after we figured out the mix up....We started with the scan.