Down Under?

[Guest guest]

Margaret, does the "au" at the end of your email address stand for Australia? If so, do you have any info to share with Ruth from New Zealand? Here is her message:

Hello there. I am not sure where I am writing to - New Zealand or overseas. I was hoping to find a group in New Zealand, with whom to share my experiences and problems of having spinal cord sardoid. I am paralysed at T-4. Can you help?? Many thanks. Ruth

Ruth Romanos rromanos@...

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: margaretshepherd@...Date: Sat, 21 Feb 2009 14:11:10 -0800Subject: Re: hello

HOW SICK CAN YOU GET FROM THIS DISEASE? My mother in law passed away on christmas eve from it. She contracted cryptoccocus while in hospital and never recovered she was only 60years old So yeah you can get pretty sick. Look after yourself and dont be afraid to ask questions after all its your body. cheers

From: Mona Burke <haleysgirl321 (AT) yahoo (DOT) com>Subject: helloTo: neurosarcoidosis Received: Saturday, 21 February, 2009, 5:05 PM

as I said I'm new at this. I was told in 2006 i had sarcoidosis. At that time my doctor didn't seem to worried about it. Last year he told me i was in remission with it,basically gone. well a few months ago it started back shortness of breath etc. i had another Bio.. of the lungs and he found an infection in there staff (mrsa). I needed up at the ER and put in the hospital on IV antibiotics three different ones. i was in there two days and sent home on three antibiotics. this is awful. On Monday i go back to my lung doctor and i just wonder what next. it really scares me alittle. I don't even know if i can trust my doctor now. can anyone help on this. how sick can you get with this disease? Mona

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