Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 I have 21 yr.old daughter with Rett syndrome. Have been on SCD for 5 months to see if will help with intestinal pain and food intolerances. She is completely dependent on enemas and digital stimulation to pass stool and gas. Have been to emergency room a couple of times since on the diet when stool just not moving thru (her stools are never hard. They are usually soft and formed but just don't move thru well resulting in lots of pain and self abusive behaviors) We just were at ER room last night. They suggested miralax which alot of girls with Retts use. We did try it probably 6 - 7 years ago and seemed to cause her alot of discomfort and made her stools too loose which is a problem for her. Wondering though if we need to try it again. Curious what your thoughts are and for those of you who use it, does it cause alot of gas or other issues for you . Thank you so much. Quote Link to comment Share on other sites More sharing options...
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