Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 I don't think it is the taste that he is used to, but the look of things. I gave him the Vance's waffle and he immediately said " I want yellow waffle " , referring to Ego's. The Vance's one look a little orangy brown. I am just getting frustrated, because he won't eat anyhting except for the pizza. At least before he had a slightly varied diet. Loren Loren Van De Griek mommy to - 6yrs, Ross - 4 yrs(ASD), Seth - 22months Hickory, NC " the harder the struggle, the greater the victory " Shop for great Kay products with me online at: www.marykay.com/lvandegriek At 10:45 PM 9/10/2001 -0400, you wrote: >* >Loren, >Each child is different, but my son didn't show ANY withdrawals either. >I removed casein first and then slowly the gluten and this was over 17 >months ago and in that time he has come so far. The diet has become easy >to me now and my son LOVES all I cook for him. If your little one is so >use to the taste of a certain food, once you take that food away wait >awhile before you offer the replacement for that particular food so as >they are not comparing. > (LJs mom) in New York >* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 SunflowerHello all, My name is and I'm coming up on 17 months out from surgery. I have had a great success in the losing department. A quick rundown...I've lost 234lbs, gone from a size 32 to a size 8/10/12 depending on the cut and maker. My BMI went from 61.5 to 27. I recently had a body fat analysis done and am at 27% body fat. My PCP told me the only thing I have left to lose is loose skin that will have to be removed. He and my surgeon don't want me to lose anymore weight. There is my joy and my dilemma. I don't know how to stop trying to lose weight! I have been on one diet or another since I was seven years old, that's 33 years of trying. Now I have to try to maintain. The bizarre thing about this is that right now I am carrying 5lbs of water weight, ladies know why, and I'm obsessing! I go from monitoring everything that goes into my mouth to trying to binge (not easy but I've succeeded a couple of times). I'm starting to drive myself crazy, and I am terrified! I am so afraid that I am going to regain, or spend the rest of my life letting food drive me nuts. The other problem is that I'm recently divorced, yes one more lady who finally got the self esteem to realize that she deserved better. This means that I'm around alone at night with too much time to think. Well, that's my story, any advice or help any of you can offer would be greatly appreciated. Sorry this is so long. I don't usually go on like this. S Dr. Randall Open RNY 1/9/2002 -234lbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 How tall are you? Thanks, Vitalady, Inc. T www.vitalady.com If you are interested in PayPal, please click here: https://www.paypal.com/affil/pal=orders%40vitalady.com New to List > SunflowerHello all, > > My name is and I'm coming up on 17 months out from surgery. I have had > a great success in the losing department. A quick rundown...I've lost > 234lbs, gone from a size 32 to a size 8/10/12 depending on the cut and > maker. My BMI went from 61.5 to 27. I recently had a body fat analysis > done and am at 27% body fat. My PCP told me the only thing I have left to > lose is loose skin that will have to be removed. He and my surgeon don't > want me to lose anymore weight. > > There is my joy and my dilemma. I don't know how to stop trying to lose > weight! I have been on one diet or another since I was seven years old, > that's 33 years of trying. Now I have to try to maintain. The bizarre > thing about this is that right now I am carrying 5lbs of water weight, > ladies know why, and I'm obsessing! I go from monitoring everything that > goes into my mouth to trying to binge (not easy but I've succeeded a couple > of times). I'm starting to drive myself crazy, and I am terrified! I am so > afraid that I am going to regain, or spend the rest of my life letting food > drive me nuts. > > The other problem is that I'm recently divorced, yes one more lady who > finally got the self esteem to realize that she deserved better. This means > that I'm around alone at night with too much time to think. > > Well, that's my story, any advice or help any of you can offer would be > greatly appreciated. Sorry this is so long. I don't usually go on like > this. > > S > Dr. Randall > Open RNY 1/9/2002 > -234lbs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Welcome - I am fairly new to the list also. Are you getting any counseling? That would be my suggestion in trying to learn not to obsess about food. I can imagine how frustrating it must seem. Congratulations on your great success. Jeanne in WI Age 39 - Dr. T. Chua Open RNY - 5/21/02 314/210/199 or less djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Welcome to the group . Congrats on your success. Lori Owen - Denton, Texas SRVG 7/16/01 Dr. Ritter/Dr. Bryce 479/335/??? On Mon, 9 Jun 2003 20:23:30 -0400 " Marie Szmyt " writes: > SunflowerHello all, > > My name is and I'm coming up on 17 months out from surgery. I > have had > a great success in the losing department. A quick rundown...I've > lost > 234lbs, gone from a size 32 to a size 8/10/12 depending on the cut > and > maker. My BMI went from 61.5 to 27. I recently had a body fat > analysis > done and am at 27% body fat. My PCP told me the only thing I have > left to > lose is loose skin that will have to be removed. He and my surgeon > don't > want me to lose anymore weight. > > There is my joy and my dilemma. I don't know how to stop trying to > lose > weight! I have been on one diet or another since I was seven years > old, > that's 33 years of trying. Now I have to try to maintain. The > bizarre > thing about this is that right now I am carrying 5lbs of water > weight, > ladies know why, and I'm obsessing! I go from monitoring everything > that > goes into my mouth to trying to binge (not easy but I've succeeded a > couple > of times). I'm starting to drive myself crazy, and I am terrified! > I am so > afraid that I am going to regain, or spend the rest of my life > letting food > drive me nuts. > > The other problem is that I'm recently divorced, yes one more lady > who > finally got the self esteem to realize that she deserved better. > This means > that I'm around alone at night with too much time to think. > > Well, that's my story, any advice or help any of you can offer would > be > greatly appreciated. Sorry this is so long. I don't usually go on > like > this. > > S > Dr. Randall > Open RNY 1/9/2002 > -234lbs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 In a message dated 6/11/03 5:38:18 PM Central Daylight Time, ray@... writes: << I do this, but it is still a constant battle to maintain my weight. >> This statement hits home with me. It shows me how much I am still in the grips of food addiction and have a warped perspective on food and eating. While I intellectually understand how difficult it would be to be fighting to maintain a healthy body weight, this situation feeds into my desires to have the freedom, even the MANDATE, to EAT with abandon. On the one hand, I understand that it would be a terrible condition to wish on myself ... but that dysfunctional eater in me fantasizes about it all the time. Beth Houston, TX VBG - Dr. Srungaram 05/31/00 - 314 lbs. 11/01/02 - Abdominoplasty 11/29/02 - 160 lbs. 5'10 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 I have the same problem, too much weight loss. My surgeon advised me to reverse the pouch rules and start drinking with my meals, eat snacks between meals and throw in a few carbohydrates. I do this, but it is still a constant battle to maintain my weight. Ray Hooks For WLS nutrition info, visit http://www.bariatricsupplementsystem.com Marie Szmyt wrote: > > SunflowerHello all, > > My name is and I'm coming up on 17 months out from surgery. I have had > a great success in the losing department. A quick rundown...I've lost > 234lbs, gone from a size 32 to a size 8/10/12 depending on the cut and > maker. My BMI went from 61.5 to 27. I recently had a body fat analysis > done and am at 27% body fat. My PCP told me the only thing I have left to > lose is loose skin that will have to be removed. He and my surgeon don't > want me to lose anymore weight. > > There is my joy and my dilemma. I don't know how to stop trying to lose > weight! I have been on one diet or another since I was seven years old, > that's 33 years of trying. Now I have to try to maintain. The bizarre > thing about this is that right now I am carrying 5lbs of water weight, > ladies know why, and I'm obsessing! I go from monitoring everything that > goes into my mouth to trying to binge (not easy but I've succeeded a couple > of times). I'm starting to drive myself crazy, and I am terrified! I am so > afraid that I am going to regain, or spend the rest of my life letting food > drive me nuts. > > The other problem is that I'm recently divorced, yes one more lady who > finally got the self esteem to realize that she deserved better. This means > that I'm around alone at night with too much time to think. > > Well, that's my story, any advice or help any of you can offer would be > greatly appreciated. Sorry this is so long. I don't usually go on like > this. > > S > Dr. Randall > Open RNY 1/9/2002 > -234lbs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 In a message dated 6/11/03 5:38:18 PM Central Daylight Time, ray@... writes: << I do this, but it is still a constant battle to maintain my weight. >> This statement hits home with me. It shows me how much I am still in the grips of food addiction and have a warped perspective on food and eating. While I intellectually understand how difficult it would be to be fighting to maintain a healthy body weight, this situation feeds into my desires to have the freedom, even the MANDATE, to EAT with abandon. On the one hand, I understand that it would be a terrible condition to wish on myself ... but that dysfunctional eater in me fantasizes about it all the time. Beth Houston, TX VBG - Dr. Srungaram 05/31/00 - 314 lbs. 11/01/02 - Abdominoplasty 11/29/02 - 160 lbs. 5'10 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Thank you Helen. Be well. Cheers, Darrin To: Neurosarcoidosis From: hmwalker9@...Date: Fri, 19 Feb 2010 06:03:23 -0800Subject: Re: New to list HI DARRIN,WELCOME TO OUR SITE.IF YOU ARE DIAGNOSIS WITH NEUROSARCOIDSIS YOU ARE IN A GOOD PLACE TO FIND KNOWLEDGABLE PEOPLE,FRIENDLY PEOPLE AND CARING PEOPLE.IF YOU ARE A STRANGER SITTING AT OUR CAMPFIRE OR YOU WHETHER YOU WILL INDEED BUILD A FIRE A REMAIN A WHILE YOU ARE IN A GOOD PLACE. HELEN Subject: New to listTo: "neurosarcoidosis " <neurosarcoidosis >Date: Friday, February 19, 2010, 12:42 AM Hi, I'm Darrin, new to the list, and thought I should introduce myself.For many years I've been experiencing a worsening neuro conditionI felt was ms with tremors, twitches, spasms, a myoclonic jerk, anda contracture plus visual and other sensory problems. I finally gotto see an ms neuro recently who prescribed a battery of tests thatincluded comprehensive bloodwork and not yet done potentials tests. I haven't been to the follow up yet but the blood tests were negativefor just about everything except an ACE level in the 90s when it shouldbe 60 or below. A search on this got me to neurosarcoidosis and info onit seems to cover my symptoms well plus it explains the ACE. I don't know yet if I'm just a stranger sitting at the campfire for a nightor if I'll be building a cabin here but in any event it is nice to see a thriving community. Cheers,Darrin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Darrin, I do hope we don't have to welcome you to the family-- as I'd not wish this disease on anyone. However, you are welcomed with open arms. An elevated ACE is a sign that there is "systemic" inflammation somewhere in your body-- it is not specific for sarcoidosis. In fact, we don't have a single test that is specific for sarcoidosis. Have your docs done a spinal tap? That would tell them if you have MS, since MS has specific protein bands exclusive for MS. The process you will be going through is to rule out all the other autoimmune diseases, and then maybe they'll decide you have NS. neurosarcoidosis. DO you have any other confirmed spots of sarcoidosis-- ie. lungs? We look forward to gettig to know you. Take care, Tracie NS Co-owner/moderator To: "neurosarcoidosis " <neurosarcoidosis >Sent: Fri, February 19, 2010 9:14:22 AMSubject: RE: New to list Thank you Helen. Be well. Cheers,Darrin To: Neurosarcoidosis@ yahoogroups. comFrom: hmwalker9 (AT) yahoo (DOT) comDate: Fri, 19 Feb 2010 06:03:23 -0800Subject: Re: New to list HI DARRIN,WELCOME TO OUR SITE.IF YOU ARE DIAGNOSIS WITH NEUROSARCOIDSIS YOU ARE IN A GOOD PLACE TO FIND KNOWLEDGABLE PEOPLE,FRIENDLY PEOPLE AND CARING PEOPLE.IF YOU ARE A STRANGER SITTING AT OUR CAMPFIRE OR YOU WHETHER YOU WILL INDEED BUILD A FIRE A REMAIN A WHILE YOU ARE IN A GOOD PLACE. HELEN Subject: New to listTo: "neurosarcoidosis@ yahoogroups. com" <neurosarcoidosis@ yahoogroups. com>Date: Friday, February 19, 2010, 12:42 AM Hi, I'm Darrin, new to the list, and thought I should introduce myself.For many years I've been experiencing a worsening neuro conditionI felt was ms with tremors, twitches, spasms, a myoclonic jerk, anda contracture plus visual and other sensory problems. I finally gotto see an ms neuro recently who prescribed a battery of tests thatincluded comprehensive bloodwork and not yet done potentials tests. I haven't been to the follow up yet but the blood tests were negativefor just about everything except an ACE level in the 90s when it shouldbe 60 or below. A search on this got me to neurosarcoidosis and info onit seems to cover my symptoms well plus it explains the ACE. I don't know yet if I'm just a stranger sitting at the campfire for a nightor if I'll be building a cabin here but in any event it is nice to see a thriving community. Cheers,Darrin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Hi Tracie, No lp yet. A triple EEG series is next on the list, I'm just awaiting funds. I need to get my xray from my old physician and show it to the neuro. My old doc had said my heart and major bronchi looked enlarged and he wasn't sure why. I saw an xray online of the stages of sarc and it looks much like the first stage. My brain and spinal cord showed no lesions on mri. That can happen in 5% of ms cases but I understand in sarc the damage can occur peripherally. Thanks, I'd only seen high ACE as results in a few diseases of which sarc seemed the best fit. All I want is to pin a name on it. No worries though I've got a great neuro now (lousy one before) and the only limits are time and money and both of those can be fixed. Thanks again for the feedback. I'm sure most of my questions will be answered just reading what others are writing. When I have more info myself perhaps I'll then be prepared to ask useful questions. Cheers, Darrin To: Neurosarcoidosis From: tiodaat2001@...Date: Fri, 19 Feb 2010 14:23:19 -0800Subject: Re: New to list Darrin, I do hope we don't have to welcome you to the family-- as I'd not wish this disease on anyone. However, you are welcomed with open arms. An elevated ACE is a sign that there is "systemic" inflammation somewhere in your body-- it is not specific for sarcoidosis. In fact, we don't have a single test that is specific for sarcoidosis. Have your docs done a spinal tap? That would tell them if you have MS, since MS has specific protein bands exclusive for MS. The process you will be going through is to rule out all the other autoimmune diseases, and then maybe they'll decide you have NS. neurosarcoidosis. DO you have any other confirmed spots of sarcoidosis-- ie. lungs? We look forward to gettig to know you. Take care, Tracie NS Co-owner/moderator To: "neurosarcoidosis " <neurosarcoidosis >Sent: Fri, February 19, 2010 9:14:22 AMSubject: RE: New to list Thank you Helen. Be well. Cheers,Darrin To: Neurosarcoidosis@ yahoogroups. comFrom: hmwalker9 (AT) yahoo (DOT) comDate: Fri, 19 Feb 2010 06:03:23 -0800Subject: Re: New to list HI DARRIN,WELCOME TO OUR SITE.IF YOU ARE DIAGNOSIS WITH NEUROSARCOIDSIS YOU ARE IN A GOOD PLACE TO FIND KNOWLEDGABLE PEOPLE,FRIENDLY PEOPLE AND CARING PEOPLE.IF YOU ARE A STRANGER SITTING AT OUR CAMPFIRE OR YOU WHETHER YOU WILL INDEED BUILD A FIRE A REMAIN A WHILE YOU ARE IN A GOOD PLACE. HELEN Subject: New to listTo: "neurosarcoidosis@ yahoogroups. com" <neurosarcoidosis@ yahoogroups. com>Date: Friday, February 19, 2010, 12:42 AM Hi, I'm Darrin, new to the list, and thought I should introduce myself.For many years I've been experiencing a worsening neuro conditionI felt was ms with tremors, twitches, spasms, a myoclonic jerk, anda contracture plus visual and other sensory problems. I finally gotto see an ms neuro recently who prescribed a battery of tests thatincluded comprehensive bloodwork and not yet done potentials tests. I haven't been to the follow up yet but the blood tests were negativefor just about everything except an ACE level in the 90s when it shouldbe 60 or below. A search on this got me to neurosarcoidosis and info onit seems to cover my symptoms well plus it explains the ACE. I don't know yet if I'm just a stranger sitting at the campfire for a nightor if I'll be building a cabin here but in any event it is nice to see a thriving community. Cheers,Darrin Quote Link to comment Share on other sites More sharing options...
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